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CompletedNCT03304886Updated Oct 14, 2020

Assessing the Diagnostic Accuracy of an On-line Questionnaire for Diagnosis of Primary Headache Disorders

An observational study in Headache Disorders, sponsored by Stanford University. Completed at 1 site in United States. Open to participants aged 18 Years to 65 Years, including healthy volunteers. Per ClinicalTrials.gov, last updated 2020-10-14.

Sponsored by Stanford University · Observational

Study type
Observational
Model
Case-control
Time perspective
Cross-sectional
Enrollment
250
Ages
18 Years to 65 Years
Sex
All
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Study summary

Purpose of the study is to assess the diagnostic accuracy of an on- line questionnaire in comparison to a semi-structured interview administered by a trained interviewer.

Read the detailed description

The worldwide current gold standard for diagnosing headaches is the International Classification of Headache Disorders (ICHD 3 beta). Adhering strictly to ICHD criteria has been problematic for accurately diagnosing patients in the clinic and as for clinical trials. To address these issues, an online instrument was developed that successfully diagnosis common primary and secondary headache disorders. In this research Investigator hopes to demonstrate an on- line questionnaire is non inferior to a semi-structured interview for accurately diagnosing different types of headaches (for example: episodic migraine vs. non episodic migraine, chronic migraine vs. non chronic migraine, episodic tension-type vs. non-episodic tension type, chronic tension-type headache vs. non chronic tension-type headache, medication overuse headache vs. non medication overuse headache, post traumatic headache vs. non post traumatic headache).

Participants will be screened by telephone to see if participants meet the criteria for taking part in this research study. Once participant is deemed eligible,the participants will then be randomized in a 1:1 ratio to complete either the semi-structured interview over the phone first and then complete the online questionnaire or vice versa. Study is expected to enroll 500 participants with headache and healthy controls.

02

Conditions studied

03

Who can participate

Ages eligible
18 Years to 65 Years
Sexes eligible
All
Accepts healthy volunteers
Yes
Sampling method
Probability sample

Study population

All race, gender age between 18-65, English speaking selected from community, clinic.

Inclusion criteria

  1. Female or male subjects age between age 18-65(inclusive),
  2. Subjects must agree to sign online informed consent;
  3. Subject must be able to understand and willing to complete both evaluations in English
  4. Willing to comply with study instructions.
  5. Agree not to Rely or act on any diagnosis given to them in the study

Exclusion criteria

Exclusion Criteria:

  1. Presence of Disorders listed in groups 5-13 of The International Headache Society Classification of Head and Facial Pain (Headache Classification Committee of the International Headache Society, 2015 except for post traumatic headache and medication overuse headache);

1a. History of brain tumor, brain surgery

1b. History of brain infection such as meningitis, encephalitis, or meningoencephalitis

1c. History of any significant current or previous brain dysfunction

1d. Regular use of illicit drugs.

  1. Known significant medical or psychiatric disease or abnormal laboratory data that would preclude entry into this study.
  1. Subjects with - significant cognitive impairment such as dementia, active psychiatric disease such as schizophrenia.
  1. Subjects with physical limitations to participate in the on-line or phone interview impossible.
  1. Non-English speaking patients
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Study design

Observational model
Case-control
Time perspective
Cross-sectional
Enrollment
250 participants (actual)
Patient registry
No

Groups and cohorts

  • Migraineurs

    with a migraine

  • Control

    Participants without migraine

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What researchers measure

Primary outcomes

  1. On-line questionnaire accuracy for Diagnosing episodic migraine

    An on- line questionnaire is non inferior to a semi-structured interview for accurately diagnosing episodic migraine vs non episodic migraine, chronic migraine vs. non chronic migraine. We will compare the 4 primary (chronic and episodic migraine, chronic and episodic tension-type headache) obtained on each of the two evaluations for reliability using recognized statistical tools: This analysis will be conducted by independent reviewers, not the developers of either instrument

    Time frame: 2 -2.5 years

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Study locations

1 site
  • Stanford University, School of Medicine
    Palo Alto, California 94304, United States
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References and documents

Publications

  • DeSouza DD, Woldeamanuel YW, Sanjanwala BM, Bissell DA, Bishop JH, Peretz A, Cowan RP. Altered structural brain network topology in chronic migraine. Brain Struct Funct. 2020 Jan;225(1):161-172. doi: 10.1007/s00429-019-01994-7. Epub 2019 Dec 2. PubMed 31792696 ↗

Individual participant data

Plan to share: No

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Registry details

Key details

Study ID
NCT03304886
Lead sponsor
Stanford University
Responsible party
Robert Cowan (Director and Chief, Division of Headache Medicine, Stanford University) — Principal investigator
First posted
Oct 9, 2017
Start date
Feb 28, 2018
Primary completion
Oct 30, 2019
Completion
Dec 30, 2019
Last update
Oct 14, 2020

Study contacts

Robert Cowan, MD, FAAN
principal investigator · Stanford University

Oversight

Data monitoring committee
No
FDA-regulated drug
No
FDA-regulated device
No
View the source record on ClinicalTrials.gov ↗

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This study is completed, as verified in Oct 2020. You cannot join it, but the record below documents what was studied.

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