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TerminatedNCT04779814DANTEUpdated Mar 25, 2026

Non-interventional Study Describing Healthcare Resource Utilisation and Clinical Outcomes Associated With VNS Therapy in UK.

An observational study in Epilepsy, sponsored by LivaNova. Terminated at 5 sites in United Kingdom. Open to participants aged 1 Year and older. Per ClinicalTrials.gov, last updated 2026-03-25.

Sponsored by LivaNova · Observational

Why this study was terminated
The study was terminated by the sponsor due to persistent delays in recruitment and data availability, including access to the healthcare resource utilization database, which made it difficult to generate meaningful outcomes.
Study type
Observational
Model
Cohort
Time perspective
Other
Enrollment
97
Ages
1 Year and older
Sex
All
01

Study summary

This is a UK, multi-center, non-interventional study based on the use of health service administrative and medical records (paper-based and/or electronic, as applicable) along with the use of prospectively collected subject-reported outcomes on experience with use of VNS therapy using validated and bespoke self-completion questionnaires. Data for hospital resource utilisation will be extracted from the Hospital Episode Statistics (HES) database.

Read the detailed description

Failure to control seizures in subjects with treatment resistant epilepsy can have a significant burden on the healthcare system. Vagus Nerve Stimulation (VNS) is an adjunctive treatment for patients with drug resistant epilepsy and is reported to reduce the frequency of seizures in adults and children. However, real-world data on healthcare resource utilization by patients with treatment-resistant epilepsy and their clinical outcomes prior to and post VNS device implantation in the UK are limited. The current study aims to describe the resource utilization and clinical outcomes prior to and following the implantation of different VNS devices (Demipulse®/Aspire HC®, Aspire SR® and SenTiva®) in subjects with drug resistant epilepsy

02

Conditions studied

  • Epilepsy

Keywords

  • VNS
  • DRE
  • drug resistant epilepsy
  • Vagus Nervus Stimulation
  • Healthcare Resource Utilization
03

Who can participate

Ages eligible
1 Year and older
Sexes eligible
All
Accepts healthy volunteers
No
Sampling method
Non-probability sample

Study population

Male and female adult (aged ≥16 years at VNS implantation) and paediatric (aged 1-15 years at VNS implantation) subjects with epilepsy who have had a VNS device Demipulse®/Aspire HC®, Aspire SR® or SenTiva® implanted will be involved in this study.

Inclusion criteria

Living subjects who meet all of the following criteria will be considered for enrolment:

  • Clinical diagnosis of drug resistant epilepsy
  • Subjects who have had their first VNS device (Demipulse®/Aspire HC®, Aspire SR® and SenTiva®) implanted at least 18 months prior to their enrolment in the study data (with no change in generator, battery or lead).
  • For SenTiva® and Aspire SR®, AutoStim was first activated within 1 month of implantation.
  • For SenTiva®, scheduled dosing mode was activated within 1 month of implantation.
  • Subjects must be able and willing to provide informed consent; subjects aged 7-12 years old and 13-15 years old will be provided with appropriate information and consent forms to explain the study in age appropriate language. These subjects will be asked to provide their assent to take part in the study, with consent provided by their parent/carer. Subjects under 7 years will be included in the study with consent from their parent/carer. For adult subjects (≥16 years) lacking the mental capacity to consent, advice about participation will be sought from an appropriate consultee, according to the Mental Capacity Act 2005.
  • Adult and paediatric subjects (aged over 2.5 years at study enrolment) with available medical records for at least 12 months prior to VNS device implantation.

Exclusion criteria

Exclusion Criteria:

  • Subjects whose medical records are not available for review.
  • Deceased subjects.
04

Study design

Observational model
Cohort
Time perspective
Other
Enrollment
97 participants (actual)
Patient registry
No

Groups and cohorts

  • Cohort 1

    Demipulse®/Aspire HC® (30 adult subjects)

  • Cohort 2

    Demipulse®/Aspire HC® (30 pediatric subjects)

  • Cohort 3

    Aspire SR® (30 adult subjects)

  • Cohort 4

    Aspire SR® (30 pediatric subjects)

  • Cohort 5

    SenTiva® (30 adult subjects)

  • Cohort 6

    SenTiva® (30 pediatric subjects)

05

What researchers measure

Primary outcomes

  1. Change in hospital resource utilization

    Description of change in hospital resource utilization from the 12-month period pre- to the 18-month period post-implantation of VNS device in subjects with drug resistant epilepsy.

    Time frame: 12-month pre- implantation of VNS device to 18-month post-implantation of VNS device

Secondary outcomes

  1. Change in Seizure information using ILAE classification

    Onset and current classification and any prior classification of seizures will be described using ILAE classification

    Time frame: 12-month pre- implantation of VNS device to 6-month, to 12-month and to 18-month post-implantation of VNS device

  2. Initial titration period for each VNS device

    Description of initial titration period for each VNS device

    Time frame: 18-month period post-implantation of VNS device.

  3. Characteristics and demographics of subjects at the time of implantation of VNS Therapy.

    Description of characteristics and demographics of subjects at the time of implantation of VNS Therapy.

    Time frame: Implant procedure

  4. Change of AED treatments

    Assess the change in anti-epileptic drugs including dose change

    Time frame: Change from 12-month pre- implantation of VNS device to 18-month post-implantation of VNS device

  5. Change in Seizure severity

    Change in Seizure severity; using measures such as rescue medication and/or time to recovery.

    Time frame: Change from 12-month pre- implantation of VNS device to 6-month, to 12-month and to 18-month post-implantation of VNS device

  6. Change in Seizure frequency

    Change in Seizure frequency (by seizure type\*, if available) and any changes in frequency.

    Time frame: Change from 12-month pre- implantation of VNS device to 6-month, to 12-month and to 18-month post-implantation of VNS device

  7. Change in frequency of status epilepticus.

    Change in frequency of status epilepticus.

    Time frame: Change from 12-month pre- implantation of VNS device to 6-month, to 12-month and to 18-month post-implantation of VNS device

06

Study locations

5 sites
  • Queen Elizabeth Hospital Birmingham
    Birmingham, United Kingdom
  • Bristol Royal Hospital For Children
    Bristol, United Kingdom
  • The Walton Centre
    Liverpool, United Kingdom
  • Nottingham Children's Hospital
    Nottingham, United Kingdom
  • Oxford University Hospital NHSFT
    Oxford, United Kingdom
07

Registry details

Key details

Study ID
NCT04779814
Lead sponsor
LivaNova
Collaborators
OPEN VIE Limited
Responsible party
Sponsor
First posted
Mar 3, 2021
Start date
May 11, 2021
Primary completion
Aug 19, 2025
Completion
Aug 19, 2025
Last update
Mar 25, 2026

Study contacts

Mike Carter
principal investigator · Bristol Royal Hospital for Children

Oversight

Data monitoring committee
No
FDA-regulated drug
No
FDA-regulated device
No
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