An observational study in Muscular Dystrophies and Intensive Care (ICU) Myopathy, sponsored by Centre d'Investigation Clinique et Technologique 805. Status unknown at 1 site in France. Open to participants aged 18 Years and older. Per ClinicalTrials.gov, last updated 2019-05-16.
Sponsored by Centre d'Investigation Clinique et Technologique 805 · Observational
Muscular dystrophies are neuromuscular disorders with disability. Restrictive pulmonary failure and cardiomyopathy affect prognosis.The investigators aim to establish predictive factors for mortality and morbidity in Intensive care unit (ICU ) and to describe the long term follow up after ICU discharge.
Muscular dystrophies are neuromuscular disorders with disability. Restrictive pulmonary failure and cardiomyopathy affect prognosis. Little is known about morbidity and mortality of patients with muscular dystrophies admitted in intensive care unit (ICU).The investigators aim to describe the spectrum of patients with muscular dystrophies admitted in ICU , to establish predictive factors for ICU mortality and morbidity and to describe the long term follow up after ICU discharge.
548 studies on the registry are indexed under Muscular Dystrophies; 89 are open to participants now.
This study's planned enrollment of 800 is above the median of 69 across 179 observational studies indexed under Muscular Dystrophies.
Browse Muscular Dystrophies studies →Centre d'Investigation Clinique et Technologique 805 is the lead sponsor of 74 studies on the registry; 2 are open to participants now.
Counted across the registry records on this site, refreshed daily.
All patients with neuro-muscular disorders admitted in ICU since 2005
Exclusion Criteria:
ICU mortality
Time frame: 1 month
tracheostomy in ICU
Time frame: 1 month
predictive factors for re admission in ICU
Time frame: 1 year
long term survival after ICU stay
Time frame: 5 years
decline of vital capacity after ICU stay
Time frame: 2 years
Plan to share: No
No publications or documents are linked to this record.
This study is status unknown, as verified in May 2019. You cannot join it, but the record below documents what was studied.
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Centre d'Investigation Clinique et Technologique 805