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Myotonic Dystrophy clinical trials

The registry lists 126 studies for Myotonic Dystrophy across more than 10 countries. 50 are recruiting or about to start. 103 of them are mainly about Myotonic Dystrophy (how this is decided). Per ClinicalTrials.gov, last updated 2026-11-10.

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Status

Completed
55
Recruiting
35
Enrolling by invitation
10
Status unknown
9
Active, not recruiting
8
Not yet recruiting
4

Phase

Phase 2
20
Phase 3
17
Phase 1
13

Where

United States
43
France
30
Canada
28
United Kingdom
22
Germany
20
Italy
19

Who runs them

University of Rochester (8) · Lupin Ltd. (6) · Virginia Commonwealth University (6) · Massachusetts General Hospital (5) · Avidity Biosciences, Inc. (5) · Institut de Myologie, France (5) · LMU Klinikum (5) · AMO Pharma Limited (4)

What is being tested here

Drugs under test in Myotonic Dystrophy studies, those with the most open studies first. Medicines only given beside them are not counted. How drugs are counted

DrugOpenPhase 3All
Tideglusib123
Amlodipine101
Delpacibart zotadirsen111
AOC 1001013
Mexiletine023
Pitolisant001
Mecasermin rinfabate001
Ranolazine001
Lamotrigine011

Coming up

9phase 3 studies under way
20studies finish main data collection within a year3 of them phase 3

Studies recruiting or running, from their records. “Main data collection” ends at the primary completion date, the sponsor’s own estimate, which often moves.

The 10 nearest, phase 3 first

Who these studies take

Of the 35 Myotonic Dystrophy studies recruiting now, 15 (43%) set no upper age limit and 18 (51%) stop at 75 or younger. 22 (63%) take children under 18. 2 (6%) are for women only and 2 (6%) for men only; 8 (23%) take healthy volunteers.

Recruiting studies that take each age, of 35
AgeWomenMen
1014 (40%)16 (46%)
1830 (86%)29 (83%)
3030 (86%)28 (80%)
4029 (83%)27 (77%)
5028 (80%)26 (74%)
6525 (71%)23 (66%)
7517 (49%)15 (43%)
8516 (46%)14 (40%)

Across all 126 studies, recruiting or not: 50% stop at 75 or younger and 40% at 65; 34% take children; 3% are for women only and 2% for men only; 26% take healthy volunteers. From each study’s registry entry; the criteria on its page decide.

How long Myotonic Dystrophy studies take

Of 36 observational studies under Myotonic Dystrophy, half reached primary completion within 60 months of starting, counting those still running.

Start to primary completionEvery sponsorIndustryNon-industry
Interventional, no phase23 mo12–57 · 25 studies——
Observational60 mo35–… · 36 studies——

Each figure is the month by which half the studies had reached primary completion, with the range in which the middle half did. Studies still running count until their last registry update; studies that stopped early are left out. Phase 1 includes early phase 1; observational means prospective or not stated, as retrospective and cross-sectional studies date a window of data rather than a study. How these figures are worked out

What changed recently

From the registry's own updates since Oct 13, 2026.

Newly registered2

Studies

Recruiting first, then most recently updated. Showing 50 of 126. Browse all 126 → or search them.