An observational study in Cystic Fibrosis, sponsored by Nantes University Hospital. Completed at 2 sites in France. Open to participants aged 13 Years and older, including healthy volunteers. Per ClinicalTrials.gov, last updated 2019-01-30.
Sponsored by Nantes University Hospital · Observational
Cystic fibrosis is so far a disease whose treatment remains essentially symptomatic care teams perceive the boundaries of a support mainly focused on drug treatments. The patient had no other choice but to learn to live with their disease, the goal is to make every effort so that tames the disease while maintaining high self-esteem that gives meaning to his life, allowing, among other things, a good grip of treatment.
Through this research we hope to encourage the integration of art therapy in the course of care of cystic fibrosis patients, from children to adults before and after transplantation, in connection with the patient education and counseling
1,581 studies on the registry are indexed under Cystic Fibrosis; 190 are open to participants now.
This study's enrollment of 23 is below the median of 85 across 482 observational studies indexed under Cystic Fibrosis.
Browse Cystic Fibrosis studies →Nantes University Hospital is the lead sponsor of 825 studies on the registry; 195 are open to participants now.
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Will be included in this research project:
Inclusion Criteria:
Non Inclusion Criteria:
First individual interviews will be set up with teenagers of Nantes University Hospital . Then, focus group will be conduct with patients and professionals in Nantes and Foch University Hospital.
Patient responses to the effects of art therapy and music therapy
The depth interviews with patients will achieve a thematic and structural analysis of the speech. This will capture the effects of art therapy and music therapy on patients, their point of view.
Time frame: 1 day
Plan to share: No
No publications or documents are linked to this record.
This study is completed, as verified in Jan 2019. You cannot join it, but the record below documents what was studied.
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Nantes University Hospital