An interventional study of Narrative interviews in Parkinson Disease, sponsored by University Hospital, Toulouse. Status unknown at 1 site in France. Open to participants aged 18 Years to 65 Years. Per ClinicalTrials.gov, last updated 2021-06-07.
Sponsored by University Hospital, Toulouse · Not applicable, Interventional, and Supportive care
The researchers wish to determine what are patients/care partners priorities in terms of care delivery based at home/community and define the envisioning care delivery model that support both social care and medical care from the perspective of people living with Parkinson.
The researchers wish to determine what are patients/care partners priorities in terms of care delivery based at home/community and define the envisioning care delivery model that support both social care and medical care from the perspective of people living with Parkinson.
Narrative interviews and workshops are conducted to obtain information on:
Narratives are stories that are based on the unfolding of events or actions from the perspective of a patient's life experience. Patients and care partners tell their stories of illness and how they live with illness over time. They are encouraged to share their personal stories of living with PD, using health services, community resources.
The researcher could focus on the care priorities, the support needed, the information needed and the challenges faced. The narrative interview will be used to get an overview of the patient's trajectory.
During the workshop, the participants will collectively create a common representation of the patient journey and co-design the envisioning care delivery model that support both social care and medical care.
A patient journey map gives a common picture of the process and the way patients experience their care delivery. Understanding the patients' experiences of their journey is essential in order to co-design the future care delivery model based at home/community.
Journey map proposes a visual representation of the relationship between patients and the healthcare services. They also help to visually externalize patient experience by placing them at the heart of the modelling process. The journey map is an effective tool that reduces the complexity of health services to a comprehensible representation.
At the end of the workshop, patients' needs and care priorities will be discussed considering the different phases of the patient journey, and the participants will be encouraged to envisioning the future care delivery model based at home/community.
4,487 studies on the registry are indexed under Parkinson Disease; 1,082 are open to participants now.
This study's planned enrollment of 50 is above the median of 40 across 3,294 interventional studies indexed under Parkinson Disease.
Browse Parkinson Disease studies →University Hospital, Toulouse is the lead sponsor of 794 studies on the registry; 214 are open to participants now.
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Exclusion Criteria:
Narratives are stories that are based on the unfolding of events or actions from the perspective of a patient's life experience. Patients and care partners tell their stories of illness and how they live with illness over time . The researcher could focus on the care priorities, the support needed, the information needed and the challenges faced. The narrative interview will be used to get an overview of the patient's trajectory.
Other: Narrative interviews
During the workshop, the participants will collectively create a common representation of the patient journey and co-design the envisioning care delivery model that support both social care and medical care.
Narrative interviews
Identify the expectations and priorities of people living with Parkinson's disease for medical-social benefits.
Time frame: 1 day
This study is status unknown, as verified in May 2021. You cannot join it, but the record below documents what was studied.
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University Hospital, Toulouse