An interventional study of Difficulties lived by disabled children's parents in the period of COVID-19 pandemic in COVID-19, Disabilities Multiple and Cerebral Palsy, sponsored by Gaziosmanpasa Research and Education Hospital. Completed at 1 site in Turkey. Open to participants aged 18 Years to 65 Years, including healthy volunteers. Per ClinicalTrials.gov, last updated 2020-11-03.
Sponsored by Gaziosmanpasa Research and Education Hospital · Not applicable, Interventional, and Screening
Pandemic period could affect the disabled children's rehabilitation and follow-up negatively because of preventive measures and this could create adverse results on their parents.
In this research, it is aimed to determine the positive and negative effects of pandemic on parents and disabled children and to provide an insight for future solutions.
To determine the effect of COVID-19 pandemic and the possible difficulties experienced by the parents of disabled children, a questionnaire was prepared. It takes approximately 10-15 minutes to complete the survey. Questionnaire is loaded to qualtrics program and sent to the families by e-mail or social media accounts.
7,640 studies on the registry are indexed under COVID-19; 488 are open to participants now.
This study's enrollment of 309 is above the median of 100 across 4,098 interventional studies indexed under COVID-19.
Browse COVID-19 studies →Gaziosmanpasa Research and Education Hospital is the lead sponsor of 122 studies on the registry; 29 are open to participants now.
Counted across the registry records on this site, refreshed daily.
Exclusion Criteria:
Parents having disabled child or children will be included in the research and it will be wanted to complete the survey questionary
Other: Difficulties lived by disabled children's parents in the period of COVID-19 pandemic
It will be a cross sectional study to obtain the information on difficulties lived by disabled children's parents during recent pandemic period
A questionnaire that we created will be used to determine the difficulties experienced by disabled children's parents during Covid 19 pandemic related to their medical follow-up
Difficulties related to rehabilitation facilities, other medical conditions or ortosis could increase because of Covid 19 pandemic unique conditions
Time frame: 4 weeks
The Fear of COVID-19 Scale
The Fear of COVID-19 Scale, a seven-item scale, has robust psychometric properties. It is reliable and valid in assessing fear of COVID-19 among the general population and will also be useful in allaying COVID-19 fears among individuals. Score is minimum 7 pointts and maximum 35 points.
Time frame: 4 weeks
Plan to share: Yes — Study protocol was established by Berrin Huner and Ebru Yilmaz Yalcınkaya Statistical analysis (Power analysis) was established by Ozden Ozyemisci Taskiran Informed consent was written by Berrin Huner
Supporting information: Study protocol, Sap, Icf
This study is completed, as verified in Oct 2020. You cannot join it, but the record below documents what was studied.
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Gaziosmanpasa Research and Education Hospital