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Ehlers-Danlos Syndrome clinical trials

The registry lists 67 studies for Ehlers-Danlos Syndrome across more than 10 countries. 24 are recruiting or about to start. 42 of them are mainly about Ehlers-Danlos Syndrome (how this is decided). Per ClinicalTrials.gov, last updated 2026-11-12. Counting its narrower condition Ehlers-Danlos syndrome type 3 too: 84 studies, 28 open.

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Status

Completed
32
Recruiting
12
Not yet recruiting
8
Status unknown
5
Enrolling by invitation
4
Active, not recruiting
4

Phase

Phase 4
3
Phase 2
2
Early Phase 1
1
Phase 1
1
Phase 3
1

Where

United States
26
France
13
Canada
6
Italy
5
United Kingdom
3
Switzerland
2

Who runs them

Assistance Publique - Hôpitaux de Paris (4) · University Health Network, Toronto (4) · IRCCS Policlinico S. Donato (3) · Genetic Disease Investigators (3) · Hospices Civils de Lyon (2) · GCS Ramsay Santé pour l'Enseignement et la Recherche (2) · Medical University of South Carolina (2) · University of Zurich (2)

What is being tested here

Drugs under test in Ehlers-Danlos Syndrome studies, those with the most open studies first. Medicines only given beside them are not counted. How drugs are counted

DrugOpenPhase 3All
Glucose112
Platelet rich plasma101
Doxycycline101
Sodium Chloride001
Lidocaine001
Celiprolol001
Mecasermin001
Oxygen001

Coming up

0phase 3 studies under way
8studies finish main data collection within a year

Studies recruiting or running, from their records. “Main data collection” ends at the primary completion date, the sponsor’s own estimate, which often moves.

All 8

Who these studies take

Of the 12 Ehlers-Danlos Syndrome studies recruiting now, 9 (75%) set no upper age limit and 3 (25%) stop at 75 or younger. 4 (33%) take children under 18. 3 (25%) are for women only and 0 (0%) for men only; 5 (42%) take healthy volunteers.

Recruiting studies that take each age, of 12
AgeWomenMen
104 (33%)4 (33%)
1811 (92%)9 (75%)
3011 (92%)9 (75%)
4012 (100%)9 (75%)
5012 (100%)9 (75%)
6510 (83%)8 (67%)
759 (75%)8 (67%)
859 (75%)8 (67%)

Across all 67 studies, recruiting or not: 31% stop at 75 or younger and 27% at 65; 39% take children; 9% are for women only and 0% for men only; 39% take healthy volunteers. From each study’s registry entry; the criteria on its page decide.

What changed recently

From the registry's own updates since Oct 15, 2026.

Started recruiting1

Newly registered4

Studies

Recruiting first, then most recently updated. Showing 50 of 67. Browse all 67 → or search them.