An observational study in Joint Disease, sponsored by Lund University. Withdrawn. Per ClinicalTrials.gov, last updated 2018-12-21.
Sponsored by Lund University · Observational
The KAPPa project has the aim to create an international database in which information about clinical features, therapeutic management, burden of illness and costs of severe and moderate haemophilia A patients from different countries and sites is collected. The aim of this project is to analyse the influence of such different characteristics on medical, psychosocial and economic outcomes in patients over the long-term.
1000 patients with hemophilia A will be enrolled using a webbased registry. Key quality factors that will be registered are : hemophilia joint Health score (HJHS), annual bleed rate, quality of Life (EQ5D), as well as dosing of replacement therapy.
712 studies on the registry are indexed under Joint Diseases; 127 are open to participants now.
Browse Joint Diseases studies →Lund University is the lead sponsor of 230 studies on the registry; 37 are open to participants now.
Counted across the registry records on this site, refreshed daily.
Patients from haemophilia centers.
Inclusion Criteria: or forms.
Exclusion Criteria:
Hemophilia A receiving replacement therapy (prophylaxis or on demand)
Biological: Factor VIII replacement
Patients receive their usual treatment
Also known as: factor VIII
Outcome of factor replacement treatment
Joint disase according to HJHS. Quality of Life. Health economic evalaution.
Time frame: 3 years
No study locations are listed for this record.
Plan to share: Undecided
No publications or documents are linked to this record.
This study is withdrawn, as verified in Dec 2018. You cannot join it, but the record below documents what was studied.
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