An observational study in Wilson Disease, sponsored by Asociación Española para el Estudio del Hígado. Recruiting at 1 site in Spain. Open to participants aged 18 Years and older. Per ClinicalTrials.gov, last updated 2024-06-20.
Sponsored by Asociación Española para el Estudio del Hígado · Observational
The main objective and purpose of the Registry is to know the current status of Wilson Disease in Spain.
As secondary objectives, the prevalence and incidence of the disease will be analysed.
Likewise, the analysis aims to define future areas of interest in its pathogenesis, diagnosis, natural history, follow-up, prognosis and treatment.
Improving knowledge at a national level can help to design screening strategies and improve diagnostic circuits.
Retrospective and prospective study.
78 studies on the registry are indexed under Hepatolenticular Degeneration; 30 are open to participants now.
This study's planned enrollment of 600 is above the median of 69 across 34 observational studies indexed under Hepatolenticular Degeneration.
Browse Hepatolenticular Degeneration studies →This is the only study on the registry with Asociación Española para el Estudio del Hígado as lead sponsor.
Counted across the registry records on this site, refreshed daily.
Wilson Disease patients under follow-up in participating centres in Spain who agree to participate in the registry by signing the informed consent form.
Exclusion Criteria:
To know the current status of Wilson Disease in Spain
Time frame: 2025
To analyse the prevalence of Wilson Disease in Spain
Time frame: 2025
To analyse the incidence of Wilson Disease in Spain
Time frame: 2025
To define future areas of interest in Wilson Disease
To define future areas of interest in the disease pathogenesis, diagnosis, natural history, follow-up, prognosis and treatment
Time frame: 2025
Eligibility is decided by the study team. Share this record with your doctor or contact the team directly.
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Hepatolenticular Degeneration→