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Myotonia clinical trials

The registry lists 17 studies for Myotonia across more than 10 countries. 7 are recruiting or about to start. 5 of them are mainly about Myotonia (how this is decided). Per ClinicalTrials.gov, last updated 2026-11-09.

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Status

Completed
6
Recruiting
4
Enrolling by invitation
3
Status unknown
2
Active, not recruiting
1
Terminated
1

Phase

Phase 3
6
Phase 2
3
Phase 1
1

Where

United States
10
United Kingdom
8
Canada
6
France
6
Germany
6
Italy
5

Who runs them

Virginia Commonwealth University (2) · Vertex Pharmaceuticals Incorporated (2) · Avidity Biosciences, Inc. (2) · Richard Barohn, MD (2) · Grete Andersen, MD (1) · Centre Hospitalier Universitaire de Nice (1) · Lupin Ltd. (1) · Charite University, Berlin, Germany (1)

What is being tested here

Drugs under test in Myotonia studies, those with the most open studies first. Medicines only given beside them are not counted. How drugs are counted

DrugOpenPhase 3All
AOC 1001011
Lamotrigine011
Mexiletine001

Coming up

3phase 3 studies under way
2studies finish main data collection within a year1 of them phase 3

Studies recruiting or running, from their records. “Main data collection” ends at the primary completion date, the sponsor’s own estimate, which often moves.

All 2, phase 3 first

Who these studies take

Of the 4 Myotonia studies recruiting now, 2 (50%) set no upper age limit and 2 (50%) stop at 75 or younger. 3 (75%) take children under 18. 0 (0%) are for women only and 0 (0%) for men only; 0 (0%) take healthy volunteers.

Recruiting studies that take each age, of 4
AgeWomenMen
101 (25%)1 (25%)
183 (75%)3 (75%)
303 (75%)3 (75%)
403 (75%)3 (75%)
503 (75%)3 (75%)
653 (75%)3 (75%)
752 (50%)2 (50%)
852 (50%)2 (50%)

Across all 17 studies, recruiting or not: 35% stop at 75 or younger and 24% at 65; 47% take children; 0% are for women only and 0% for men only; 6% take healthy volunteers. From each study’s registry entry; the criteria on its page decide.

What changed recently

From the registry's own updates since Oct 13, 2026.

Newly registered1

Studies

Recruiting first, then most recently updated. Showing 17 of 17. search them.