An observational study in Spinal Cord Injuries, sponsored by Shirley Ryan AbilityLab. Completed at 1 site in United States. Open to participants aged 18 Years to 80 Years. Per ClinicalTrials.gov, last updated 2026-03-20.
Sponsored by Shirley Ryan AbilityLab · Observational
This study aims to quantify resilience in survivors of a spinal cord injury. The study will consist of structured interviews and self-reported surveys. We will look for common themes between participants at different stages of injury (1-5 years, 5-15 years, >15 Years).
The goal of this project is to broaden the understanding of the lived experience of aging with a disability, from the perspectives of individuals with physical disabilities resulting from spinal cord injury (SCI). The specific objectives of this project are to:
Through in-depth interviews and detailed surveys, we will explore how people with SCI attain and maintain optimal quality of life as they age, and how their quality of life relates to resiliency as they traverse the path of aging with SCI. We will explore with participants the resources and practices that have been most helpful and useful to them as they age with their disability.
1,948 studies on the registry are indexed under Spinal Cord Injuries; 505 are open to participants now.
This study's enrollment of 28 is below the median of 60 across 323 observational studies indexed under Spinal Cord Injuries.
Browse Spinal Cord Injuries studies →Shirley Ryan AbilityLab is the lead sponsor of 177 studies on the registry; 43 are open to participants now.
Of its 10 completed or terminated interventional studies of FDA-regulated products, 4 (40%) have results posted.
Counted across the registry records on this site, refreshed daily.
Persons who have experienced spinal cord injury at least 1 year prior to enrollment
Inclusion Criteria:
Persons with Spinal Cord Injury occurring between 1-5 years prior
Other: Structured Interview
Persons with Spinal Cord Injury occurring between 5-15 years prior
Other: Structured Interview
Persons with Spinal Cord Injury occurring at least 15 years prior
Other: Structured Interview
Structured interview with research staff about your experience living with spinal cord injury
Themes Survey
Common themes from the structured interviews
Time frame: 1 day (Single time point)
Resilience
Measure of resilience from Connor-Davidson Resilience Scale \[0-40\], low score indicates greater resilience
Time frame: 1 day (Single time point)
Health Questionnaire Surveys
Short Form-12 Health Survey \[30-70\] 50 indicates US average, values higher than 50 indicate better outcomes
Time frame: 1 day (Single time point)
Plan to share: No
This study is completed, as verified in Apr 2024. You cannot join it, but the record below documents what was studied.
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Shirley Ryan AbilityLab