An observational study in Perinatal Stroke, Epilepsy and Post-Stroke Epilepsy, sponsored by University Hospital, Strasbourg, France. Recruiting at 1 site in France. Open to participants aged 5 Years to 25 Years. Per ClinicalTrials.gov, last updated 2026-10-27.
Sponsored by University Hospital, Strasbourg, France · Observational
Perinatal stroke is a rare condition affecting approximately 20-40 births per 100,000. It may be ischemic or hemorrhagic and can occur before or around birth, with diagnosis sometimes delayed until motor or cognitive symptoms emerge. Potential long-term consequences include motor deficits, cognitive and learning difficulties, language disorders, and epilepsy.
Post-stroke epilepsy is estimated to affect approximately 30% of children who experience perinatal stroke. Although neonatal outcomes are relatively well characterized, the long-term course of epilepsy in this population and the relationship between initial stroke characteristics and subsequent epilepsy outcomes remain insufficiently studied.
The primary objective of this retrospective, multicenter, observational study is to characterize the long-term course of epilepsy in children who experienced an ischemic or hemorrhagic stroke before 28 days of age.
1,843 studies on the registry are indexed under Epilepsy; 423 are open to participants now.
This study's planned enrollment of 120 is above the median of 101 across 536 observational studies indexed under Epilepsy.
Browse Epilepsy studies →University Hospital, Strasbourg, France is the lead sponsor of 997 studies on the registry; 356 are open to participants now.
Counted across the registry records on this site, refreshed daily.
Patients aged 5 to 25 years who attended Strasbourg University Hospitals or Necker Hospital (AP-HP), experienced a confirmed or suspected ischemic or hemorrhagic stroke before 28 days of age, and subsequently developed one of the specified epilepsy syndromes. Patients must meet the inclusion criteria, have sufficient medical record information, and not object to the reuse of their data for research.
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Exclusion Criteria:
Drug-Resistant Epilepsy at 6 Years of Age
Presence of drug-resistant epilepsy at six years of age, defined in the study protocol as requiring more than two treatments.
Time frame: At 6 years of age.
Adapted Schooling at 6 Years of Age
Attendance in a specialized educational setting (ULIS or IME) or absence of schooling at six years of age.
Time frame: At 6 years of age.
From the registry record's own update history. This site started tracking changes on Sep 25, 2026; for anything earlier, see the record history on ClinicalTrials.gov ↗
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University Hospital, Strasbourg, France →