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Hepatolenticular Degeneration clinical trials

The registry lists 80 studies for Hepatolenticular Degeneration across more than 10 countries. 31 are recruiting or about to start. 71 of them are mainly about Hepatolenticular Degeneration (how this is decided). Per ClinicalTrials.gov, last updated 2026-11-06.

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Status

Completed
31
Recruiting
21
Not yet recruiting
9
Active, not recruiting
7
Status unknown
5
Terminated
5

Phase

Phase 1
11
Phase 2
9
Phase 3
6
Phase 4
3
Early Phase 1
3

Where

United States
23
United Kingdom
17
France
17
China
15
Germany
11
Spain
8

Who runs them

Alexion Pharmaceuticals, Inc. (11) · Fondation Ophtalmologique Adolphe de Rothschild (7) · Orphalan (6) · Assiut University (5) · Yale University (3) · Second Affiliated Hospital, School of Medicine, Zhejiang University (3) · Ultragenyx Pharmaceutical Inc (3) · Assistance Publique - Hôpitaux de Paris (2)

What is being tested here

Drugs under test in Hepatolenticular Degeneration studies, those with the most open studies first. Medicines only given beside them are not counted. How drugs are counted

DrugOpenPhase 3All
Gluconic acid102
Tetrathiomolybdate0310
Trientine003
Zinc Acetate012
Galactose001
Unithiol001
Penicillamine001
Succimer001
Zinc001

Coming up

1phase 3 study under way
9studies finish main data collection within a year

Studies recruiting or running, from their records. “Main data collection” ends at the primary completion date, the sponsor’s own estimate, which often moves.

All 9

Who these studies take

Of the 21 Hepatolenticular Degeneration studies recruiting now, 16 (76%) set no upper age limit and 4 (19%) stop at 75 or younger. 14 (67%) take children under 18. 1 (5%) are for women only and 0 (0%) for men only; 3 (14%) take healthy volunteers.

Recruiting studies that take each age, of 21
AgeWomenMen
1010 (48%)10 (48%)
1821 (100%)20 (95%)
3021 (100%)20 (95%)
4021 (100%)20 (95%)
5021 (100%)20 (95%)
6520 (95%)19 (90%)
7517 (81%)16 (76%)
8517 (81%)16 (76%)

Across all 80 studies, recruiting or not: 33% stop at 75 or younger and 28% at 65; 53% take children; 1% are for women only and 0% for men only; 15% take healthy volunteers. From each study’s registry entry; the criteria on its page decide.

Studies

Recruiting first, then most recently updated. Showing 50 of 80. Browse all 80 → or search them.