An interventional study of Web-based Educational Intervention in Congenital Heart Disease, Transition and Pediatric Congenital Heart Disease, sponsored by University of Michigan. Completed at 1 site in United States. Open to participants aged 13 Years to 25 Years. Per ClinicalTrials.gov, last updated 2025-08-26.
Sponsored by University of Michigan · Not applicable, Interventional, and Other
The study looks to learn more about the helpfulness of web-based transition education and its effect on transition readiness and health service utilization in the adolescent and young adult congenital heart disease population.
Exclusion Criteria:
This group of participants will be given access to a web-based educational resource in addition to the standard of care.
Behavioral: Web-based Educational Intervention
This group will be given only the standard of care during their clinic visit.
A web-based educational tool, created for patients with congenital heart disease, will be given to patients using an ipad. This additional educational tool will be used with the standard of care visit with provider.
Change in transition readiness score, as measured by transition readiness survey
The transition readiness survey is used to measure a participant's self-reported knowledge about their health and readiness to take charge of their healthcare. Each item is scored from 1 to 5, where 1 means "No, I do not know how" and 5 means "Yes, I always do this when I need to." The overall score is determined by calculating the sum of all questions on a 100 point scale. A higher score indicates greater readiness for transition.
Time frame: baseline, 12 months
Plan to share: No
This study is completed, as verified in Aug 2025. You cannot join it, but the record below documents what was studied.
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University of Michigan