An observational study in Adult-Onset Still Disease and Critically Ill, sponsored by Central Hospital, Nancy, France. Completed at 1 site in France. Open to participants aged 18 Years and older. Per ClinicalTrials.gov, last updated 2018-09-20.
Sponsored by Central Hospital, Nancy, France · Observational
Since its first description in 1971, diagnosing adult-onset Still's disease (AOSD), a rare multisystemic disorder considered as a multigenic autoinflammatory syndrome, remains challenging. Rarely, AOSD may present severe systemic manifestations and require intensive care. The main purpose of the Stil ICU study is to make the first description of the epidemiology of critically ill AOSD patients. The investigators will use a retrospective cohort study design with dual recruitment strategies: (1) via the AOSD referral centres network and (2) via a French academic medical ICU network.
23 studies on the registry are indexed under Still's Disease, Adult-Onset; 5 are open to participants now.
This study's enrollment of 45 is below the median of 155 across 10 observational studies indexed under Still's Disease, Adult-Onset.
Browse Still's Disease, Adult-Onset studies →Central Hospital, Nancy, France is the lead sponsor of 798 studies on the registry; 186 are open to participants now.
Counted across the registry records on this site, refreshed daily.
Adult AOSD patients admitted to ICU
Go through the criteria one by one — yes, no or not sure — and take the list to your doctor or the study team. Kept in this browser only.
Exclusion Criteria:
no intervention Data collection from hospitalisation reports (administrative, biological, clinical, outcome)
Other: data collection
biological, administrative, clinical, outcome date
number of patients
Number of patients fulfilling the inclusion criteria
Time frame: At inclusion
APACHE II
Acute Physiologic Assessment and Chronic Health Evaluation II
Time frame: 24hour after ICU admission
Mortality
Kaplan Meier
Time frame: through study completion, maximum 17,5 years after admission
Number of rehospitalisation in ICU
need for critical care after the first hospitalisation in ICU
Time frame: through study completion, maximum 17,5 years after admission
number of hospitalisation in internal medicine ward
number of hospitalisation in internal medicine ward after the first ICU stay
Time frame: through study completion, maximum 17,5 years after admission
recurrent relapses
number of recurrent flares after the first hospitalisation in ICU
Time frame: through study completion, maximum 17,5 years after admission
Plan to share: No
No publications or documents are linked to this record.
Ran from Sep 2017 to primary completion in Jun 2018, 9 months.
How these figures are worked out, and which studies are left out of them.
This study is completed, as verified in Sep 2018. You cannot join it, but the record below documents what was studied.
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Still's Disease, Adult-Onset →
Central Hospital, Nancy, France →