An observational study in Amyotrophic Lateral Sclerosis, sponsored by Forbes Norris MDA/ALS Research Center. Completed at 1 site in United States. Per ClinicalTrials.gov, last updated 2010-03-02.
Sponsored by Forbes Norris MDA/ALS Research Center · Observational
The purpose is to collect data for ALS research. The data will be used to learn more about the origin of ALS and to improve quality of care for people with ALS. The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research.
Any person who has been diagnosed with ALS by a physician can enroll into this registry.
The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research. An additional focus of this website will be to educate participating patients and visitors to this site about ongoing ALS research.
717 studies on the registry are indexed under Motor Neuron Disease; 137 are open to participants now.
This study's planned enrollment of 15,000 is above the median of 109 across 217 observational studies indexed under Motor Neuron Disease.
Browse Motor Neuron Disease studies →Forbes Norris MDA/ALS Research Center is the lead sponsor of 2 studies on the registry; none are open to participants now.
Counted across the registry records on this site, refreshed daily.
Any patient diagnosed with ALS by a licensed physician.
Inclusion Criteria:
This study is completed, as verified in Feb 2010. You cannot join it, but the record below documents what was studied.
Get an email when the registry record changes — status, dates, results — or when someone posts here.
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Nothing here yet. If you are running this trial, taking part in it, or weighing whether to, this is the place to say so.
Forbes Norris MDA/ALS Research Center