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von Hippel-Lindau Disease clinical trials

The registry lists 55 studies for von Hippel-Lindau Disease across more than 10 countries. 23 are recruiting or about to start. 36 of them are mainly about von Hippel-Lindau Disease (how this is decided). Per ClinicalTrials.gov, last updated 2026-11-13.

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Status

Recruiting
20
Completed
19
Terminated
7
Active, not recruiting
4
Not yet recruiting
2
Status unknown
1

Phase

Phase 2
18
Phase 1
9
Early Phase 1
2
Phase 3
1

Where

United States
33
China
8
France
7
Italy
6
Denmark
5
Japan
3

Who runs them

National Eye Institute (NEI) (7) · M.D. Anderson Cancer Center (5) · National Cancer Institute (NCI) (5) · Merck Sharp & Dohme LLC (3) · National Institute of Neurological Disorders and Stroke (NINDS) (3) · IRCCS San Raffaele (2) · IRCCS Ospedale San Raffaele (2) · Peking University First Hospital (2)

What is being tested here

Drugs under test in von Hippel-Lindau Disease studies, those with the most open studies first. Medicines only given beside them are not counted. How drugs are counted

DrugOpenPhase 3All
Belzutifan314
Cabozantinib111
HIF-2alpha Inhibitor HS-10516101
Propranolol101
Sunitinib003
Ranibizumab002
Pazopanib001
PT2385001
Pegpleranib sodium001
Vorinostat001

Drug classes tested here Tyrosine kinase inhibitors (TKIs) 1 open · Angiogenesis inhibitors 6

Coming up

1phase 3 study under way
6studies finish main data collection within a year

Studies recruiting or running, from their records. “Main data collection” ends at the primary completion date, the sponsor’s own estimate, which often moves.

All 6

Who these studies take

Of the 20 von Hippel-Lindau Disease studies recruiting now, 16 (80%) set no upper age limit and 0 (0%) stop at 75 or younger. 9 (45%) take children under 18. 0 (0%) are for women only and 0 (0%) for men only; 5 (25%) take healthy volunteers.

Recruiting studies that take each age, of 20
AgeWomenMen
105 (25%)5 (25%)
1820 (100%)20 (100%)
3020 (100%)20 (100%)
4020 (100%)20 (100%)
5020 (100%)20 (100%)
6520 (100%)20 (100%)
7520 (100%)20 (100%)
8517 (85%)17 (85%)

Across all 55 studies, recruiting or not: 5% stop at 75 or younger and 4% at 65; 36% take children; 0% are for women only and 0% for men only; 9% take healthy volunteers. From each study’s registry entry; the criteria on its page decide.

What changed recently

From the registry's own updates since Oct 15, 2026.

Started recruiting1

Studies

Recruiting first, then most recently updated. Showing 50 of 55. Browse all 55 → or search them.