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Epidermolysis Bullosa clinical trials

The registry lists 85 studies for Epidermolysis Bullosa across more than 10 countries. 17 are recruiting or about to start. 52 of them are mainly about Epidermolysis Bullosa (how this is decided). Per ClinicalTrials.gov, last updated 2026-11-09. Counting its 2 narrower conditions too, such as Epidermolysis Bullosa Dystrophica: 147 studies, 32 open.

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Status

Completed
43
Recruiting
11
Terminated
8
Active, not recruiting
6
Withdrawn
5
Status unknown
5

Phase

Phase 2
31
Phase 1
16
Phase 3
14
Phase 4
6
Early Phase 1
4

Where

United States
41
France
14
Spain
7
Poland
6
Austria
6
Germany
6

Who runs them

Northwestern University (5) · Scioderm, Inc. (4) · Masonic Cancer Center, University of Minnesota (4) · Assistance Publique - Hôpitaux de Paris (4) · Abeona Therapeutics, Inc (4) · Centre Hospitalier Universitaire de Nice (3) · Stanford University (3) · RHEACELL GmbH & Co. KG (3)

What is being tested here

Drugs under test in Epidermolysis Bullosa studies, those with the most open studies first. Medicines only given beside them are not counted. How drugs are counted

DrugOpenPhase 3All
Nelitolimod246
Episalvan123
Birch triterpenes123
Oxygen101
Efgartigimod alfa101
Immunoglobulin G101
Dupilumab101
Busulfan003
Serlopitant002
Diacerein002

Drug classes tested here Alkylating agents 3

Coming up

6phase 3 studies under way
8studies finish main data collection within a year2 of them phase 3

Studies recruiting or running, from their records. “Main data collection” ends at the primary completion date, the sponsor’s own estimate, which often moves.

All 8, phase 3 first

Who these studies take

Of the 11 Epidermolysis Bullosa studies recruiting now, 9 (82%) set no upper age limit and 2 (18%) stop at 75 or younger. 10 (91%) take children under 18. 0 (0%) are for women only and 0 (0%) for men only; 1 (9%) take healthy volunteers.

Recruiting studies that take each age, of 11
AgeWomenMen
1010 (91%)10 (91%)
1810 (91%)10 (91%)
309 (82%)9 (82%)
409 (82%)9 (82%)
509 (82%)9 (82%)
659 (82%)9 (82%)
759 (82%)9 (82%)
859 (82%)9 (82%)

Across all 85 studies, recruiting or not: 28% stop at 75 or younger and 28% at 65; 92% take children; 0% are for women only and 0% for men only; 6% take healthy volunteers. From each study’s registry entry; the criteria on its page decide.

What changed recently

From the registry's own updates since Oct 15, 2026.

Newly registered1

Studies

Recruiting first, then most recently updated. Showing 50 of 85. Browse all 85 → or search them.