CClinicalTrials.gg
RecruitingNCT06716814LIBERTYUpdated Jun 26, 2026

Study to Provide Continued Access to Treatment for Patients Completing a Previous Trial With Efanesoctocog Alfa

A Phase 3 interventional study of Efanesoctocog alfa in Haemophilia A (Moderate or Severe), sponsored by Swedish Orphan Biovitrum. Recruiting at 21 sites in 7 countries. Open to male participants aged 6 Years and older. Per ClinicalTrials.gov, last updated 2026-06-26.

Sponsored by Swedish Orphan Biovitrum · Phase 3, Interventional, and Treatment

Phase
Phase 3
Study type
Interventional
Enrollment
104
Allocation
Not applicable
Ages
6 Years and older
Sex
Male
01

Study summary

This is a multinational, prospective, open-label, roll-over study in patients with haemophilia A, ≥6 years of age, who have completed participation in any of the parental studies with efanesoctocog alfa; XTEND-ed study (LTS16294), FREEDOM study (Sobi.BIVV001-001), PK comparison study (Sobi.BIVV001-003) or SHINE study (Sobi.BIVV001-004). The aim of the study is to provide patients with continuous benefit from efanesoctocog alfa treatment and to further continue clinical monitoring for safety and efficacy until efanesoctocog alfa is commercially available in each patient's respective country (or until March 2027, whichever comes first).

The study starts with the Baseline Visit, which will be done in connection to the end of treatment at the EoT/EoS visit (or equivalent) in the respective parent study. Subsequent study visits (on site or phone call) will be done approximately every 13 weeks until End of Treatment. An End of Study safety phone call will be done 14 (+7) days after the End of Treatment Visit.

02

Conditions studied

  • Haemophilia A (Moderate or Severe)

Keywords

  • Haemophilia A
  • Blood coagulation disorder
  • Factor VIII
  • FVIII
  • Coagulation protein disorder
  • Severe Haemophilia A
  • Efanesoctocog alfa
  • Haemophilia A (Moderate or Severe)
03

Who can participate

Ages eligible
6 Years and older
Sexes eligible
Male
Accepts healthy volunteers
No

Inclusion criteria

  • Capable of giving signed informed consent. Parents or legally designated representatives' consent is required for patients who are below 18 years of age or unable to give consent. Patients who are below 18 years of age may provide assent in addition to the parents'/legally designated representatives' consent, if appropriate.
  • Must have completed one of the required parent studies: Sobi.BIVV001-001, Sobi.BIVV001-003, LTS16294, or Sobi.BIVV001-004, and be receiving a clinical benefit from the efanesoctocog alfa treatment, as judged by the Investigator.
  • Willingness and ability of patient or their parent or legally designated representative to complete training in the use of the study patient diary and to complete the diary throughout the study.

Exclusion criteria

Exclusion Criteria:

  • Positive inhibitor result, defined as ≥0.6 Bethesda units (BU)/mL, present at the Baseline Visit.
  • Ongoing or planned participation in any interventional clinical study at the Baseline Visit.
  • Patient not suitable for participation, whatever the reason, as judged by the Investigator, including medical or clinical conditions, or patients potentially at risk of noncompliance to study procedures.
04

Study design

Phase
Phase 3
Primary purpose
Treatment
Allocation
Not applicable
Intervention model
Single group
Masking
None (open label)
Enrollment
104 participants (estimated)

Study arms

  • Experimental
    Efanesoctocog alfa prophylaxis

    Patients who have completed a previous study with efanesoctocog alfa may continue to be treated with a prophylactic dose of 50 IU/kg efanesoctocog alfa once weekly.

    Drug: Efanesoctocog alfa

Interventions

  • DrugEfanesoctocog alfa

    Treatment starts when the patient completes the parent study and continues until efanesoctocog alfa is commercially available in each patient's respective country, or until March 2027, whichever comes first.

    Also known as: BIVV001, Altuvoct, Altuviiio, Recombinant coagulation factor VIII Fc-von-Willebrand Factor-XTEN fusion protein (rFVIIIFc-VWF-XTEN)

05

What researchers measure

Primary outcomes

  1. Number of injections to treat a bleeding episode

    Time frame: From enrollment and up to 52 weeks

  2. Total dose to treat a bleeding episode

    Time frame: From enrollment and up to 52 weeks

  3. Adverse events (AEs), including serious adverse events (SAEs) and adverse events of special interest (AESIs)

    Number of participants with occurrence of AEs, SAEs, and AESIs

    Time frame: From enrollment and up to 52 weeks

  4. Annualized bleeding rate (ABR) for treated bleeding episodes

    ABR for treated bleeding episodes during prophylactic treatment.

    Time frame: From enrollment and up to 52 weeks

  5. Annualized bleeding rate (ABR) for treated bleeding episodes by type of bleed

    ABR for treated bleeding episodes during prophylactic treatment by type of bleed.

    Time frame: From enrollment and up to 52 weeks

  6. Annualized bleeding rate (ABR) for treated bleeding episodes by location of bleed

    ABR for treated bleeding episodes during prophylactic treatment by location of bleed.

    Time frame: From enrollment and up to 52 weeks

  7. Annualized bleeding rate (ABR) for all bleeding episodes

    ABR for all bleeding episodes (including untreated bleeding episodes, excluding surgery bleeds) during prophylactic treatment.

    Time frame: From enrollment and up to 52 weeks

  8. Annualized bleeding rate (ABR) for all bleeding episodes by type of bleed

    ABR for all bleeding episodes (including untreated bleeding episodes, excluding surgery bleeds) during prophylactic treatment, by type of bleed.

    Time frame: From enrollment and up to 52 weeks

  9. Annualized bleeding rate (ABR) for all bleeding episodes by location of bleed

    ABR for all bleeding episodes (including untreated bleeding episodes, excluding surgery bleeds) during prophylactic treatment, by location of bleed.

    Time frame: From enrollment and up to 52 weeks

06

Study locations

3 of 21 sites recruiting
  • Sobi Investigational Site
    Plovdiv, Bulgaria
    Active, not recruiting
  • Sobi Investigational Site
    Sofia, Bulgaria
    Active, not recruiting
  • Sobi Investigational Site
    Brest, France
    Active, not recruiting
  • Sobi Investigational Site
    Bron, France
    Active, not recruiting
  • Sobi Investigational Site
    Lille, France
    Active, not recruiting
  • Sobi Investigational Site
    Strasbourg, France
    Withdrawn
  • Sobi Investigational Site
    Athens, Greece
    Active, not recruiting
  • Sobi Investigational Site
    Catanzaro, Italy
    Active, not recruiting
  • Sobi Investigational Site
    Florence, Italy
    Active, not recruiting
  • Sobi Investigational Site
    Milan, Italy
    Active, not recruiting
  • Sobi Investigational Site
    Naples, Italy
    • Principal Investigator · Contact
    Recruiting
  • Sobi Investigational Site
    Parma, Italy
    Active, not recruiting
  • Sobi Investigational Site
    Rome, Italy
    Active, not recruiting
  • Sobi Investigational Site
    Rozzano, Italy
    Active, not recruiting
  • Sobi Investigational Site
    Vicenza, Italy
    Active, not recruiting
  • Sobi Investigational Site
    Oslo, Norway
    • Principal Investigator · Contact
    Recruiting
  • Sobi Investigational Site
    A Coruña, Spain
    Active, not recruiting
  • Sobi Investigational Site
    Zaragoza, Spain
    Active, not recruiting
  • Sobi Investigational Site
    Gothenburg, Sweden
    Active, not recruiting
  • Sobi Investigational Site
    Lund, Sweden
    • Principal Investigator · Contact
    Recruiting
  • Sobi Investigational Site
    Stockholm, Sweden
    Active, not recruiting
07

References and documents

Individual participant data

Plan to share: Yes — Qualified researchers may request access to patient level data and related study documents including the clinical study report, study protocol with any amendments, blank case report form, statistical analysis plan, and dataset specifications. Patient level data will be anonymized and study documents will be redacted to protect the privacy of trial participants. Further details on Sobi data sharing criteria and process for requesting access can be found at: https:// www.sobi.com/en/policies

Supporting information: Study protocol, Sap, Icf, Csr

No publications or documents are linked to this record.

08

Registry details

Key details

Study ID
NCT06716814
Lead sponsor
Swedish Orphan Biovitrum
Collaborators
PSI CRO
Responsible party
Sponsor
First posted
Dec 4, 2024
Start date
Mar 6, 2025
Primary completion
Mar 2027 (estimated)
Completion
Mar 2027 (estimated)
Last update
Jun 26, 2026

Study contacts

Study Physician
Contact
medical.info@sobi.com
+46 (0)8 697 20 00
Clinical Program Lead
Contact
medical.info@sobi.com
+46 (0)8 697 20 00
Medical Development Lead
study director · Sobi AB

Oversight

Data monitoring committee
No
FDA-regulated drug
Yes
FDA-regulated device
No
View the source record on ClinicalTrials.gov ↗

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