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CompletedNCT07449871Updated Apr 30, 2026

Psychosocial Burden of Epilepsy

An observational study in Epilepsy, sponsored by Saglik Bilimleri Universitesi. Completed at 1 site in Turkey (Türkiye). Open to participants aged 18 Years and older. Per ClinicalTrials.gov, last updated 2026-04-30.

Sponsored by Saglik Bilimleri Universitesi · Observational

Study type
Observational
Model
Other
Time perspective
Cross-sectional
Enrollment
90
Ages
18 Years and older
Sex
All
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Study summary

This study aims to investigate the educational, occupational, and social challenges experienced by individuals with epilepsy using structured questionnaires developed by the research team. Despite advances in diagnosis and treatment, people with epilepsy may continue to face difficulties related to stigma, access to opportunities, and daily functioning. Participants will complete survey forms designed to assess barriers encountered in school, workplace, and social environments, as well as their perceptions and experiences related to living with epilepsy. The findings are expected to provide insight into unmet needs and inform strategies to improve support and quality of life for individuals with epilepsy.

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Conditions studied

  • Epilepsy

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In context

Epilepsy

1,805 studies on the registry are indexed under Epilepsy; 417 are open to participants now.

This study's enrollment of 90 is below the median of 102 across 521 observational studies indexed under Epilepsy.

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Lead sponsor

Saglik Bilimleri Universitesi is the lead sponsor of 430 studies on the registry; 137 are open to participants now.

Counted across the registry records on this site, refreshed daily.

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Who can participate

Ages eligible
18 Years and older
Sexes eligible
All
Accepts healthy volunteers
No
Sampling method
Non-probability sample

Study population

Adults with a clinical diagnosis of epilepsy who are under follow-up at a tertiary neurology clinic will be invited to participate. The study population consists of individuals receiving routine clinical care who are able to complete structured questionnaires assessing educational, occupational, and social experiences related to living with epilepsy. Participants are expected to represent a broad range of demographic and clinical characteristics reflective of real-world epilepsy care.

Eligibility criteria

Inclusion Criteria:

  • Inclusion Criteria

Adults aged 18 years or older

Clinical diagnosis of epilepsy confirmed by a neurologist

Able to understand and complete the questionnaire

Willing to provide informed consent

Exclusion Criteria:

  • Severe cognitive impairment preventing reliable questionnaire completion

Acute medical or psychiatric condition interfering with participation

Inability to communicate effectively in the study language

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Study design

Observational model
Other
Time perspective
Cross-sectional
Enrollment
90 participants (actual)
Patient registry
No
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What researchers measure

Primary outcomes

  1. Educational, occupational, and social difficulties

    The proportion and severity of self-reported difficulties experienced by individuals with epilepsy in educational settings, workplace participation, and social life, as measured by structured survey forms designed by the research team.

    Time frame: At study enrollment (single assessment)

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Study locations

1 site
  • Saglik Bilimleri University Izmir Faculty of Medicine Department of Neurology
    Izmir, Turkey (Türkiye)
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Updates

Tracking since Sep 25, 2026
No changes since tracking began. The registry record was last updated on Apr 30, 2026, before this site started recording changes on Sep 25, 2026. Its history is on ClinicalTrials.gov ↗
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Registry details

Key details

Study ID
NCT07449871
Lead sponsor
Saglik Bilimleri Universitesi
Responsible party
Sponsor
First posted
Mar 4, 2026
Start date
Feb 1, 2026
Primary completion
Mar 1, 2026
Completion
Apr 1, 2026
Last update
Apr 30, 2026

Oversight

Data monitoring committee
No
FDA-regulated drug
No
FDA-regulated device
No
View the source record on ClinicalTrials.gov ↗

Not currently enrolling

This study is completed, as verified in Feb 2026. You cannot join it, but the record below documents what was studied.

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