An observational study in Huntington Disease, sponsored by University Hospital, Lille. Terminated at 1 site in France. Open to participants aged 30 Years to 70 Years, including healthy volunteers. Per ClinicalTrials.gov, last updated 2025-05-16.
Sponsored by University Hospital, Lille · Observational
The objectives are to better document the psychosocial status and needs of caregiver of HD patients and understand the dyad functioning, facing the disease at various stages.
285 studies on the registry are indexed under Huntington Disease; 49 are open to participants now.
This study's enrollment of 48 is below the median of 90 across 78 observational studies indexed under Huntington Disease.
Browse Huntington Disease studies →University Hospital, Lille is the lead sponsor of 625 studies on the registry; 141 are open to participants now.
Counted across the registry records on this site, refreshed daily.
Huntington disease population ( patient, caregiver, spouses)
For patient :
For both spouses :
Exclusion Criteria:
For patient :
For both spouses :
report of the experience and interactions of couple and Spouse Caregiver in Huntington's Disease
Qualitative assessment: Interpretative phenomenological analysis (IPA) by semi-structured interviews to explore families representations and strategies about the patients with Huntington's Disease
Time frame: once time, Baseline
report of the experience and interactions of couple and Spouse Caregiver in Huntington's Disease
Qualitative assessment : Thematic analysis by COAT (Carers Outcome Agreement Tool) during a semi-structured interviews to explore families representations and strategies about the patients with Huntington's Disease
Time frame: once time, Baseline
This study is terminated, as verified in May 2025. You cannot join it, but the record below documents what was studied.
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University Hospital, Lille