An observational study in Takayasu Arteritis and Takayasu Arteritis (TAK), sponsored by University of Edinburgh. Recruiting at 1 site in United Kingdom. Open to participants aged 18 Years and older. Per ClinicalTrials.gov, last updated 2026-01-20.
Sponsored by University of Edinburgh · Observational
This study aims to understand the experiences of patients with Takayasu arteritis (TAK) and how physicians manage the condition. To achieve this, two separate questionnaires will be conducted: one for patients and one for physicians.
This study aims to investigate the experiences and perceptions of patients with Takayasu arteritis regarding their disease, as well as the perspectives of physicians regarding the management and treatment of these patients.
Patients with TAK will be invited to complete an anonymous online (Online Surveys) questionnaire, which will take approximately 25 minutes and will consist of multiple-choice and short-answer questions. The questionnaire will ask about their experience with the condition, symptoms, treatments they have received, and any concerns or priorities they have regarding their care.
Physicians who treat TAK will also be invited to complete a separate online questionnaire, taking around 15 minutes and also consisting of multiple-choice and short-answer questions. This will explore how they diagnose and manage TAK, their choice of treatments, and any challenges they face in treating the condition
76 studies on the registry are indexed under Takayasu Arteritis; 30 are open to participants now.
This study's planned enrollment of 50 is below the median of 300 across 39 observational studies indexed under Takayasu Arteritis.
Browse Takayasu Arteritis studies →University of Edinburgh is the lead sponsor of 393 studies on the registry; 64 are open to participants now.
Counted across the registry records on this site, refreshed daily.
Participants are UK-based
For the patient questionnaire:
For the physician questionnaire
Exclusion Criteria:
For the patient questionnaire:
For the physician questionnaire
Other: Questionnaire
Other: Questionnaire
An online annoymous questionnaire consisting of short-answer and multiple-choice questions
Patient Perspective
To understand the lived experiences of individuals with TAK, including their symptoms, health status post-diagnosis, treatment priorities, and concerns. The questionnaire covers the following topics: * Basic background information * Living with Takayasu arteritis * Changes to health since diagnosis * Physical activity and exercise habits- measured by the International Physical Activity Questionnaire (IPAQ) * Smoking history * Mental well-being- measured by the EQ-5D instrument * Nutrition and diet * Personal views and priorities on management
Time frame: Day 1
Physician Perspective
To evaluate current clinical management strategies for TAK, identify treatment priorities, and highlight areas of unmet need in clinical practice. The physician questionnaire covers the following topics: * Clinical background and experience with TAK patients * Diagnostic and treatment strategies for TAK * Consideration of cardiovascular disease risk in TAK management * Physician priorities and unmet needs of management
Time frame: Day 1
Plan to share: No
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University of Edinburgh