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RecruitingNCT07800234NEHRUpdated Sep 2, 2026

Establishing a National Egyptian HLH Registry (NEHR)

An observational study in HLH and Hemophagocytic Lymphohistiocytoses, sponsored by Ain Shams University. Recruiting at 2 sites in Egypt. Open to participants aged Up to 18 Years. Per ClinicalTrials.gov, last updated 2026-09-02.

Sponsored by Ain Shams University · Observational

From the registry’s dates

  • Started Mar 2024; still recruiting 2 years 8 months later.

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Study type
Observational
Model
Cohort
Time perspective
Other
Enrollment
100
Ages
Up to 18 Years
Sex
All
01

Study summary

Establishing a National Egyptian HLH Registry (NEHR)

02

Conditions studied

  • HLH
  • Hemophagocytic Lymphohistiocytoses
03

In context

Lymphohistiocytosis, Hemophagocytic

111 studies on the registry are indexed under Lymphohistiocytosis, Hemophagocytic; 41 are open to participants now.

This study's planned enrollment of 100 is below the median of 114 across 34 observational studies indexed under Lymphohistiocytosis, Hemophagocytic.

Browse Lymphohistiocytosis, Hemophagocytic studies →

Lead sponsor

Ain Shams University is the lead sponsor of 1,954 studies on the registry; 430 are open to participants now.

Of its 35 completed or terminated interventional studies of FDA-regulated products, 0 (0%) have results posted.

Browse Ain Shams University studies →

Counted across the registry records on this site, refreshed daily.

04

Who can participate

Ages eligible
Up to 18 Years
Sexes eligible
All
Accepts healthy volunteers
No
Sampling method
Non-probability sample

Study population

Patients diagnosed with hlh

Go through the criteria one by one — yes, no or not sure — and take the list to your doctor or the study team. Kept in this browser only.

Inclusion criteria

  • patients diagnosed with hlh

Exclusion criteria

Exclusion Criteria:

  • adults
05

Study design

Observational model
Cohort
Time perspective
Other
Enrollment
100 participants (estimated)
Patient registry
No

Groups and cohorts

  • Hemophagocytic lymphohistiocytosis (HLH)

    Children diagnosed with Hemophagocytic lymphohistiocytosis (HLH)

06

What researchers measure

Primary outcomes

  1. A nationwide HLH map

    Establish a nationwide map for children with presumed diagnosis of HLH

    Time frame: 2 years

07

Study locations

1 of 2 sites recruiting
  • Faculty of Medicine Pediatric Hematology Oncology Department
    Cairo, 11566, Egypt
    Recruiting
    • Iman Ragab Professor of Pediatrics, MD · Contacthragab68@hotmail.com · +201095569596
    • Fatma Soliman Elsayed Ebeid Professor of Pediatrics, MD · Contactfatmaebeid@med.asu.edu.eg · +201095569596
    • Fatma SE Ebeid, MD · Sub investigator
    • Iman Ragab, MD · Principal investigator
  • Faculty of medicine ain shams university
    Cairo, Egypt
    Active, not recruiting

    Not enrolling at this site.

08

References and documents

Individual participant data

Plan to share: No

No publications or documents are linked to this record.

09

Timeline

Tracking since Sep 25, 2026
ElapsedEstimatedEstimated, not yet reached

Started Mar 2024 (actual). Primary completion is estimated for Jan 2028, 45 months after the start.

How these figures are worked out, and which studies are left out of them.

Registered
Aug 30, 2026
First posted
Sep 2, 2026
StartActual
Mar 2, 2024
Primary completionEst.
Jan 1, 2028
CompletionEst.
Dec 1, 2028
Last update
Sep 2, 2026
What these dates mean
Start.
When the first participant enrolled; while estimated, when the study expects to open to recruitment.
Primary completion.
When the last participant was examined or treated to collect data for the study's main question, its primary outcome. A study that stopped early gives the date its data collection stopped.
Completion.
When the last participant's last visit took place, for every outcome, secondary ones and side effects included: the end of the study. Often later than primary completion, sometimes the same day.
Actual and Est.
Actual means the registry says the date has happened. Est. (estimated) is a date the sponsor plans or expects. It can still move, and the sponsor is expected to change it to actual once it has passed.
No changes since tracking began. The registry record was last updated on Sep 2, 2026, before this site started recording changes on Sep 25, 2026. Its history is on ClinicalTrials.gov ↗
10

Registry details

Key details

Study ID
NCT07800234
Lead sponsor
Ain Shams University
Responsible party
Iman Ragab (Professor, Ain Shams University) — Principal investigator
First posted
Sep 2, 2026
Start date
Mar 2, 2024
Primary completion
Jan 1, 2028 (estimated)
Completion
Dec 1, 2028 (estimated)
Last update
Sep 2, 2026

Study contacts

Iman Ragab Prof of Pediatrics, Ain Shams University, Professor
Contact
hragab68@hotmail.com
+20 1002550680
Fatma Ebeid Professor of pediatrics, Ain Shams University, Professor
Contact
+201095569596

Oversight

FDA-regulated drug
No
FDA-regulated device
No
View the source record on ClinicalTrials.gov ↗

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