An observational study in Lyme Borreliosis, Fibromyalgia and Rheumatoid Arthritis (RA), sponsored by Central Hospital, Nancy, France. Completed at 1 site in France. Per ClinicalTrials.gov, last updated 2026-10-13.
Sponsored by Central Hospital, Nancy, France · Observational
Chronic pain is a major symptom shared by several medical conditions. This study focuses on five well-defined chronic diseases : Lyme Borreliosis (LB), Post-Acute COVID-19 Syndrome (PACS or "long COVID"), fibromyalgia, endometriosis, and rheumatoid arthritis. Although all of these conditions are associated with chronic pain, they differ in several important aspects, justifying their choice for a comparison.
The overall objective of this study was to describe the symptoms, treatments, and healthcare pathways associated with these five conditions, as reported by patients on social media platforms and online forums. The specific objectives were to compare PTLDS with the four other conditions across the following aspects: (i) Incompatible symptoms reported by patients; (ii) Different components of pain : physical, emotional, and social; (iii) Healthcare pathways; and (iv) Adherence to treatment recommendations.
93 studies on the registry are indexed under Lyme Disease; 26 are open to participants now.
This study's enrollment of 501 is above the median of 400 across 41 observational studies indexed under Lyme Disease.
Browse Lyme Disease studies →Central Hospital, Nancy, France is the lead sponsor of 796 studies on the registry; 187 are open to participants now.
Counted across the registry records on this site, refreshed daily.
The following patient-reported conditions were selected: Lyme borreliosis, Post acute COVID-19 Syndrome, fibromyalgia, endometriosis and rheumatoid arthritis.
Diagnostic accuracy was not verified. Posts were included whenever patients reported suffering from one of these conditions.
Go through the criteria one by one — yes, no or not sure — and take the list to your doctor or the study team. Kept in this browser only.
Exclusion Criteria:
Patients describing themselves as having Lyme borreliosis
Patients describing on internet themselves as having Endometriosis
Patients describing on internet themselves as having Fibromyalgia
Patients describing on internet themselves as having Rheumatoid Arthritis
Patients describing on internet themselves as having Post-Acute COVID-19 Syndrome
symptoms
Comparison of symptoms reported by patients across all conditions in social media or forum posts not suggestive of the disease
Time frame: Baseline
Treatments
Comparison of non-recommended treatments, reported by patients across all conditions in social media or forum posts
Time frame: Baseline
healthcare pathways
Comparison of healthcare pathways, reported by patients across all conditions in social media or forum posts
Time frame: Baseline
Biopsychosocial Model of Pain
Comparison of the different components of pain : physical, emotional, and social, reported by patients across all conditions in social media or forum posts
Time frame: Baseline
Plan to share: Undecided
No publications or documents are linked to this record.
From the registry record's own update history. This site started tracking changes on Sep 25, 2026; for anything earlier, see the record history on ClinicalTrials.gov ↗
This study is completed, as verified in Jul 2026. You cannot join it, but the record below documents what was studied.
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