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Hemoglobinuria clinical trials

The registry lists 14 studies for Hemoglobinuria across more than 10 countries. 2 are recruiting or about to start. 2 of them are mainly about Hemoglobinuria (how this is decided). Per ClinicalTrials.gov, last updated 2026-11-06.

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Status

Completed
10
Status unknown
2
Recruiting
1
Enrolling by invitation
1

Phase

Phase 2
6
Phase 1
2
Phase 3
2

Where

United States
5
New Zealand
3
Korea, Republic of
3
Italy
2
China
2
Bulgaria
1

Who runs them

Apellis Pharmaceuticals, Inc. (3) · Alexion Pharmaceuticals, Inc. (3) · Institute of Hematology & Blood Diseases Hospital, China (2) · St. Jude Children's Research Hospital (2) · Akron Children's Hospital (1) · International PNH Interest Group (1) · AO GENERIUM (1) · Yonsei University (1)

What is being tested here

Drugs under test in Hemoglobinuria studies, those with the most open studies first. Medicines only given beside them are not counted. How drugs are counted

DrugOpenPhase 3All
Pegcetacoplan003
Danicopan002
Levamisole002
Cyclosporine002
Eculizumab011
Fludarabine001
Thiotepa001
Melphalan001
Mycophenolic Acid001
Rituximab001

Coming up

0phase 3 studies under way
1study finishes main data collection within a year

Studies recruiting or running, from their records. “Main data collection” ends at the primary completion date, the sponsor’s own estimate, which often moves.

The study

Who these studies take

Of the 1 Hemoglobinuria studies recruiting now, 1 (100%) set no upper age limit and 0 (0%) stop at 75 or younger. 1 (100%) take children under 18. 0 (0%) are for women only and 0 (0%) for men only; 0 (0%) take healthy volunteers.

Recruiting studies that take each age, of 1
AgeWomenMen
101 (100%)1 (100%)
181 (100%)1 (100%)
301 (100%)1 (100%)
401 (100%)1 (100%)
501 (100%)1 (100%)
651 (100%)1 (100%)
751 (100%)1 (100%)
851 (100%)1 (100%)

Across all 14 studies, recruiting or not: 29% stop at 75 or younger and 21% at 65; 36% take children; 0% are for women only and 0% for men only; 0% take healthy volunteers. From each study’s registry entry; the criteria on its page decide.

What changed recently

From the registry's own updates since Oct 11, 2026.

Newly registered1

Studies

Recruiting first, then most recently updated. Showing 14 of 14. search them.