Disorders of Sex Development clinical trials

The registry lists 32 studies for Disorders of Sex Development across more than 10 countries. 7 are recruiting or about to start. 12 of them are mainly about Disorders of Sex Development (how this is decided). Per ClinicalTrials.gov, last updated 2026-10-21. Counting its 9 narrower conditions too, such as Turner Syndrome: 424 studies, 114 open.

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Status

Completed: 14
Recruiting: 6
Status unknown: 5
Terminated: 3
Withdrawn: 3
Enrolling by invitation: 1

Phase

Phase 1: 5
Phase 2: 4
Phase 3: 2

Where

United States: 13
France: 10
Taiwan: 3
Indonesia: 1
Austria: 1
Hong Kong: 1

Who runs them

National Taiwan University Hospital (2) · Organon and Co (2) · Hospices Civils de Lyon (2) · Lehigh University (1) · St. Jude Children's Research Hospital (1) · Université Paris-Saclay (1) · University Hospital Schleswig-Holstein (1) · Novartis Pharmaceuticals (1)

What is being tested here

Drugs under test in Disorders of Sex Development studies, those with the most open studies first. Medicines only given beside them are not counted. How drugs are counted

Drug	Open	Phase 3	All
Pazopanib	1	0	1
Selinexor	1	0	1
Asenapine	0	2	2
Hydrocortisone	0	0	1
Ribociclib	0	0	1
Spartalizumab	0	0	1
STA 9090	0	0	1
NBI 77860	0	0	1

Coming up

0phase 3 studies under way

2studies finish main data collection within a year

Studies recruiting or running, from their records. “Main data collection” ends at the primary completion date, the sponsor’s own estimate, which often moves.

All 2

Nov 2026Breaking Silence Through Story: A Narrative Medicine Intervention for Parents of Children With Urogenital Conditions · Sarah Schlegel
Feb 2027Identifying New Genetic Causes to Development Disorders · Fondation Ophtalmologique Adolphe de Rothschild

Who these studies take

Of the 6 Disorders of Sex Development studies recruiting now, 3 (50%) set no upper age limit and 2 (33%) stop at 75 or younger. 4 (67%) take children under 18. 0 (0%) are for women only and 0 (0%) for men only; 3 (50%) take healthy volunteers.

Recruiting studies that take each age, of 6
Age	Women	Men
10	4 (67%)	4 (67%)
18	6 (100%)	6 (100%)
30	6 (100%)	6 (100%)
40	4 (67%)	4 (67%)
50	4 (67%)	4 (67%)
65	4 (67%)	4 (67%)
75	4 (67%)	4 (67%)
85	4 (67%)	4 (67%)

Across all 32 studies, recruiting or not: 38% stop at 75 or younger and 38% at 65; 75% take children; 22% are for women only and 3% for men only; 25% take healthy volunteers. From each study’s registry entry; the criteria on its page decide.

What changed recently

From the registry's own updates since Oct 15, 2026.

Newly registered1

Clinical, Biochemical, and Cytogenetic Heterogeneity in Mosaic 46,XX/47,XXY Sex Chromosome AneuploidyOct 21, 2026NCT07885163

Studies

Recruiting first, then most recently updated. Showing 32 of 32. search them.