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CompletedNCT04302753Updated May 6, 2021

Autistic Women's Experiences of Self Compassion and Receiving Their Diagnosis in Adulthood

An observational study in Autism, sponsored by University of Sheffield. Completed at 1 site in United Kingdom. Open to female participants aged 18 Years to 99 Years. Per ClinicalTrials.gov, last updated 2021-05-06.

Sponsored by University of Sheffield · Observational

Study type
Observational
Model
Case-only
Time perspective
Retrospective
Enrollment
12
Ages
18 Years to 99 Years
Sex
Female
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Study summary

Research highlights strong links between self-compassion and mental health, but there is very limited research specifically exploring autistic individual's experiences of self-compassion. The process of receiving a diagnosis on the autism spectrum can be complex and autistic women tend to experience several barriers to diagnosis. This study adds to the growing area of research exploring autistic women's experiences of receiving a diagnosis in adulthood. This study employs Interpretative phenomenological analysis to explore if receiving a diagnosis of Autism influences women's perceptions of self-compassion. The findings may inform client-centred practices in health care settings and potentially present positive aspects of autism diagnosis.

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Conditions studied

  • Autism

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Keywords

  • Autism
  • Self compassion
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In context

Autistic Disorder

1,344 studies on the registry are indexed under Autistic Disorder; 334 are open to participants now.

This study's enrollment of 12 is below the median of 102 across 267 observational studies indexed under Autistic Disorder.

Browse Autistic Disorder studies →

Lead sponsor

University of Sheffield is the lead sponsor of 74 studies on the registry; 16 are open to participants now.

Counted across the registry records on this site, refreshed daily.

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Who can participate

Ages eligible
18 Years to 99 Years
Sexes eligible
Female
Sampling method
Non-probability sample

Study population

Women who have received their diagnosis on the autism spectrum over the age of 18 years old.

Inclusion criteria

  • Able to consent to participate
  • Cisgender female (female at birth and raised as female).
  • Speak English fluently
  • Received an Autism Spectrum Disorder diagnosis, aged 18 years old or above

Exclusion criteria

Exclusion Criteria:

  • Lack capacity to consent to participate in the study
  • Unable to speak English fluently
  • Have not received an Autism diagnosis
  • Have received Autism diagnosis prior to their 18th birthday
  • Have an intellectual disability
  • Born male
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Study design

Observational model
Case-only
Time perspective
Retrospective
Enrollment
12 participants (actual)
Patient registry
No
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What researchers measure

Primary outcomes

  1. Experience of receiving ASD diagnosis in adulthood based on semi structured interviews

    Participants' experience of receiving ASD diagnosis in adulthood based on semi structured interviews, completed in one interview.

    Time frame: day one

Secondary outcomes

  1. Experience of self-compassion before and after receiving ASD diagnosis based on semi structured interviews

    Participants' experiences of self-compassion before and after receiving ASD diagnosis based on semi structured interviews, completed in one interview.

    Time frame: day one

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Study locations

1 site
  • DClin Univeristy of Sheffield
    Sheffield, Yorkshire And Humber S1 2LT, United Kingdom
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References and documents

Individual participant data

Plan to share: No — All electronic data including transcripts and audio recordings will be stored in the university data repository, until publication and dissemination of the study is completed. The paper copies of anonymized interview transcripts will be stored in a locked cabinet in the research administration office at the university of Sheffield, for a maximum of six years and then destroyed confidentially.

No publications or documents are linked to this record.

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Updates

Tracking since Sep 25, 2026
No changes since tracking began. The registry record was last updated on May 6, 2021, before this site started recording changes on Sep 25, 2026. Its history is on ClinicalTrials.gov ↗
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Registry details

Key details

Study ID
NCT04302753
Lead sponsor
University of Sheffield
Responsible party
Sponsor
First posted
Mar 10, 2020
Start date
Aug 12, 2019
Primary completion
Dec 1, 2020
Completion
Mar 29, 2021
Last update
May 6, 2021

Oversight

Data monitoring committee
No
FDA-regulated drug
No
FDA-regulated device
No
View the source record on ClinicalTrials.gov ↗

Not currently enrolling

This study is completed, as verified in Mar 2020. You cannot join it, but the record below documents what was studied.

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