An observational study in Hepatitis, Delta, sponsored by King's College Hospital NHS Trust. Status unknown. Open to participants aged 18 Years and older, including healthy volunteers. Per ClinicalTrials.gov, last updated 2023-08-30.
Sponsored by King's College Hospital NHS Trust · Observational
A project to understand the determinants of health behaviour among those with chronic hepatitis D virus (HDV) infection, under the care of the viral hepatitis service at Kings College Hospital (KCH). This is to improve and implement pathways and patient information distribution to improve access to care in an ethnically diverse population living with HDV in the UK.
Kings college hospital NHS Foundation Trust is uniquely placed and serves a large diverse population from areas such as pan pacific Asia, Eastern Europe and regions in Africa, where English is not their first language. This diversity is also seen in other London Hospitals but less so in other parts of the UK.
To understand the knowledge patients have around their diagnosis of hepatitis D which is considered a rare disease but the most aggressive form of viral hepatitis. In order to improve the management of hepatitis D, this research aims to identify the current knowledge patients have about their diagnosis, the information provided to them in their preferred language, how they feel about their diagnosis and the stigma attached. This research has been conducted in patients with other forms of viral hepatitis but not in patients living with hepatitis D. There is a lack of research in this area. With this research we aim to improve treatment pathways, access to care and to information.
82 studies on the registry are indexed under Hepatitis D; 24 are open to participants now.
This study's planned enrollment of 113 is below the median of 313 across 40 observational studies indexed under Hepatitis D.
Browse Hepatitis D studies →King's College Hospital NHS Trust is the lead sponsor of 171 studies on the registry; 56 are open to participants now.
Counted across the registry records on this site, refreshed daily.
Patients with past or current hepatitis D virus infection
Go through the criteria one by one — yes, no or not sure — and take the list to your doctor or the study team. Kept in this browser only.
Exclusion Criteria:
Three validated questionnaires amended from hepatitis B to D (Chronic liver disease questionnaire, self-stigma scale and HBV virus knowledge scale) will be used.
The overall patient understanding of Hepatitis D Virus diagnosis
Use of modified CLDQ - HBV survey. Scale of 1-7 with lower scores indicating worse outcomes
Time frame: 6 months
Describe overall patient knowledge around HDV
Modified HBV knowledge scale survey. Yes or No as options
Time frame: 6 months
Describe stigma attached towards HDV
Use of modified Toronto HBV stigma questionnaire. Scale options are: never, rarely, sometimes, often, always
Time frame: 6 months
Understand satisfaction with communication regarding HDV care at KCH
Use of local viral hepatitis service questionnaire
Time frame: 6 months
No study locations are listed for this record.
Plan to share: No
No publications or documents are linked to this record.
This study is status unknown, as verified in Aug 2023. You cannot join it, but the record below documents what was studied.
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