An observational study in Cognitive Impairment and Dementia, sponsored by Blekinge Institute of Technology. Recruiting at 1 site in Sweden. Open to participants aged 18 Years and older, including healthy volunteers. Per ClinicalTrials.gov, last updated 2024-03-29.
Sponsored by Blekinge Institute of Technology · Observational
Person-centred care can be supported when healthcare professionals access and actively use the information recorded in a life story. Active use of the life story can create security for a person with dementia and their carers. The written life story describes the person and their life experiences, which can define the person's identity. National guidelines for care and nursing in dementia and Blekinge's regional guidelines emphasise the importance of care and nursing for people with dementia, which should be given with a person-centred approach, where the life story becomes a tool for healthcare professionals. Research shows that a life story can be designed in several ways. For example, in book form, as a brochure, collage, memory box or electronically. The life story is also intended as a tool for healthcare professionals to create security and facilitate communication with the individual. As more and more older adults are using computers and tablets as assistive devices, and it is also becoming more common for healthcare professionals to use, for example, tablets as assistive devices in nursing care, the life story could be shared in digital form as an application and become a living document.
Overall aim: To test an application for the life story with the intention of supporting person-centred care for older adults with dementia and to test whether the application can replace the written completion document. Study I: Exploring the research area of the life story in digital form. Study II: Focus group interviews with healthcare professionals. Study III: Test the application, Min Memoria. Study IV: Observations on the use of the application.
3,872 studies on the registry are indexed under Cognitive Dysfunction; 1,119 are open to participants now.
This study's planned enrollment of 30 is below the median of 150 across 997 observational studies indexed under Cognitive Dysfunction.
Browse Cognitive Dysfunction studies →Blekinge Institute of Technology is the lead sponsor of 14 studies on the registry; 6 are open to participants now.
Counted across the registry records on this site, refreshed daily.
Healthcare professionals working in daycare center and residential care.
Go through the criteria one by one — yes, no or not sure — and take the list to your doctor or the study team. Kept in this browser only.
Exclusion Criteria:
Device: Test of the application Min Memoria
Focus group interviews will be conducted to reach healthcare professionals' experiences using a written life story in daily care. Then, the information from the written life story will be transferred to the application, and the healthcare professionals will test a digital life story (the application) in daily care instead. Observation studies will be conducted to observe the use of the digital life story. What can be seen in the communication and the interaction, and in what situations is the digital life story used?
Healthcare professionals' experiences using a written life story in the daily care of older adults with dementia
Focus group interviews
Time frame: From October 2023 - August 2024
Data on the use of a digital life story tool.
Explore the usability, accessibility and positive and negative effects on daily care. Data will be collected through a survey with healthcare professionals (participants).
Time frame: September 2024 - August 2025
Observation when using a digital life story
Data will be collected through non-participant observations. Observing communication and interactions between the healthcare professionals and the older adults when using the digital tool.
Time frame: September 2025 - December 2026
Plan to share: Yes — The data supporting this study's findings will be available on request from the corresponding author (Helén Dellkvist). The data are not publicly available due to privacy or ethical restrictions.
Supporting information: Study protocol, Clinical study report, Analytic code
Time frame: From when each sub-study is publiced and onwards.
No publications or documents are linked to this record.
Started Aug 2022 (actual). Primary completion is estimated for Jan 2026, 41 months after the start.
Of 504 non-industry observational studies under Cognitive Dysfunction, half reached primary completion within 49 months of starting (the median), counting those still running; a quarter within 22 and three quarters within 118. This study's planned 41 months is below that.
Counting every sponsor, half of 543 studies reached it within 47 months; a quarter within 21 and three quarters within 118.
How these figures are worked out, and which studies are left out of them.
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Blekinge Institute of Technology