An interventional study of Ung Face IT in Skin Condition, Cleft Lip and Palate and Burns, sponsored by Oslo University Hospital. Status unknown at 1 site in Norway. Open to participants aged 12 Years to 17 Years, including healthy volunteers. Per ClinicalTrials.gov, last updated 2023-03-31.
Sponsored by Oslo University Hospital · Not applicable, Interventional, and Supportive care
A visible difference can have a profound impact in a society with a massive emphasis on appearance and "looks". A vulnerable group is adolescents with a condition affecting their appearance as a result of injuries (burns, accidents), treatment (cancer), skin conditions or congenital anomalies (birthmarks, craniofacial conditions). Research has identified potential psychological difficulties, which, if not addressed, can lead to anxiety, depression, and eating disorders.
In addition to medical treatment options, aiming at diminishing a difference that may be visible to others, young people with appearance concerns also need self-management skills. However, evidence-based interventions are scarce and specialised psychological treatment is difficult to reach.
The Centre for Appearance Research (Bristol, UK) has developed an online intervention for adolescents, now translated into Norwegian (www.ungfaceit.no). UNG Face IT provides easy access to specialist advice and support via a home computer, using information, videos, and interactive activities. It provides advice, teaches coping and social skills, strengthening psychological adjustment to a visible difference.
A systematic evaluation of the Norwegian version is needed. UNG Face IT could potentially address unmet needs, provide a cost-effective tool to reduce the need for "face-to-face" psychological and surgical/medical services, and contribute to make online health care available for young people with a visible difference.
Exclusion Criteria:
The intervention group will go through the intervention programme (Ung Face IT) after T1 and randomisation. Programme takes 7 weeks to complete + Treatment as usual (local health care services). Questionnaires after the 7 weeks (T2) and after three months (T3) and 6 months (T4).
Other: Ung Face IT
Treatment as usual for three months after T1 and randomisation, with local health care support if needed. Questionnaires at T2 and T3 before participants are given access to the intervention (Ung Face IT) after three months. Questionnaire at T4 (post-intervention).
Other: Ung Face IT
Ung Face IT is an online intervention tool (programme) that provides easy access to specialist advice and support via a home computer/tablet, using illustrations, information, videos, and interactive activities, and a discussion forum for participants only (supervised by the research team). Through these tools, it provides advice and teaches coping skills based on cognitive behavioural therapy and social interaction skills training.
Also known as: English name: Young People Face IT (YP Face IT)
Body Esteem Scale (BES)
Includes three subscales, only the subscale BE_Appearance used in this study. Measures general feelings about appearance.
Time frame: 6 months
Life Engagement Scale (LES)
Social experiences and social engagement (10 items)
Time frame: 6 months
Perceived Stigmatisation Questionnaire
Three subscales: Absence of friendly behaviour, confused and staring behaviour, and hostile behaviour by others. These communicate social acceptance, social discomfort, and social rejection respectively.
Time frame: 6 months
Harter's Self-Perception Profile for Adolescents
Two subscales are used: Romantic concerns and general self-esteem
Time frame: 6 months
EQ-5D-5L
Indicator of the impact of UNG Face IT on Health related quality of life and to provide Health economic data
Time frame: 6 months
Resource Use Questionnaire (Parents)
Assessing time out of School, use of Health care Resources and expenses in relation to the child's condition.
Time frame: 6 months
Plan to share: No — Data from the UK and Nethelands will be shared anonymously with the Norwegian Research team. No Norwegian data will be shared with international collaborators.
No publications or documents are linked to this record.
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Oslo University Hospital