CClinicalTrials.gg
TerminatedNCT05366010Updated Jul 31, 2025Results posted

Oscillation and Lung Expansion (OLE) Therapy for Treatment of Neuromuscular Disease (NMD) Patients

An interventional study of Oscillation and Lung Expansion (OLE) therapy in Neuromuscular Diseases, sponsored by Baxter Healthcare Corporation. Terminated at 1 site in United States. Open to participants aged 5 Years to 80 Years. Per ClinicalTrials.gov, last updated 2025-07-31.

Sponsored by Baxter Healthcare Corporation · Not applicable, Interventional, and Treatment

Why this study was terminated
Slow enrollment
Phase
Not applicable
Study type
Interventional
Enrollment
41
Allocation
Not applicable
Ages
5 Years to 80 Years
Sex
All
01

Study summary

The study will be a non-randomized open label pilot study comparing a retrospective control period to an active treatment period with oscillation and lung expansion (OLE) therapy.

Read the detailed description

The study is a decentralized trial. All data will be collected in the patients' homes. The primary objective of the study is to evaluate the impact of OLE to treat respiratory complications of neuromuscular disease patients. The frequency of pulmonary exacerbations and other clinical outcome measures will be assessed to determine the effect of consistent OLE therapy.

02

Conditions studied

  • Neuromuscular Diseases
03

Who can participate

Ages eligible
5 Years to 80 Years
Sexes eligible
All
Accepts healthy volunteers
No

Eligibility criteria

Patients who met all the following inclusion criteria are included in the study:

  • Documented diagnosis of neuromuscular disease (NMD) or neurological disorder.
  • Age 5 to 80 years.
  • History of one or more respiratory exacerbations in the past 6 months or two or more respiratory exacerbations in the past 12 months, which required unplanned or unscheduled medical intervention.
  • Ability to perform Oscillation and Lung Expansion (OLE) therapy as directed.
  • Signed informed consent (and assent if minor patient).

Patients who meet any of the following criteria will be excluded from the study:

  • Diagnosis with rapidly progressing NMD such as certain types of Motor Neuron Disease (MND).
  • Requirement for continuous mechanical ventilation.
  • Anticipated requirement for respiratory related hospitalization within the next six months.
  • History of pneumothorax within the past 6 months.
  • History of hemoptysis requiring embolization within past 12 months.
  • Pregnancy.
  • Home use of OLE therapy within the past 12 months.
  • Inability or unwillingness to perform OLE therapy or study procedures as required.
04

Study design

Phase
Not applicable
Primary purpose
Treatment
Allocation
Not applicable
Intervention model
Single group
Masking
None (open label)
Enrollment
41 participants (actual)

Study arms

  • Experimental
    Intervention

    Intervention time period, during which all subjects receive OLE therapy as their airway clearance intervention

    Device: Oscillation and Lung Expansion (OLE) therapy

Interventions

  • DeviceOscillation and Lung Expansion (OLE) therapy

    Respiratory airway clearance intervention including continuous high-frequency oscillation and continuous positive expiratory pressure

05

What researchers measure

Primary outcomes

  1. Frequency of Exacerbations of Pulmonary Disease Requiring Medical Intervention

    Exacerbation of pulmonary disease is a worsening of pulmonary condition or an event requiring one or more of the following: * Hospitalization * Emergency Department visit * Unscheduled antibiotics * Unscheduled outpatient visit

    Time frame: 6 months pre-treatment and 6 months post-treatment with the Volara System

Secondary outcomes

  1. Slow Vital Capacity

    Slow Vital Capacity is the maximum volume that the subject can exhale in a single breath, following full inspiration. The measure is taken using a slow consistent exhalation.

    Time frame: Baseline and monthly for 6 months

  2. Peak Cough Flow

    Peak Cough Flow is a pulmonary function measure that evaluates maximum peak flow generated during a cough maneuver. It will be measured with a hand-held spirometer.

    Time frame: Baseline and monthly for 6 months

  3. Resting Oxygen Saturation

    Oxygen Saturation will be measured while the subject is resting using a hand-held oximeter.

    Time frame: Baseline and monthly for 6 months

  4. Maximal Inspiratory Pressure

    Maximal Inspiratory Pressure is the maximum force (measured in centimeters of water \[cmH2O\]) that the subject can generate during an inspiratory effort.

    Time frame: Baseline and monthly for 6 months

  5. Number of Hospital Admissions

    Number of hospital admissions for respiratory complications.

    Time frame: 6 months pre-treatment with the Volara System and 6 months post-treatment with the Volara System

  6. Total Hospital Length of Stay

    Number of inpatient hospital days for respiratory complications

    Time frame: 6 months pre-treatment with the Volara System and 6 months post-treatment with the Volara System

  7. Number of Intensive Care Unit (ICU) Admissions

    Number of ICU admissions for respiratory complications.

    Time frame: 6 months pre-treatment with the Volara System and 6 months post-treatment with the Volara System

  8. Total Intensive Care Unit (ICU) Length of Stay

    Number of ICU hospital days for respiratory complications

    Time frame: 6 months pre-treatment with the Volara System and 6 months post-treatment with the Volara System

  9. Number of Outpatient Visits for Pulmonary Complications

    Number of unscheduled Physician's office visits, urgent care visits, and emergency department (ED) visits.

    Time frame: 6 months pre-treatment and 6 months post-treatment with the Volara System

  10. Total Number of Antibiotic Use Days During Episodes for Respiratory Infection

    The total number of antibiotic use days includes any of the following: intravenous (IV) antibiotic days, oral antibiotic days, and nebulized antibiotic days.

    Time frame: 6 months pre-treatment and 6 months post-treatment with the Volara System

  11. Adherence to Treatment Regimen: Average Daily Volara System Usage

    Adherence to the OLE treatment regimen was presented as Average Daily Volara System Usage. This was calculated by dividing the total minutes of device use by the total number of days the subject had the device.

    Time frame: Total number of days the subject had the device (approximately up to 6 months of OLE therapy)

  12. Impact of OLE Therapy on Patient Quality of Life Using the Respiratory Complaints Domain of the Severe Respiratory Insufficiency (SRI) Questionnaire

    Severe Respiratory Insufficiency (SRI) questionnaire administered at baseline, and at 1, 3 and 6 months. The total score can range from a minimum of 0 to a maximum of 100 with higher values indicating a better health-related quality of life according to content of the scale.

    Time frame: Baseline, and after 1 month, 3 months, and 6 months of therapy using the Volara System

  13. Satisfaction With Current Airway Clearance Therapy at Baseline

    Satisfaction is assessed through a questionnaire administered at baseline. Seven satisfaction questions are assessed using a Five-point Likert Scale. Total score is from 5 to 35, with 35 indicating the highest satisfaction.

    Time frame: Baseline

  14. Satisfaction With OLE Therapy After 1 Month of Using the Volara System

    Satisfaction is assessed through a questionnaire administered after 1 month of therapy using the Volara System. Eight satisfaction questions are assessed using a Five-point Likert Scale. Total score is from 5 to 40, with 40 indicating the highest satisfaction.

    Time frame: After 1 month of using the Volara System

  15. Satisfaction With OLE Therapy After 3 Months of Using the Volara System

    Satisfaction is assessed through a questionnaire administered after 3 months of therapy using the Volara System. Eight satisfaction questions are assessed using a Five-point Likert Scale. Total score is from 5 to 40, with 40 indicating the highest satisfaction.

    Time frame: After 3 months of using the Volara System

  16. Satisfaction With OLE Therapy After 6 Months of Using the Volara System

    Satisfaction is assessed through a questionnaire administered after 6 months of therapy using the Volara System. Eight satisfaction questions are assessed using a Five-point Likert Scale. Total score is from 5 to 40, with 40 indicating the highest satisfaction.

    Time frame: After 6 months of using the Volara System

06

Results

Posted Jul 31, 2025
Limitations and caveats
It may be that only the first pulmonary exacerbation in the 6 months before using Volara was recorded for patient enrollment. Early termination led to a small number of patients being analyzed. Some patients were unable to undergo all planned analyses, such as Pulmonary Function Tests. Selected patient population was broad in age and disease implying variability in disease trajectory and/or severity at enrollment.

Participant flow

Participant flow — Overall Study
MilestoneIntervention
Started39
Completed33
Not completed6
Withdrew: Withdrawal by subject1
Withdrew: Protocol violation1
Withdrew: Lost to follow-up2
Withdrew: Screen failure2

Outcome measures

PrimaryFrequency of Exacerbations of Pulmonary Disease Requiring Medical Intervention

Exacerbation of pulmonary disease is a worsening of pulmonary condition or an event requiring one or more of the following: * Hospitalization * Emergency Department visit * Unscheduled antibiotics * Unscheduled outpatient visit

Time frame:
6 months pre-treatment and 6 months post-treatment with the Volara System
Reported as:
Mean · Exacerbations
Frequency of Exacerbations of Pulmonary Disease Requiring Medical Intervention
ExacerbationsIntervention
6 months pre-treatment1.0 ± 0.81
Volara active treatment1.2 ± 1.39
SecondarySlow Vital Capacity

Slow Vital Capacity is the maximum volume that the subject can exhale in a single breath, following full inspiration. The measure is taken using a slow consistent exhalation.

Time frame:
Baseline and monthly for 6 months
Reported as:
Mean · Litres
Slow Vital Capacity
LitresIntervention
Baseline1.523 ± 0.7664
1 month1.609 ± 0.6891
2 months1.693 ± 0.6684
3 months1.741 ± 0.6763
4 months1.407 ± 0.6580
5 months1.498 ± 0.5858
6 months1.601 ± 0.4604
SecondaryPeak Cough Flow

Peak Cough Flow is a pulmonary function measure that evaluates maximum peak flow generated during a cough maneuver. It will be measured with a hand-held spirometer.

Time frame:
Baseline and monthly for 6 months
Reported as:
Mean · Litres per second
Peak Cough Flow
Litres per secondIntervention
Baseline2.121 ± 1.4399
1 month2.730 ± 1.3391
2 months2.595 ± 0.0778
3 months2.874 ± 0.6911
4 months3.297 ± 0.5543
5 months3.327 ± 0.9673
6 months2.153 ± 1.6887
SecondaryResting Oxygen Saturation

Oxygen Saturation will be measured while the subject is resting using a hand-held oximeter.

Time frame:
Baseline and monthly for 6 months
Reported as:
Mean · percentage oxygen saturation
Resting Oxygen Saturation
percentage oxygen saturationIntervention
Baseline95.68 ± 1.978
1 month96.78 ± 1.986
2 months96.57 ± 2.699
3 months96.73 ± 1.794
4 months96.11 ± 2.759
5 months97.00 ± 2.000
6 months95.64 ± 3.641
SecondaryMaximal Inspiratory Pressure

Maximal Inspiratory Pressure is the maximum force (measured in centimeters of water \[cmH2O\]) that the subject can generate during an inspiratory effort.

Time frame:
Baseline and monthly for 6 months
Reported as:
Mean · centimeters of water
Maximal Inspiratory Pressure
centimeters of waterIntervention
Baseline-40.7 ± 16.56
1 month-45.7 ± 16.18
2 months-46.3 ± 17.86
3 months-48.6 ± 16.81
4 months-42.3 ± 18.29
5 months-42.8 ± 21.91
6 months-50.8 ± 12.81
SecondaryNumber of Hospital Admissions

Number of hospital admissions for respiratory complications.

Time frame:
6 months pre-treatment with the Volara System and 6 months post-treatment with the Volara System
Reported as:
Mean · number of visits
Number of Hospital Admissions
number of visitsIntervention
6 months pre-treatment0.5 ± 0.67
Volara active treatment0.4 ± 0.75
SecondaryTotal Hospital Length of Stay

Number of inpatient hospital days for respiratory complications

Time frame:
6 months pre-treatment with the Volara System and 6 months post-treatment with the Volara System
Reported as:
Mean · days
Total Hospital Length of Stay
daysIntervention
6 months pre-treatment5.2 ± 7.90
Volara active treatment1.7 ± 3.19
SecondaryNumber of Intensive Care Unit (ICU) Admissions

Number of ICU admissions for respiratory complications.

Time frame:
6 months pre-treatment with the Volara System and 6 months post-treatment with the Volara System
Reported as:
Mean · Number of visits
Number of Intensive Care Unit (ICU) Admissions
Number of visitsIntervention
6 months pre-treatment0.2 ± 0.55
Volara active treatment0.2 ± 0.53
SecondaryTotal Intensive Care Unit (ICU) Length of Stay

Number of ICU hospital days for respiratory complications

Time frame:
6 months pre-treatment with the Volara System and 6 months post-treatment with the Volara System
Reported as:
Mean · days
Total Intensive Care Unit (ICU) Length of Stay
daysIntervention
6 months pre-treatment1.9 ± 5.42
Volara active treatment0.8 ± 2.41
SecondaryNumber of Outpatient Visits for Pulmonary Complications

Number of unscheduled Physician's office visits, urgent care visits, and emergency department (ED) visits.

Time frame:
6 months pre-treatment and 6 months post-treatment with the Volara System
Reported as:
Mean · Number of visits
Number of Outpatient Visits for Pulmonary Complications
Number of visitsIntervention
6 months pre-treatment0.7 ± 0.82
Volara active treatment0.9 ± 1.20
SecondaryTotal Number of Antibiotic Use Days During Episodes for Respiratory Infection

The total number of antibiotic use days includes any of the following: intravenous (IV) antibiotic days, oral antibiotic days, and nebulized antibiotic days.

Time frame:
6 months pre-treatment and 6 months post-treatment with the Volara System
Reported as:
Mean · Number of days
Total Number of Antibiotic Use Days During Episodes for Respiratory Infection
Number of daysIntervention
6 months pre-treatment6.6 ± 8.04
Volara active treatment4.5 ± 7.57
SecondaryAdherence to Treatment Regimen: Average Daily Volara System Usage

Adherence to the OLE treatment regimen was presented as Average Daily Volara System Usage. This was calculated by dividing the total minutes of device use by the total number of days the subject had the device.

Time frame:
Total number of days the subject had the device (approximately up to 6 months of OLE therapy)
Reported as:
Mean · minutes/day
Adherence to Treatment Regimen: Average Daily Volara System Usage
minutes/dayIntervention
Adherence to Treatment Regimen: Average Daily Volara System Usage15.1 ± 13.7
SecondaryImpact of OLE Therapy on Patient Quality of Life Using the Respiratory Complaints Domain of the Severe Respiratory Insufficiency (SRI) Questionnaire

Severe Respiratory Insufficiency (SRI) questionnaire administered at baseline, and at 1, 3 and 6 months. The total score can range from a minimum of 0 to a maximum of 100 with higher values indicating a better health-related quality of life according to content of the scale.

Time frame:
Baseline, and after 1 month, 3 months, and 6 months of therapy using the Volara System
Reported as:
Mean · Score on SRI scale
Impact of OLE Therapy on Patient Quality of Life Using the Respiratory Complaints Domain of the Severe Respiratory Insufficiency (SRI) Questionnaire
Score on SRI scaleIntervention
Baseline45.654 ± 22.6888
1 month57.000 ± 21.0432
3 months59.953 ± 22.4735
6 months63.390 ± 21.2530
SecondarySatisfaction With Current Airway Clearance Therapy at Baseline

Satisfaction is assessed through a questionnaire administered at baseline. Seven satisfaction questions are assessed using a Five-point Likert Scale. Total score is from 5 to 35, with 35 indicating the highest satisfaction.

Time frame:
Baseline
Reported as:
Count of participants · Participants
Satisfaction With Current Airway Clearance Therapy at Baseline
ParticipantsIntervention
Q1R1. It is so difficult to use the current airway clearance therapy that I do not want to use it0
Q1R2. It is very difficult to use the current airway clearance therapy0
Q1R3. It is moderately difficult to use the current airway clearance therapy7
Q1R4. It is fairly easy to use the current airway clearance therapy14
Q1R5. It is very easy to use the current airway clearance therapy5
Q1R0. No answer on ease/difficulty of using the current airway clearance therapy7
Q2R1. It is so difficult to tolerate the current airway clearance therapy that I don't want to do it0
Q2R2. It is very difficult to tolerate the current airway clearance therapy1
Q2R3. It is moderately difficult to tolerate the current airway clearance therapy6
Q2R4. It is fairly easy to tolerate the current airway clearance therapy12
Q2R5. It is very easy to tolerate the current airway clearance therapy6
Q2R0. No answer on ease/difficulty of tolerating the current airway clearance therapy8
Q3R1. I never miss therapy with the current airway clearance therapy12
Q3R2. I miss therapy once a week7
Q3R3. I miss therapy twice a week2
Q3R4. I miss therapy three times a week3
Q3R5. I miss therapy four or more times a week1
Q3R0. No response on frequency of missing therapy per week8
Q4R1. The current airway clearance is not effective as I never bring up sputum with therapy2
Q4R2. The current airway clearance therapy is effective sometimes11
Q4R3. The current airway clearance therapy is mostly effective6
Q4R4. The current airway clearance therapy is almost always effective5
Q4R5. I always bring up sputum with therapy2
Q4R0. No answer on effectiveness of current airway clearance therapy on bringing up sputum7
Q5R1. I always feel short of breath0
Q5R2. I frequently have shortness of breath episodes2
Q5R3. I have some shortness of breath episodes5
Q5R4. I have a few shortness of breath episodes15
Q5R5. I never have shortness of breath3
Q5R0. No answer on effect of current airway clearance therapy on breathing8
Q6R1. I do not feel the current airway clearance therapy helps my lungs stay healthy1
Q6R2. I am unsure if this therapy helps my lungs stay healthy0
Q6R3. This therapy seems somewhat helpful helpful for my lungs10
Q6R4. I feel this therapy helps my lungs stay healthy10
Q6R5. I definitely feel this therapy helps my lungs stay healthy4
Q6R0. No answer on whether patients feel the current therapy helps their lungs feel healthy8
Q7R1. My ability to perform daily tasks has definitely not improved1
Q7R2. My ability to perform daily tasks has not improved2
Q7R3. I am unsure if my ability to perform daily tasks has improved8
Q7R4. I have had some improvement in ability to perform daily tasks13
Q7R5. I have had significant improvement in ability to perform daily tasks1
Q7R0. No answer on effect of current therapy on ability to perform daily tasks8
SecondarySatisfaction With OLE Therapy After 1 Month of Using the Volara System

Satisfaction is assessed through a questionnaire administered after 1 month of therapy using the Volara System. Eight satisfaction questions are assessed using a Five-point Likert Scale. Total score is from 5 to 40, with 40 indicating the highest satisfaction.

Time frame:
After 1 month of using the Volara System
Reported as:
Count of participants · Participants
Satisfaction With OLE Therapy After 1 Month of Using the Volara System
ParticipantsIntervention
Q1R1. It is so difficult to use the Volara System that I do not want to use it0
Q1R2. It is very difficult to use the Volara System1
Q1R3. It is moderately difficult to use the Volara System0
Q1R4. It is fairly easy to use the Volara System15
Q1R5. It is very easy to use the Volara System15
Q1R0. No answer on ease/difficulty of using the Volara System2
Q2R1. It is so difficult to tolerate therapy with the Volara System that I don't want to do it0
Q2R2. It is very difficult to tolerate therapy with the Volara System2
Q2R3. It is moderately difficult to tolerate therapy with the Volara System3
Q2R4. It is fairly easy to tolerate therapy with the Volara System17
Q2R5. It is very easy to tolerate therapy with the Volara System9
Q2R0. No answer on ease/difficulty of tolerating therapy with the Volara System2
Q3R1. I never miss therapy17
Q3R2. I miss therapy once a week8
Q3R3. I miss therapy twice a week1
Q3R4. I miss therapy three times a week4
Q3R5. I miss therapy four or more times a week0
Q3R0. No response on frequency of missing therapy per week3
Q4R1. The therapy is not effective as I never bring up sputum with therapy3
Q4R2. The therapy is effective sometimes8
Q4R3. The therapy is mostly effective11
Q4R4. The therapy is almost always effective6
Q4R5. I always bring up sputum with therapy3
Q4R0. No answer on effectiveness of therapy in bringing up sputum2
Q5R1. I always feel short of breath0
Q5R2. I frequently have shortness of breath episodes0
Q5R3. I have some shortness of breath episodes7
Q5R4. I have a few shortness of breath episodes19
Q5R5. I never have shortness of breath5
Q5R0. No answer on effect of therapy on breathing2
Q6R1. I do not feel the therapy helps my lungs stay healthy0
Q6R2. I am unsure if this therapy helps my lungs stay healthy3
Q6R3. This therapy seems somewhat helpful helpful for my lungs7
Q6R4. I feel this therapy helps my lungs stay healthy15
Q6R5. I definitely feel this therapy helps my lungs stay healthy5
Q6R0. No answer on whether patients feel the therapy helps their lungs feel healthy3
Q7R1. My ability to perform daily tasks has definitely not improved0
Q7R2. My ability to perform daily tasks has not improved3
Q7R3. I am unsure if my ability to perform daily tasks has improved14
Q7R4. I have had some improvement in ability to perform daily tasks10
Q7R5. I have had significant improvement in ability to perform daily tasks2
Q7R0. No answer on effect of current therapy on ability to perform daily tasks4
Q8R1. I do not want to continue. I strongly prefer to use my previous therapy0
Q8R2. I prefer to use my previous therapy2
Q8R3. I do not have a preference on which therapy I use3
Q8R4. I prefer to continue to do therapy with the Volara System17
Q8R5. I strongly prefer to continue to do therapy with the Volara System9
Q8R0. No answer given on therapy preference2
SecondarySatisfaction With OLE Therapy After 3 Months of Using the Volara System

Satisfaction is assessed through a questionnaire administered after 3 months of therapy using the Volara System. Eight satisfaction questions are assessed using a Five-point Likert Scale. Total score is from 5 to 40, with 40 indicating the highest satisfaction.

Time frame:
After 3 months of using the Volara System
Reported as:
Count of participants · Participants
Satisfaction With OLE Therapy After 3 Months of Using the Volara System
ParticipantsIntervention
Q1R1. It is so difficult to use the Volara System that I do not want to use it0
Q1R2. It is very difficult to use the Volara System0
Q1R3. It is moderately difficult to use the Volara System1
Q1R4. It is fairly easy to use the Volara System15
Q1R5. It is very easy to use the Volara System13
Q1R0. No answer on ease/difficulty of using the Volara System4
Q2R1. It is so difficult to tolerate therapy with the Volara System that I don't want to do it0
Q2R2. It is very difficult to tolerate therapy with the Volara System0
Q2R3. It is moderately difficult to tolerate therapy with the Volara System4
Q2R4. It is fairly easy to tolerate therapy with the Volara System15
Q2R5. It is very easy to tolerate therapy with the Volara System10
Q2R0. No answer on ease/difficulty of tolerating therapy with the Volara System4
Q3R1. I never miss therapy14
Q3R2. I miss therapy once a week12
Q3R3. I miss therapy twice a week2
Q3R4. I miss therapy three times a week1
Q3R5. I miss therapy four or more times a week0
Q3R0. No response on frequency of missing therapy per week4
Q4R1. The therapy is not effective as I never bring up sputum with therapy2
Q4R2. The therapy is effective sometimes9
Q4R3. The therapy is mostly effective5
Q4R4. The therapy is almost always effective9
Q4R5. I always bring up sputum with therapy4
Q4R0. No answer on effectiveness of therapy in bringing up sputum4
Q5R1. I always feel short of breath0
Q5R2. I frequently have shortness of breath episodes1
Q5R3. I have some shortness of breath episodes3
Q5R4. I have a few shortness of breath episodes14
Q5R5. I never have shortness of breath10
Q5R0. No answer on effect of therapy on breathing5
Q6R1. I do not feel the therapy helps my lungs stay healthy1
Q6R2. I am unsure if this therapy helps my lungs stay healthy2
Q6R3. This therapy seems somewhat helpful helpful for my lungs7
Q6R4. I feel this therapy helps my lungs stay healthy12
Q6R5. I definitely feel this therapy helps my lungs stay healthy7
Q6R0. No answer on whether patients feel the therapy helps their lungs feel healthy4
Q7R1. My ability to perform daily tasks has definitely not improved0
Q7R2. My ability to perform daily tasks has not improved1
Q7R3. I am unsure if my ability to perform daily tasks has improved12
Q7R4. I have had some improvement in ability to perform daily tasks11
Q7R5. I have had significant improvement in ability to perform daily tasks1
Q7R0. No answer on effect of current therapy on ability to perform daily tasks8
Q8R1. I do not want to continue. I strongly prefer to use my previous therapy1
Q8R2. I prefer to use my previous therapy1
Q8R3. I do not have a preference on which therapy I use5
Q8R4. I prefer to continue to do therapy with the Volara System14
Q8R5. I strongly prefer to continue to do therapy with the Volara System8
Q8R0. No answer given on therapy preference4
SecondarySatisfaction With OLE Therapy After 6 Months of Using the Volara System

Satisfaction is assessed through a questionnaire administered after 6 months of therapy using the Volara System. Eight satisfaction questions are assessed using a Five-point Likert Scale. Total score is from 5 to 40, with 40 indicating the highest satisfaction.

Time frame:
After 6 months of using the Volara System
Reported as:
Count of participants · Participants
Satisfaction With OLE Therapy After 6 Months of Using the Volara System
ParticipantsIntervention
Q1R1. It is so difficult to use the Volara System that I do not want to use it0
Q1R2. It is very difficult to use the Volara System2
Q1R3. It is moderately difficult to use the Volara System1
Q1R4. It is fairly easy to use the Volara System13
Q1R5. It is very easy to use the Volara System11
Q1R0. No answer on ease/difficulty of using the Volara System6
Q2R1. It is so difficult to tolerate therapy with the Volara System that I don't want to do it1
Q2R2. It is very difficult to tolerate therapy with the Volara System2
Q2R3. It is moderately difficult to tolerate therapy with the Volara System3
Q2R4. It is fairly easy to tolerate therapy with the Volara System14
Q2R5. It is very easy to tolerate therapy with the Volara System7
Q2R0. No answer on ease/difficulty of tolerating therapy with the Volara System6
Q3R1. I never miss therapy13
Q3R2. I miss therapy once a week7
Q3R3. I miss therapy twice a week2
Q3R4. I miss therapy three times a week4
Q3R5. I miss therapy four or more times a week1
Q3R0. No response on frequency of missing therapy per week6
Q4R1. The therapy is not effective as I never bring up sputum with therapy2
Q4R2. The therapy is effective sometimes11
Q4R3. The therapy is mostly effective7
Q4R4. The therapy is almost always effective4
Q4R5. I always bring up sputum with therapy3
Q4R0. No answer on effectiveness of therapy in bringing up sputum6
Q5R1. I always feel short of breath0
Q5R2. I frequently have shortness of breath episodes2
Q5R3. I have some shortness of breath episodes3
Q5R4. I have a few shortness of breath episodes12
Q5R5. I never have shortness of breath8
Q5R0. No answer on effect of therapy on breathing8
Q6R1. I do not feel the therapy helps my lungs stay healthy1
Q6R2. I am unsure if this therapy helps my lungs stay healthy2
Q6R3. This therapy seems somewhat helpful helpful for my lungs3
Q6R4. I feel this therapy helps my lungs stay healthy13
Q6R5. I definitely feel this therapy helps my lungs stay healthy8
Q6R0. No answer on whether patients feel the therapy helps their lungs feel healthy6
Q7R1. My ability to perform daily tasks has definitely not improved2
Q7R2. My ability to perform daily tasks has not improved4
Q7R3. I am unsure if my ability to perform daily tasks has improved7
Q7R4. I have had some improvement in ability to perform daily tasks7
Q7R5. I have had significant improvement in ability to perform daily tasks5
Q7R0. No answer on effect of current therapy on ability to perform daily tasks8
Q8R1. I do not want to continue. I strongly prefer to use my previous therapy3
Q8R2. I prefer to use my previous therapy2
Q8R3. I do not have a preference on which therapy I use2
Q8R4. I prefer to continue to do therapy with the Volara System9
Q8R5. I strongly prefer to continue to do therapy with the Volara System8
Q8R0. No answer given on therapy preference9

Adverse events

Collected over Duration of participation for enrolled patients ranged from 16 days to 354 days.. Non-serious events are listed at a 0% frequency threshold.

Adverse event summary by group
GroupDeathsSeriousOther
Intervention2/41 (4.9%)0/33 (0%)2/33 (6.1%)
Most frequent other events
Most frequent other events
EventIntervention
SeizureNervous system disorders1/33
HyperventilationRespiratory, thoracic and mediastinal disorders1/33

Baseline characteristics

Age, Continuous
Age, Continuous(years)Intervention
Mean19.4 ± 15.94
Sex: Female, Male
Sex: Female, Male(Participants)Intervention
Female13
Male20
Ethnicity (NIH/OMB)
Ethnicity (NIH/OMB)(Participants)Intervention
Hispanic or Latino8
Not Hispanic or Latino24
Unknown or Not Reported1
Race (NIH/OMB)
Race (NIH/OMB)(Participants)Intervention
American Indian or Alaska Native0
Asian1
Native Hawaiian or Other Pacific Islander1
Black or African American5
White19
More than one race2
Unknown or Not Reported5
Region of Enrollment
Region of Enrollment(participants)Intervention
United States33
07

Study locations

1 site
  • Science 37
    Durham, North Carolina 27709, United States
08

References and documents

Study documents

  • Study protocol · May 11, 2022
  • Statistical analysis plan · May 28, 2024

Documents are hosted by the registry — open the source record to download them.

Individual participant data

Plan to share: No

09

Registry details

Key details

Study ID
NCT05366010
Lead sponsor
Baxter Healthcare Corporation
Collaborators
Science 37
Responsible party
Sponsor
First posted
May 9, 2022
Start date
Nov 4, 2021
Primary completion
Feb 27, 2024
Completion
Feb 27, 2024
Results posted
Jul 31, 2025
Last update
Jul 31, 2025

Oversight

Data monitoring committee
No
FDA-regulated drug
No
FDA-regulated device
Yes
View the source record on ClinicalTrials.gov ↗

Not currently enrolling

This study is terminated, as verified in Jul 2025. You cannot join it, but the record below documents what was studied.

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Discussion

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