An observational study in Turner Syndrome, Pterygium Colli and Web Neck, sponsored by Mohamed Tahar Maamouri University Hospital. Completed at 1 site in Tunisia. Open to participants aged 2 Years to 30 Years. Per ClinicalTrials.gov, last updated 2024-07-05.
Sponsored by Mohamed Tahar Maamouri University Hospital · Observational
This study aims to identify all types of congenital neck deformities called " webbed neck ". Through a literature survey, the researcher selected 27 articles describing the surgical treatment of the webbed neck, but without considering the varieties of this deformity. For this reason, the researcher studied all the reported cases from which she developed a classification containing 4 types of webbed necks allowing the use of the most suitable technique to enhance the surgical outcomes.
Through a literature survey of 27 selected articles (from PubMed database and clarivate web of science). The publication years ranged from 1937 to 2020 and the number of patients reported to have undergone surgery was 78 patients.
The webbed neck is a noticeable congenital deformity mainly observed in Turner syndrome. It consists of a bilateral fold extending from the mastoid to the acromion with several distinctions as described in Mehri Turki's webbed neck classification as follows:
Type 1: The fold is maintained by a fibrotic band and the posterior skin is abnormally hairy with a low hairline placement.
Type 2: There is no fibrotic band and the hair abnormality exists as in Type 1
Type 3: There is a fibrotic band and a low posterior hairline but the posterior skin is hairless
Type 4: The fold is maintained by a fibrotic band without hair abnormality
It appears that according to the type of webbed neck, the surgical approach and surgical steps and technique will be adapted to what will be corrected. This classification is therefore crucial to guide surgeons towards the most suitable technique allowing the best results.
125 studies on the registry are indexed under Turner Syndrome; 33 are open to participants now.
This study's enrollment of 78 is below the median of 164 across 70 observational studies indexed under Turner Syndrome.
Browse Turner Syndrome studies →Mohamed Tahar Maamouri University Hospital is the lead sponsor of 5 studies on the registry; none are open to participants now.
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The study is about 78 patients reported in the literature, aged between 2 and 30 years and born with a webbed neck (or pterygium colli)
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Exclusion Criteria:
Mehri Turki Webbed neck classification
Time frame: Baseline, pre-sugical procedure
Plan to share: Undecided — Data are available in the published article: https://doi.org/10.1007/s10006-023-01166-2
This study is completed, as verified in Jul 2024. You cannot join it, but the record below documents what was studied.
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Mohamed Tahar Maamouri University Hospital