CClinicalTrials.gg
RecruitingNCT00009633FUUpdated Jul 1, 2026

Follow-up Visit of High Risk Infants

An observational study in Infant, Newborn, Infant, Low Birth Weight and Infant, Small for Gestational Age, sponsored by NICHD Neonatal Research Network. Recruiting at 31 sites in United States. Open to participants aged 18 Months to 26 Months. Per ClinicalTrials.gov, last updated 2026-07-01.

Sponsored by NICHD Neonatal Research Network · Observational

Study type
Observational
Model
Cohort
Time perspective
Prospective
Enrollment
68,000
Ages
18 Months to 26 Months
Sex
All
01

Study summary

The NICHD Neonatal Research Network's Follow-Up study is a multi-center cohort in which surviving extremely low birth-weight infants born in participating network centers receive neurodevelopmental, neurosensory and functional assessments at 22-26 months corrected age (Infants born prior to July 1, 2012 were seen at 18-22 months corrected age). Data regarding pregnancy and neonatal outcome are collected prospectively. The goal is to identify potential maternal and neonatal risk factors that may affect infant neurodevelopment.

Read the detailed description

The NICHD Neonatal Research Network's Follow-Up study is a multi-center cohort study in which surviving extremely low birth-weight infants undergo neurodevelopmental, neurosensory and functional assessments at 22-26 months corrected age (Infants born prior to July 1, 2012 were seen at 18-22 month corrected age). The goal of the study is to identify potential maternal and neonatal risk factors that may affect infant neurodevelopment, including:

  • Evaluating development of motor skills, cognitive skills, language and behavior
  • Determining mortality and the prevalence of specific medical conditions
  • Assessing the relationship between growth and neurodevelopmental outcome
  • Assessing the relationship between the socioeconomic status and developmental outcome
  • Assessing the use of special support services and early intervention programs by this population
  • Evaluating the need for follow-up at school age.

The scheduled evaluations collect: demographic information; socioeconomic status; medical history; medications; medical equipment required; growth data; a detailed neurologic examination; Bayley Scales of Infant Development (mental, motor, infant behavior); Child Behavior Checklist.

A sub-study will assess a reference group comprised of a limited number of healthy term infants born in Network centers to meet the following three aims: 1) to avoid potential ascertainment biases due to examiner expectations when only extremely preterm or other high-risk infants are assessed 2) in the absence of well-developed norms for the Bayley Scales, to define thresholds for impairment based on data for a representative sample of healthy children born at term in our centers and concurrently assessed by the same examiners as for our high-risk infants; and 3) to help identify and address when "drift" occurs over time in conducting and scoring Bayley assessments.

02

Conditions studied

  • Infant, Newborn
  • Infant, Low Birth Weight
  • Infant, Small for Gestational Age
  • Infant, Premature

Browse trials for

Keywords

  • NICHD Neonatal Research Network
  • Extremely Low Birth Weight (ELBW)
  • Prematurity
  • Neurodevelopmental Outcome
  • Follow up studies
03

Who can participate

Ages eligible
18 Months to 26 Months
Sexes eligible
All
Accepts healthy volunteers
No
Sampling method
Probability sample

Study population

Infants born at 401-1000 grams birth weight and/or \<29 weeks gestational age

Eligibility criteria

  • Infants inborn at NRN centers
  • \<27 weeks gestational age
  • Infants enrolled in one or more additional NICHD NRN Follow-up studies. For infants that do not meet the inclusion criteria above, inclusion and exclusion criteria are determined by the criteria for the additional trial(s). In these cases, infants that are larger than 1,000 grams and/or older than 27 weeks may be included in the FU Study.

Note: These inclusion criteria were changed as of 1/1/2008. Prior to this date, infants with birth weights between 401 and 1500 grams who were admitted to NRN NICUs within 14 days of birth were included in the database.

04

Study design

Observational model
Cohort
Time perspective
Prospective
Enrollment
68,000 participants (estimated)
Patient registry
No

Groups and cohorts

  • Registry Cohort

    Registry Cohort

    Other: No Intervention

Interventions

  • OtherNo Intervention

    No Intervention

05

What researchers measure

Primary outcomes

  1. To maintain a registry of baseline and outcome data for VLBW infants with data collected in a uniform manner

    Time frame: Longitudinal database currently funded through 3/31/2016

Secondary outcomes

  1. To examine the relationship between baseline characteristics and outcome

    Time frame: Longitudinal database currently funded through 3/31/2016

  2. To provide data for hypothesis formulation and sample size calculation for Network multi-center studies

    Time frame: Longitudinal database currently funded through 3/31/2016

06

Study locations

16 of 31 sites recruiting
  • University of Alabama at Birmingham
    Birmingham, Alabama 35233, United States
    • Waldemar A. Carlo, MD · Contact
    • Waldemar A. Carlo, MD · Principal investigator
    • Myriam Peralta-Carcelen, MD MPH · Principal investigator
    Recruiting
  • University of California - Los Angeles
    Los Angeles, California 90025, United States
    • Uday Devaskar, MD · Contact
    • Uday Devaskar, MD · Principal investigator
    • Isabell Purdy, MD · Principal investigator
    Recruiting
  • Stanford University
    Palo Alto, California 94304, United States
    • Krisa P. Van Meurs, MD · Contact
    • Krisa P. Van Meurs, MD · Principal investigator
    • Susan R. Hintz, MD · Principal investigator
    Recruiting
  • University of California at San Diego
    San Diego, California 92103-8774, United States
    Completed
  • Sharp Mary Birch Hospital for Women & Newborns
    San Diego, California 92123, United States
    • Anup Katheria, MD · Contact
    • Anup Katheria, MD · Principal investigator
    Not yet recruiting
  • Yale University
    New Haven, Connecticut 06504, United States
    Completed
  • George Washington University
    Washington D.C., District of Columbia 20052, United States
    Completed
  • University of Miami
    Miami, Florida 33136, United States
    Completed
  • Emory University
    Atlanta, Georgia 30303, United States
    • David P. Carlton, MD · Contact
    • David P. Carlton, MD · Principal investigator
    • Ira Adams-Chapman, MD · Principal investigator
    Recruiting
  • Northwestern Lurie Children's Hospital of Chicago
    Chicago, Illinois 60611, United States
    • Aaron Hamvas, MD · Contact
    • Aaron Hamvas, MD · Principal investigator
    Not yet recruiting
  • Indiana University
    Indianapolis, Indiana 46202, United States
    • Greg Sokol, MD · Contact
    • Greg Sokol, MD · Principal investigator
    • Heidi Harmon, MD · Principal investigator
    Recruiting
  • University of Iowa
    Iowa City, Iowa 52242, United States
    • Edward F. Bell, MD · Contact
    • Edward F. Bell, MD · Principal investigator
    • Jane E. Brumbaugh, MD · Principal investigator
    Recruiting
  • Tufts Medical Center
    Boston, Massachusetts 02111, United States
    Completed
  • Harvard University
    Cambridge, Massachusetts 02138, United States
    Completed
  • Wayne State University
    Detroit, Michigan 48201, United States
    • Seetha Shankaran, MD · Contact
    • Seetha Shankaran, MD · Principal investigator
    Recruiting
  • University of Mississippi Medical Center - Children's of Mississippi
    Jackson, Mississippi 39216, United States
    • Abhay Bhatt, MD · Contact
    • Abhay Bhatt, MD · Principal investigator
    Not yet recruiting
  • Children's Mercy Hospital
    Kansas City, Missouri 64108, United States
    • William Truog, MD · Contact
    • William Truog, MD · Principal investigator
    • Howard Kilbride, MD · Principal investigator
    Recruiting
  • University of New Mexico
    Albuquerque, New Mexico 87131, United States
    • Kristi L. Watterberg, MD · Contact
    • Kristi L. Watterberg, MD · Principal investigator
    • Janell Fuller, MD · Principal investigator
    • Jean Lowe, MD · Principal investigator
    Recruiting
  • University of Rochester
    Rochester, New York 14642, United States
    Active, not recruiting
  • Wake Forest University
    Charlotte, North Carolina 27157, United States
    Completed
  • RTI International
    Durham, North Carolina 27705, United States
    Active, not recruiting
  • Duke University
    Durham, North Carolina 27710, United States
    • C. Michael Cotten, MD · Contact
    • C. Michael Cotten, MD · Principal investigator
    • William F. Malcolm, MD · Principal investigator
    Recruiting
  • Cincinnati Children's Medical Center
    Cincinnati, Ohio 45267, United States
    • Brenda Poindexter, MD,MS · Contact
    • Brenda Poindexter, MD · Principal investigator
    • Stephanie Merhar, MD · Principal investigator
    • Kimberly Yolton, PhD · Principal investigator
    Recruiting
  • Case Western Reserve University, Rainbow Babies and Children's Hospital
    Cleveland, Ohio 44106, United States
    • Michele C. Walsh, MD MS · Contact
    • Michele C. Walsh, MD MS · Principal investigator
    • Deanne E. Wilson, MD · Principal investigator
    Recruiting
  • Research Institute at Nationwide Children's Hospital
    Columbus, Ohio 43205, United States
    Active, not recruiting
  • University of Pennsylvania
    Philadelphia, Pennsylvania 19104, United States
    • Eric Eichenwald, MD · Contact
    • Eric Eichenwald, MD · Principal investigator
    • Sara DeMauro, MD · Principal investigator
    Recruiting
  • Brown University, Women & Infants Hospital of Rhode Island
    Providence, Rhode Island 02905, United States
    Active, not recruiting
  • University of Tennessee
    Memphis, Tennessee 38163, United States
    Completed
  • University of Texas Southwestern Medical Center at Dallas
    Dallas, Texas 75235, United States
    • Myra H Wyckoff, MD · Contact
    • Myra H. Wyckfoff, MD · Principal investigator
    • Roy J. Heyne, MD · Principal investigator
    Recruiting
  • University of Texas Health Science Center at Houston
    Houston, Texas 77030, United States
    • Jon Tyson, MD MPH · Contact
    • Jon E. Tyson, MD MPH · Principal investigator
    • Andrea F. Duncan, MD · Principal investigator
    Recruiting
  • University of Utah
    Salt Lake City, Utah 84108, United States
    • Bradley Yoder, MD · Contact
    • Bradley Yoder, MD · Principal investigator
    • Sara Winter, MD · Principal investigator
    Recruiting
07

References and documents

Publications

  • Adams-Chapman I, Hansen NI, Stoll BJ, Higgins R; NICHD Research Network. Neurodevelopmental outcome of extremely low birth weight infants with posthemorrhagic hydrocephalus requiring shunt insertion. Pediatrics. 2008 May;121(5):e1167-77. doi: 10.1542/peds.2007-0423. Epub 2008 Apr 7. PubMed 18390958 ↗
  • Ambalavanan N, Baibergenova A, Carlo WA, Saigal S, Schmidt B, Thorpe KE; Trial of Indomethacin Prophylaxis in Preterms (TIPP) Investigators. Early prediction of poor outcome in extremely low birth weight infants by classification tree analysis. J Pediatr. 2006 Apr;148(4):438-444. doi: 10.1016/j.jpeds.2005.11.042. PubMed 16647401 ↗
  • Ambalavanan N, Carlo WA, Shankaran S, Bann CM, Emrich SL, Higgins RD, Tyson JE, O'Shea TM, Laptook AR, Ehrenkranz RA, Donovan EF, Walsh MC, Goldberg RN, Das A; National Institute of Child Health and Human Development Neonatal Research Network. Predicting outcomes of neonates diagnosed with hypoxemic-ischemic encephalopathy. Pediatrics. 2006 Nov;118(5):2084-93. doi: 10.1542/peds.2006-1591. PubMed 17079582 ↗
  • Ambalavanan N, Tyson JE, Kennedy KA, Hansen NI, Vohr BR, Wright LL, Carlo WA; National Institute of Child Health and Human Development Neonatal Research Network. Vitamin A supplementation for extremely low birth weight infants: outcome at 18 to 22 months. Pediatrics. 2005 Mar;115(3):e249-54. doi: 10.1542/peds.2004-1812. Epub 2005 Feb 15. PubMed 15713907 ↗
  • Bassler D, Stoll BJ, Schmidt B, Asztalos EV, Roberts RS, Robertson CM, Sauve RS; Trial of Indomethacin Prophylaxis in Preterms Investigators. Using a count of neonatal morbidities to predict poor outcome in extremely low birth weight infants: added role of neonatal infection. Pediatrics. 2009 Jan;123(1):313-8. doi: 10.1542/peds.2008-0377. PubMed 19117897 ↗
  • Benjamin DK Jr, Stoll BJ, Fanaroff AA, McDonald SA, Oh W, Higgins RD, Duara S, Poole K, Laptook A, Goldberg R; National Institute of Child Health and Human Development Neonatal Research Network. Neonatal candidiasis among extremely low birth weight infants: risk factors, mortality rates, and neurodevelopmental outcomes at 18 to 22 months. Pediatrics. 2006 Jan;117(1):84-92. doi: 10.1542/peds.2004-2292. PubMed 16396864 ↗
  • Bhandari V, Finer NN, Ehrenkranz RA, Saha S, Das A, Walsh MC, Engle WA, VanMeurs KP; Eunice Kennedy Shriver National Institute of Child Health and Human Development Neonatal Research Network. Synchronized nasal intermittent positive-pressure ventilation and neonatal outcomes. Pediatrics. 2009 Aug;124(2):517-26. doi: 10.1542/peds.2008-1302. Epub 2009 Jul 27. PubMed 19651577 ↗
  • Blakely ML, Tyson JE, Lally KP, McDonald S, Stoll BJ, Stevenson DK, Poole WK, Jobe AH, Wright LL, Higgins RD; NICHD Neonatal Research Network. Laparotomy versus peritoneal drainage for necrotizing enterocolitis or isolated intestinal perforation in extremely low birth weight infants: outcomes through 18 months adjusted age. Pediatrics. 2006 Apr;117(4):e680-7. doi: 10.1542/peds.2005-1273. Epub 2006 Mar 20. PubMed 16549503 ↗
  • Broitman E, Ambalavanan N, Higgins RD, Vohr BR, Das A, Bhaskar B, Murray K, Hintz SR, Carlo WA; National Institute of Child Health and Human Development Neonatal Research Network. Clinical data predict neurodevelopmental outcome better than head ultrasound in extremely low birth weight infants. J Pediatr. 2007 Nov;151(5):500-5, 505.e1-2. doi: 10.1016/j.jpeds.2007.04.013. Epub 2007 Jul 12. PubMed 17961693 ↗
  • Castro L, Yolton K, Haberman B, Roberto N, Hansen NI, Ambalavanan N, Vohr BR, Donovan EF. Bias in reported neurodevelopmental outcomes among extremely low birth weight survivors. Pediatrics. 2004 Aug;114(2):404-10. doi: 10.1542/peds.114.2.404. PubMed 15286223 ↗
  • Chock VY, Van Meurs KP, Hintz SR, Ehrenkranz RA, Lemons JA, Kendrick DE, Stevenson DK; NICHD Neonatal Research Network. Inhaled nitric oxide for preterm premature rupture of membranes, oligohydramnios, and pulmonary hypoplasia. Am J Perinatol. 2009 Apr;26(4):317-22. doi: 10.1055/s-0028-1104743. Epub 2008 Dec 9. PubMed 19067285 ↗
  • Cole CR, Hansen NI, Higgins RD, Ziegler TR, Stoll BJ; Eunice Kennedy Shriver NICHD Neonatal Research Network. Very low birth weight preterm infants with surgical short bowel syndrome: incidence, morbidity and mortality, and growth outcomes at 18 to 22 months. Pediatrics. 2008 Sep;122(3):e573-82. doi: 10.1542/peds.2007-3449. PubMed 18762491 ↗
  • Da Costa D, Bann CM, Hansen NI, Shankaran S, Delaney-Black V; National Institute of Child Health and Human Development Neonatal Research Network. Validation of the Functional Status II questionnaire in the assessment of extremely-low-birthweight infants. Dev Med Child Neurol. 2009 Jul;51(7):536-44. doi: 10.1111/j.1469-8749.2009.03318.x. PubMed 19459909 ↗
  • Dusick AM, Poindexter BB, Ehrenkranz RA, Lemons JA. Growth failure in the preterm infant: can we catch up? Semin Perinatol. 2003 Aug;27(4):302-10. doi: 10.1016/s0146-0005(03)00044-2. PubMed 14510321 ↗
  • Ehrenkranz RA, Dusick AM, Vohr BR, Wright LL, Wrage LA, Poole WK. Growth in the neonatal intensive care unit influences neurodevelopmental and growth outcomes of extremely low birth weight infants. Pediatrics. 2006 Apr;117(4):1253-61. doi: 10.1542/peds.2005-1368. PubMed 16585322 ↗
  • Ehrenkranz RA, Walsh MC, Vohr BR, Jobe AH, Wright LL, Fanaroff AA, Wrage LA, Poole K; National Institutes of Child Health and Human Development Neonatal Research Network. Validation of the National Institutes of Health consensus definition of bronchopulmonary dysplasia. Pediatrics. 2005 Dec;116(6):1353-60. doi: 10.1542/peds.2005-0249. PubMed 16322158 ↗
  • Gargus RA, Vohr BR, Tyson JE, High P, Higgins RD, Wrage LA, Poole K. Unimpaired outcomes for extremely low birth weight infants at 18 to 22 months. Pediatrics. 2009 Jul;124(1):112-21. doi: 10.1542/peds.2008-2742. PubMed 19564290 ↗
  • Heller CD, O'Shea M, Yao Q, Langer J, Ehrenkranz RA, Phelps DL, Poole WK, Stoll B, Duara S, Oh W, Lemons J, Poindexter B; NICHD Neonatal Research Network. Human milk intake and retinopathy of prematurity in extremely low birth weight infants. Pediatrics. 2007 Jul;120(1):1-9. doi: 10.1542/peds.2006-1465. PubMed 17606555 ↗
  • Higgins RD, Shankaran S. Hypothermia for hypoxic ischemic encephalopathy in infants > or =36 weeks. Early Hum Dev. 2009 Oct;85(10 Suppl):S49-52. doi: 10.1016/j.earlhumdev.2009.08.015. Epub 2009 Sep 17. PubMed 19762176 ↗
  • Hintz SR, Kendrick DE, Vohr BR, Poole WK, Higgins RD; National Institute of Child Health and Human Development (NICHD) Neonatal Research Network. Community supports after surviving extremely low-birth-weight, extremely preterm birth: special outpatient services in early childhood. Arch Pediatr Adolesc Med. 2008 Aug;162(8):748-55. doi: 10.1001/archpedi.162.8.748. PubMed 18678807 ↗
  • Hintz SR, Kendrick DE, Stoll BJ, Vohr BR, Fanaroff AA, Donovan EF, Poole WK, Blakely ML, Wright L, Higgins R; NICHD Neonatal Research Network. Neurodevelopmental and growth outcomes of extremely low birth weight infants after necrotizing enterocolitis. Pediatrics. 2005 Mar;115(3):696-703. doi: 10.1542/peds.2004-0569. PubMed 15741374 ↗
  • Hintz SR, Kendrick DE, Vohr BR, Poole WK, Higgins RD; National Institute of Child Health and Human Development Neonatal Research Network. Changes in neurodevelopmental outcomes at 18 to 22 months' corrected age among infants of less than 25 weeks' gestational age born in 1993-1999. Pediatrics. 2005 Jun;115(6):1645-51. doi: 10.1542/peds.2004-2215. PubMed 15930228 ↗
  • Hintz SR, Kendrick DE, Vohr BR, Kenneth Poole W, Higgins RD; Nichd Neonatal Research Network. Gender differences in neurodevelopmental outcomes among extremely preterm, extremely-low-birthweight infants. Acta Paediatr. 2006 Oct;95(10):1239-48. doi: 10.1080/08035250600599727. PubMed 16982497 ↗
  • Hintz SR, Van Meurs KP, Perritt R, Poole WK, Das A, Stevenson DK, Ehrenkranz RA, Lemons JA, Vohr BR, Heyne R, Childers DO, Peralta-Carcelen M, Dusick A, Johnson YR, Morris B, Dillard R, Vaucher Y, Steichen J, Adams-Chapman I, Konduri G, Myers GJ, de Ungria M, Tyson JE, Higgins RD; NICHD Neonatal Research Network. Neurodevelopmental outcomes of premature infants with severe respiratory failure enrolled in a randomized controlled trial of inhaled nitric oxide. J Pediatr. 2007 Jul;151(1):16-22, 22.e1-3. doi: 10.1016/j.jpeds.2007.03.017. PubMed 17586184 ↗
  • Konduri GG, Vohr B, Robertson C, Sokol GM, Solimano A, Singer J, Ehrenkranz RA, Singhal N, Wright LL, Van Meurs K, Stork E, Kirpalani H, Peliowski A, Johnson Y; Neonatal Inhaled Nitric Oxide Study Group. Early inhaled nitric oxide therapy for term and near-term newborn infants with hypoxic respiratory failure: neurodevelopmental follow-up. J Pediatr. 2007 Mar;150(3):235-40, 240.e1. doi: 10.1016/j.jpeds.2006.11.065. PubMed 17307536 ↗
  • Lainwala S, Perritt R, Poole K, Vohr B; National Institute of Child Health and Human Development Neonatal Research Network. Neurodevelopmental and growth outcomes of extremely low birth weight infants who are transferred from neonatal intensive care units to level I or II nurseries. Pediatrics. 2007 May;119(5):e1079-87. doi: 10.1542/peds.2006-0899. Epub 2007 Apr 2. PubMed 17403821 ↗
  • Laptook AR, O'Shea TM, Shankaran S, Bhaskar B; NICHD Neonatal Network. Adverse neurodevelopmental outcomes among extremely low birth weight infants with a normal head ultrasound: prevalence and antecedents. Pediatrics. 2005 Mar;115(3):673-80. doi: 10.1542/peds.2004-0667. PubMed 15741371 ↗
  • Laptook A, Tyson J, Shankaran S, McDonald S, Ehrenkranz R, Fanaroff A, Donovan E, Goldberg R, O'Shea TM, Higgins RD, Poole WK; National Institute of Child Health and Human Development Neonatal Research Network. Elevated temperature after hypoxic-ischemic encephalopathy: risk factor for adverse outcomes. Pediatrics. 2008 Sep;122(3):491-9. doi: 10.1542/peds.2007-1673. PubMed 18762517 ↗
  • Lee BH, Stoll BJ, McDonald SA, Higgins RD; National Institute of Child Health and Human Development Neonatal Research Network. Neurodevelopmental outcomes of extremely low birth weight infants exposed prenatally to dexamethasone versus betamethasone. Pediatrics. 2008 Feb;121(2):289-96. doi: 10.1542/peds.2007-1103. PubMed 18245420 ↗
  • Lowe J, Woodward B, Papile LA. Emotional regulation and its impact on development in extremely low birth weight infants. J Dev Behav Pediatr. 2005 Jun;26(3):209-13. doi: 10.1097/00004703-200506000-00008. PubMed 15956871 ↗
  • Madan JC, Kendrick D, Hagadorn JI, Frantz ID 3rd; National Institute of Child Health and Human Development Neonatal Research Network. Patent ductus arteriosus therapy: impact on neonatal and 18-month outcome. Pediatrics. 2009 Feb;123(2):674-81. doi: 10.1542/peds.2007-2781. PubMed 19171637 ↗
  • Malcolm WF, Gantz M, Martin RJ, Goldstein RF, Goldberg RN, Cotten CM; National Institute of Child Health and Human Development Neonatal Research Network. Use of medications for gastroesophageal reflux at discharge among extremely low birth weight infants. Pediatrics. 2008 Jan;121(1):22-7. doi: 10.1542/peds.2007-0381. PubMed 18166553 ↗
  • Morris BH, Oh W, Tyson JE, Stevenson DK, Phelps DL, O'Shea TM, McDavid GE, Perritt RL, Van Meurs KP, Vohr BR, Grisby C, Yao Q, Pedroza C, Das A, Poole WK, Carlo WA, Duara S, Laptook AR, Salhab WA, Shankaran S, Poindexter BB, Fanaroff AA, Walsh MC, Rasmussen MR, Stoll BJ, Cotten CM, Donovan EF, Ehrenkranz RA, Guillet R, Higgins RD; NICHD Neonatal Research Network. Aggressive vs. conservative phototherapy for infants with extremely low birth weight. N Engl J Med. 2008 Oct 30;359(18):1885-96. doi: 10.1056/NEJMoa0803024. PubMed 18971491 ↗
  • Morris BH, Gard CC, Kennedy K; NICHD Neonatal Research Network. Rehospitalization of extremely low birth weight (ELBW) infants: are there racial/ethnic disparities? J Perinatol. 2005 Oct;25(10):656-63. doi: 10.1038/sj.jp.7211361. PubMed 16107873 ↗
  • Inhaled nitric oxide in term and near-term infants: neurodevelopmental follow-up of the neonatal inhaled nitric oxide study group (NINOS). J Pediatr. 2000 May;136(5):611-7. doi: 10.1067/mpd.2000.104826. PubMed 10802492 ↗
  • Oh W, Perritt R, Shankaran S, Merritts M, Donovan EF, Ehrenkranz RA, O'Shea TM, Tyson JE, Laptook AR, Das A, Higgins RD. Association between urinary lactate to creatinine ratio and neurodevelopmental outcome in term infants with hypoxic-ischemic encephalopathy. J Pediatr. 2008 Sep;153(3):375-8. doi: 10.1016/j.jpeds.2008.03.041. Epub 2008 May 9. PubMed 18534246 ↗
  • Oh W, Stevenson DK, Tyson JE, Morris BH, Ahlfors CE, Bender GJ, Wong RJ, Perritt R, Vohr BR, Van Meurs KP, Vreman HJ, Das A, Phelps DL, O'Shea TM, Higgins RD; NICHD Neonatal Research Network Bethesda MD. Influence of clinical status on the association between plasma total and unbound bilirubin and death or adverse neurodevelopmental outcomes in extremely low birth weight infants. Acta Paediatr. 2010 May;99(5):673-678. doi: 10.1111/j.1651-2227.2010.01688.x. Epub 2010 Jan 25. PubMed 20105142 ↗
  • Oh W, Tyson JE, Fanaroff AA, Vohr BR, Perritt R, Stoll BJ, Ehrenkranz RA, Carlo WA, Shankaran S, Poole K, Wright LL; National Institute of Child Health and Human Development Neonatal Research Network. Association between peak serum bilirubin and neurodevelopmental outcomes in extremely low birth weight infants. Pediatrics. 2003 Oct;112(4):773-9. doi: 10.1542/peds.112.4.773. PubMed 14523165 ↗
  • Ohls RK, Ehrenkranz RA, Das A, Dusick AM, Yolton K, Romano E, Delaney-Black V, Papile LA, Simon NP, Steichen JJ, Lee KG; National Institute of Child Health and Human Development Neonatal Research Network. Neurodevelopmental outcome and growth at 18 to 22 months' corrected age in extremely low birth weight infants treated with early erythropoietin and iron. Pediatrics. 2004 Nov;114(5):1287-91. doi: 10.1542/peds.2003-1129-L. PubMed 15520109 ↗
  • Peralta-Carcelen M, Moses M, Adams-Chapman I, Gantz M, Vohr BR; NICHD Neonatal Research Network; National Institutes of Health. Stability of neuromotor outcomes at 18 and 30 months of age after extremely low birth weight status. Pediatrics. 2009 May;123(5):e887-95. doi: 10.1542/peds.2008-0135. PubMed 19403482 ↗
  • Poindexter BB, Langer JC, Dusick AM, Ehrenkranz RA; National Institute of Child Health and Human Development Neonatal Research Network. Early provision of parenteral amino acids in extremely low birth weight infants: relation to growth and neurodevelopmental outcome. J Pediatr. 2006 Mar;148(3):300-305. doi: 10.1016/j.jpeds.2005.10.038. PubMed 16615955 ↗
  • Schmidt B, Davis P, Moddemann D, Ohlsson A, Roberts RS, Saigal S, Solimano A, Vincer M, Wright LL; Trial of Indomethacin Prophylaxis in Preterms Investigators. Long-term effects of indomethacin prophylaxis in extremely-low-birth-weight infants. N Engl J Med. 2001 Jun 28;344(26):1966-72. doi: 10.1056/NEJM200106283442602. PubMed 11430325 ↗
  • Schmidt B, Roberts RS, Fanaroff A, Davis P, Kirpalani HM, Nwaesei C, Vincer M; TIPP Investigators. Indomethacin prophylaxis, patent ductus arteriosus, and the risk of bronchopulmonary dysplasia: further analyses from the Trial of Indomethacin Prophylaxis in Preterms (TIPP). J Pediatr. 2006 Jun;148(6):730-734. doi: 10.1016/j.jpeds.2006.01.047. PubMed 16769377 ↗
  • Shankaran S. Neonatal encephalopathy: treatment with hypothermia. J Neurotrauma. 2009 Mar;26(3):437-43. doi: 10.1089/neu.2008.0678. PubMed 19281415 ↗
  • Shankaran S, Johnson Y, Langer JC, Vohr BR, Fanaroff AA, Wright LL, Poole WK. Outcome of extremely-low-birth-weight infants at highest risk: gestational age < or =24 weeks, birth weight < or =750 g, and 1-minute Apgar < or =3. Am J Obstet Gynecol. 2004 Oct;191(4):1084-91. doi: 10.1016/j.ajog.2004.05.032. PubMed 15507925 ↗
  • Shankaran S, Laptook AR, Ehrenkranz RA, Tyson JE, McDonald SA, Donovan EF, Fanaroff AA, Poole WK, Wright LL, Higgins RD, Finer NN, Carlo WA, Duara S, Oh W, Cotten CM, Stevenson DK, Stoll BJ, Lemons JA, Guillet R, Jobe AH; National Institute of Child Health and Human Development Neonatal Research Network. Whole-body hypothermia for neonates with hypoxic-ischemic encephalopathy. N Engl J Med. 2005 Oct 13;353(15):1574-84. doi: 10.1056/NEJMcps050929. PubMed 16221780 ↗
  • Shankaran S, Papile LA, Wright LL, Ehrenkranz RA, Mele L, Lemons JA, Korones SB, Stevenson DK, Donovan EF, Stoll BJ, Fanaroff AA, Oh W. The effect of antenatal phenobarbital therapy on neonatal intracranial hemorrhage in preterm infants. N Engl J Med. 1997 Aug 14;337(7):466-71. doi: 10.1056/NEJM199708143370705. PubMed 9250849 ↗
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08

Registry details

Key details

Study ID
NCT00009633
Lead sponsor
NICHD Neonatal Research Network
Collaborators
National Center for Research Resources (NCRR), Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
Responsible party
Sponsor
First posted
Feb 5, 2001
Start date
Apr 1, 1993
Primary completion
Mar 31, 2030 (estimated)
Completion
Mar 31, 2030 (estimated)
Last update
Jul 1, 2026

Study contacts

Susan R Hintz, MD, MS Epi
Contact
srhintz@stanford.edu
Abhik Das, PhD
Contact
adas@rti.org
301 230 4640
Abbot R. Laptook, MD
principal investigator · Brown University, Women & Infants Hospital of Rhode Island
Michele C. Walsh, MD MS
principal investigator · Case Western Reserve University, Rainbow Babies and Children's Hospital
C. Michael Cotten, MD, MHS
principal investigator · Duke University
David P. Carlton, MD
principal investigator · Emory University
Greg M. Sokol, MD
principal investigator · Indiana University
Abhik Das, PhD
principal investigator · RTI International
Krisa P. Van Meurs, MD
principal investigator · Stanford University
Brenda B. Poindexter, MD
principal investigator · Children's Hospital Medical Center, Cincinnati
Waldemar A. Carlo, MD
principal investigator · University of Alabama at Birmingham
Edward F. Bell, MD
principal investigator · University of Iowa
Kristi L. Watterberg, MD
principal investigator · University of New Mexico
Myra H. Wyckoff, MD
principal investigator · University of Texas, Southwestern Medical Center at Dallas
Jon E Tyson, MD, MPH
principal investigator · The University of Texas Health Science Center, Houston
Bradley A. Yoder, MD
principal investigator · University of Utah
Seetha Shankaran, MD
principal investigator · Wayne State University
William E. Truog, MD
principal investigator · Children's Mercy Hospital Kansas City
Pablo J. Sanchez, MD
principal investigator · Research Institute at Nationwide Children's Hospital
Uday Devaskar, MD
principal investigator · University of California, Los Angeles
Carl T D'Angio, MD
principal investigator · University of Rochester
Eric C Eichenwald, MD
principal investigator · University of Pennsylvania

Oversight

Data monitoring committee
No
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