CClinicalTrials.gg
CompletedNCT03269175Updated May 16, 2019

BENEFIT 15 Long-term Follow-up Study of the BENEFIT and BENEFIT Follow-up Studies

A Phase 4 interventional study of Brain MRI and Blood sampling in Multiple Sclerosis, sponsored by Bayer. Completed at 61 sites in 18 countries. Open to participants aged 18 Years and older. Per ClinicalTrials.gov, last updated 2019-05-16.

Sponsored by Bayer · Phase 4, Interventional, and Treatment

Phase
Phase 4
Study type
Interventional
Enrollment
261
Allocation
Non-randomized
Ages
18 Years and older
Sex
All
01

Study summary

The purpose of this study is to obtain long-term clinical data from patients approximately 15 years after their first clinical event, who participated in the former BENEFIT 304747 study and were treated at least once within that study.

This study will collect clinical information on the disease course, on disability, relapses, cognitive function over time, quality of life, depression, fatigue, resource use, and employment status. In addition, brain MRI is performed.

02

Conditions studied

  • Multiple Sclerosis

Keywords

  • Clinically Isolated Syndrome suggestive of Multiple Sclerosis or Multiple Sclerosis
03

Who can participate

Ages eligible
18 Years and older
Sexes eligible
All
Accepts healthy volunteers
No

Inclusion criteria

  • All subjects who were treated at least once in BENEFIT study 304747 are eligible for inclusion in the BENEFIT 15 study

Exclusion criteria

Exclusion Criteria:

  • Subjects who, according to the investigator's judgment, have medical, psychiatric, or other conditions that compromise the subject's ability to understand the purpose of the study
  • Suspected clinical instability or unpredictability of the clinical course during the study(e.g., due to previous surgery or acute stroke)
04

Study design

Phase
Phase 4
Primary purpose
Treatment
Allocation
Non-randomized
Intervention model
Parallel assignment
Masking
None (open label)
Enrollment
261 participants (actual)

Study arms

  • Other
    Experimental arm 15 years ago

    This long term study does not imply current study medication. It looks at the status 15 years after the clinicial trial (BENEFIT)

    Other: Brain MRI · Other: Blood sampling

  • Other
    Placebo arm, offered treatment at MS diagnosis or at Month 24

    This long term study does not imply current study medication. It looks at the status 15 years after the clinicial trial (BENEFIT)

    Other: Brain MRI · Other: Blood sampling

Interventions

  • OtherBrain MRI

    Brain MRI will be performed

  • OtherBlood sampling

    Blood samples will be taken

05

What researchers measure

Primary outcomes

  1. Number of subjects with diagnosis of multiple sclerosis within fifteen years after Clinically-Isolated Syndrome (CIS) according to McDonald 2001 and 2010 criteria

    Time frame: Over 15 years since the subject´s first clinical event

  2. Disease course since start of BENEFIT as assessed at the time of BENEFIT 15

    Time frame: Over 15 years since the subject's first clinical event

  3. Time to first relapse

    Time frame: Over 15 years since the subject´s first clinical event

  4. Time to recurrent relapse

    Time frame: Over 15 years since the subject´s first clinical event

  5. Annualized relapse rate

    Time frame: Over 15 years since the subject´s first clinical event

  6. Time to conversion to Clinically-Definite Multiple Sclerosis (CDMS)

    Time frame: Over 15 years since the subject´s first clinical event

  7. Time to conversion to Secondary Progressive Multiple Sclerosis (SPMS)

    Time frame: Over 15 years since the subject´s first clinical event

  8. Expanded Disability Status Scale these scores (EDSS score) for disability assessed by the investigator during the neurological examination

    Time frame: 15 years after the subject´s first clinical event

  9. Number of subjects with confirmed and sustained 1-point EDSS progression (Disability progression)

    Time frame: Over 15 years since the subject´s first clinical event

  10. Number of subjects with confirmed 2.5-point EDSS progression (Disability progression)

    Time frame: Over 15 years since the subject´s first clinical event

  11. Multiple Sclerosis Functional Composite (MSFC) score (Neurological status)

    MSFC: Multiple Sclerosis Functional Composite

    Time frame: Over 15 years since the subject´s first clinical event

  12. Paced Auditory Serial Addition Test (PASAT-3) score (Cognitive function)

    Time frame: Over 15 years since the subject´s first clinical event

  13. Time to use of ambulatory device

    Time frame: Over 15 years since the subject´s first clinical event

  14. Time to dependence on ambulatory device

    Time frame: Over 15 years since the subject´s first clinical event

  15. Time to use of wheelchair

    Time frame: Over 15 years since the subject´s first clinical event

  16. Employment status (Standardized questions)

    The current employment will be recorded

    Time frame: At one single visit, 15 years after the subject's first clinical event

  17. Multiple sclerosis impact on employment

    Time frame: At one single visit, 15 years after the subject's first clinical event

  18. Resource use assessment questions: Help from family/regular ambulatory services

    Time frame: At one single visit, 15 years after the subject's first clinical event

  19. Resource use assessment questions: Additional ambulatory services during relapse

    Time frame: At one single visit, 15 years after the subject's first clinical event

  20. Resource use assessment questions: Adaptions (past 6 months)

    Time frame: At one single visit, 15 years after the subject's first clinical event

Secondary outcomes

  1. Symbol Digit Modalities Test score (SDMT score)

    SDMT: Symbol Digit Modalities Test, Cognitive test For sustained attention, concentration and information processing speed

    Time frame: At one single visit, 15 years after the subject's first clinical event

  2. Relation of SDMT and FSMC (Fatigue Scale for Motor and Cognitive Functions)

    Time frame: At one single visit, 15 years after the subject's first clinical event

  3. Relation of mental processing speed and MRI parameters

    Time frame: At one single visit, 15 years after the subject's first clinical event

  4. European Quality of life - 5 Dimensions Health-related Quality of life (EQ-5D HRQoL) score

    EQ-5D: European Quality of Life - 5 dimensions Questionnaire measuring health-related quality of life

    Time frame: Over 15 years since the subject´s first clinical event

  5. European Quality of Life-5 Dimensions Visual Analog Scale (EQ-5D VAS) score

    Time frame: Over 15 years since the subject's first clinical event

  6. Functional Assessment of Multiple Sclerosis (FAMS score)

    FAMS: Functional Assessment of Multiple Sclerosis Questionnaire measuring health-related quality of life

    Time frame: Over 15 years since the subject´s first clinical event

  7. Fatigue Scale for Motor and Cognitive Functions (FSMC score)

    Time frame: At one single visit, 15 years after the subject's first clinical event

  8. Center of Epidemiological Studies for Depression (CES-D) score

    Time frame: At one single visit, 15 years after the subject's first clinical event

  9. Time to second line therapy

    Time frame: Over 15 years since the subject´s first clinical event

  10. Time to first disease-modifying therapies (DMT) other than IFNB-1b

    Time frame: Over 15 years since the subject´s first clinical event

06

Study locations

61 sites
  • Medizinische Universität Graz
    Graz, Steiermark 8036, Austria
  • Landeskrankenhaus - Universitätskliniken Innsbruck
    Innsbruck, 6020, Austria
  • CU Saint-Luc/UZ St-Luc
    Bruxelles - Brussel, 1200, Belgium
  • UZ Gent
    Gent, 9000, Belgium
  • UZ Leuven Gasthuisberg
    Leuven, 3000, Belgium
  • CHU de Liège
    Liege, 4000, Belgium
  • Ottawa Hospital-General Campus
    Ottawa, Ontario K1H 8L6, Canada
  • CHUM - Hopital Hotel-Dieu
    Montreal, Quebec H2X 0A9, Canada
  • Montreal Neurological Hospital
    Montreal, Quebec H3A 2B4, Canada
  • Fakultni nemocnice Brno
    Brno, 625 00, Czechia
  • Fakultni Nemocnice Hradec Kralove
    Hradec Kralove, 500 05, Czechia
  • Fakultni nemocnice Ostrava
    Ostrava-Poruba, 708 52, Czechia
  • Vseobecna fakultni nemocnice v Praze
    Praha 2, 121 11, Czechia
  • Amtssygehuset Glostrup
    Glostrup, DK-2600, Denmark
  • Tampereen yliopistollinen sairaala, keskussairaala
    Tampere, 33521, Finland
  • Terveystalo Turku
    Turku, 20100, Finland
  • Hôpital Pellegrin - Bordeaux
    Bordeaux, 33000, France
  • Hopital general
    Dijon, 21033, France
  • Hopital Roger Salengro
    Lille, 59037, France
  • Hôpital Pasteur - Nice
    Nice, 06200, France
  • Hôpital Pontchaillou
    Rennes Cedex, 35033, France
  • Klinikum der Universität München Grosshadern
    München, Bayern 81377, Germany
  • Bezirksklinikum
    Regensburg, Bayern 93053, Germany
  • Krankenhaus Hennigsdorf
    Hennigsdorf, Brandenburg 16761, Germany
  • Universitätsklinik Gießen und Marburg GmbH
    Marburg, Hessen 35043, Germany
  • Sana Klinikum Offenbach GmbH
    Offenbach, Hessen 63069, Germany
  • Universitätsmedizin der Georg-August-Universität Göttingen
    Goettingen, Niedersachsen 37075, Germany
  • Heinrich-Heine-Universität Düsseldorf
    Düsseldorf, Nordrhein-Westfalen 40225, Germany
  • Städt. Krankenhaus Martha-Maria Halle-Dölau gGmbH
    Halle, Sachsen-Anhalt 06120, Germany
  • HELIOS Klinikum Erfurt GmbH
    Erfurt, Thüringen 99089, Germany
  • Universitätsklinikum Charite zu Berlin
    Berlin, 10117, Germany
  • Peterfy Sandor utcai Korhaz - Rendelointezet
    Budapest, 1076, Hungary
  • Uzsoki Utcai Korhaz
    Budapest, 1145, Hungary
  • Debreceni Egyetem Klinikai Kozpont
    Debrecen, 4012, Hungary
  • Szent-Gyorgyi Albert Orvostudomanyi Egyetem
    Szeged, 6720, Hungary
  • Hadassah Hebrew University Hospital Ein Kerem
    Jerusalem, Israel
  • Ospedale San Raffaele
    Milano, Lombardia 20132, Italy
  • IRCCS Ist Neurologico Nazionale C.Mondino
    Pavia, Lombardia 27100, Italy
  • ASST Valle Olona
    Varese, Lombardia 21013, Italy
  • A.O.U. San Luigi Gonzaga
    Torino, Piemonte 10043, Italy
  • A.O.U. Città della Salute e della Scienza di Torino
    Torino, Toscana 10126, Italy
  • Helse Bergen HF Haukeland universitetssjukehus
    Bergen, 5021, Norway
  • 10 Wojskowy Szpital Kliniczny z Poliklinika SPZOZ
    Bydgoszcz, 85-681, Poland
  • Szpital Uniwersytecki w Krakowie
    Krakow, 30-503, Poland
  • Szpital im. N. Barlickiego
    Lodz, 90-153, Poland
  • Samodzielny Publiczny Szpital Kliniczny nr 4
    Lublin, 20-090, Poland
  • Uniwersytecki Szpital Kliniczny im. J. Mikulicza-Radeckiego
    Wroclaw, 50-556, Poland
  • Instituto Português de Oncologia Francisco Gentil - Coimbra
    Coimbra, 3000-075, Portugal
  • Hospital Universitario Virgen de la Macarena
    Sevilla, Andalucía 41071, Spain
  • Ciutat Sanitària i Universitària de Bellvitge
    L'Hospitalet de Llobregat, Barcelona 08907, Spain
  • Ciutat Sanitària i Universitaria de la Vall d'Hebron
    Barcelona, 08035, Spain
  • Hospital Clínic i Provincial de Barcelona
    Barcelona, 08036, Spain
  • Hospital Regional de Málaga
    Malaga, 29010, Spain
  • Hospital Universitari i Politècnic La Fe
    Valencia, 46026, Spain
  • Sahlgrenska Universitetssjukhuset
    Göteborg, 413 45, Sweden
  • Universitätsspital Basel
    Basel, Basel-Stadt 4031, Switzerland
  • Inselspital Universitätsspital Bern
    Bern, 3010, Switzerland
  • Royal Hallamshire Hospital
    Sheffield, South Yorkshire S10 2JF, United Kingdom
  • Aberdeen Royal Infirmary
    Aberdeen, AB25 2ZN, United Kingdom
  • Ninewells Hospital
    Dundee, DD1 9SY, United Kingdom
  • Charing Cross Hospital
    London, United Kingdom
07

References and documents

08

Registry details

Key details

Study ID
NCT03269175
Lead sponsor
Bayer
Responsible party
Sponsor
First posted
Aug 31, 2017
Start date
Sep 29, 2017
Primary completion
May 24, 2018
Completion
May 24, 2018
Last update
May 16, 2019

Oversight

Data monitoring committee
No
FDA-regulated drug
No
FDA-regulated device
No
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