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Craniosynostoses clinical trials

The registry lists 51 studies for Craniosynostoses across more than 10 countries. 14 are recruiting or about to start. 43 of them are mainly about Craniosynostoses (how this is decided). Per ClinicalTrials.gov, last updated 2026-10-26. Counting its narrower condition Acrocephalosyndactylia too: 83 studies, 19 open.

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Status

Completed
21
Recruiting
7
Not yet recruiting
6
Terminated
5
Status unknown
4
Withdrawn
3

Phase

Phase 4
2
Phase 2
1
Phase 3
1
Phase 1
1

Where

United States
22
France
8
Italy
4
Turkey
3
Brazil
2
United Kingdom
2

Who runs them

National Human Genome Research Institute (NHGRI) (3) · Hospices Civils de Lyon (3) · Fondazione Policlinico Universitario Agostino Gemelli IRCCS (3) · Boston Children's Hospital (2) · University of Pittsburgh (2) · University of Texas Southwestern Medical Center (2) · Assiut University (2) · University of Colorado, Denver (1)

Coming up

0phase 3 studies under way
5studies finish main data collection within a year

Studies recruiting or running, from their records. “Main data collection” ends at the primary completion date, the sponsor’s own estimate, which often moves.

All 5

Who these studies take

Of the 7 Craniosynostoses studies recruiting now, 1 (14%) set no upper age limit and 6 (86%) stop at 75 or younger. 7 (100%) take children under 18. 0 (0%) are for women only and 0 (0%) for men only; 1 (14%) take healthy volunteers.

Recruiting studies that take each age, of 7
AgeWomenMen
102 (29%)2 (29%)
182 (29%)2 (29%)
301 (14%)1 (14%)
401 (14%)1 (14%)
501 (14%)1 (14%)
651 (14%)1 (14%)
751 (14%)1 (14%)
851 (14%)1 (14%)

Across all 51 studies, recruiting or not: 82% stop at 75 or younger and 82% at 65; 98% take children; 0% are for women only and 0% for men only; 16% take healthy volunteers. From each study’s registry entry; the criteria on its page decide.

Studies

Recruiting first, then most recently updated. Showing 50 of 51. Browse all 51 → or search them.