An observational study in Endometriosis, sponsored by BC Women's Hospital & Health Centre. Enrolling by invitation at 1 site in Canada. Open to female participants. Per ClinicalTrials.gov, last updated 2024-08-07.
Sponsored by BC Women's Hospital & Health Centre · Observational
The purpose of this data registry is to prospectively collect data from patients referred to an interdisciplinary clinic for pelvic pain and endometriosis to investigate long-term patient outcomes, prognosis, predictors, causes, and treatment of pelvic pain and endometriosis.
The BC Women's Centre for Pelvic Pain and Endometriosis is the tertiary referral centre for endometriosis/pelvic pain in British Columbia, Canada. The Centre offers a unique interdisciplinary approach including minimally invasive surgery, hormonal and other medical therapy, pain education, physiotherapy, and CBT/mindfulness.
After informed consent, patients prospectively consent to data collection in the online registry. The registry consists of patient intake questionnaires (including validated measures), physical and ultrasound examination, review of medical records, surgical findings, and annual outcomes to 5 years.
The online data registry is housed in the Research Electronic Data Capture (REDCap) platform located at BC Children's Hospital.
920 studies on the registry are indexed under Endometriosis; 266 are open to participants now.
This study's planned enrollment of 5,000 is above the median of 135 across 349 observational studies indexed under Endometriosis.
Browse Endometriosis studies →BC Women's Hospital & Health Centre is the lead sponsor of 11 studies on the registry; 2 are open to participants now.
Counted across the registry records on this site, refreshed daily.
Patients at the BC Women's Centre for Pelvic Pain and Endometriosis seen for chronic pelvic pain and/ or endometriosis
Go through the criteria one by one — yes, no or not sure — and take the list to your doctor or the study team. Kept in this browser only.
Exclusion Criteria:
Data Registry
Patient-reported severity of chronic pelvic pain
Measured on a scale of 0 (no pain) to 10 (worst pain imaginable)
Time frame: 3 months
Plan to share: No
Started Jun 2016 (actual). Primary completion is estimated for Dec 2028, 150 months after the start.
Of 155 non-industry observational studies under Endometriosis, half reached primary completion within 30 months of starting (the median), counting those still running; a quarter within 14 and three quarters within 48. This study's planned 150 months is above that.
Counting every sponsor, half of 182 studies reached it within 30 months; a quarter within 14 and three quarters within 47.
How these figures are worked out, and which studies are left out of them.
Eligibility is decided by the study team. Share this record with your doctor or contact the team directly.
No contact was published for this record. The registry link below has the sponsor’s details.
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BC Women's Hospital & Health Centre