ClinicalTrials.gg
CompletedNCT03588026CAPSTONEUpdated Apr 9, 2025

Treating Paroxysmal Nocturnal Haemoglobinuria Patients With rVA576

A Phase 3 interventional study of rVA576 and Standard of care (SOC) in Paroxysmal Nocturnal Hemoglobinuria (PNH), sponsored by AKARI Therapeutics. Completed at 3 sites in 3 countries. Open to participants aged 18 Years and older. Per ClinicalTrials.gov, last updated 2025-04-09.

Sponsored by AKARI Therapeutics · Phase 3, Interventional, and Treatment

Phase
Phase 3
Study type
Interventional
Enrollment
9
Allocation
Randomized
Ages
18 Years and older
Sex
All
01

Study summary

rVA576 for patients with Paroxysmal Nocturnal Hemoglobinuria (PNH).

Read the detailed description

rVA576, a small protein complement C5 inhibitor which prevents the cleavage of C5 by C5 convertase into C5a and C5b, will be used in an open label, non-comparative clinical trial in patients with PNH.

Patients will be treated with rVA576 by daily subcutaneous injection in order to determine the safety and efficacy of the drug in these circumstances.

If satisfactory control of the PNH is achieved, and at the discretion of the Principal Investigator (PI), patients will have the option of remaining on rVA576 and being entered into the long term follow-up study.

02

Conditions studied

  • Paroxysmal Nocturnal Hemoglobinuria (PNH)
03

In context

Hemoglobinuria, Paroxysmal

191 studies on the registry are indexed under Hemoglobinuria, Paroxysmal; 49 are open to participants now.

This study's enrollment of 9 is below the median of 33 across 150 interventional studies indexed under Hemoglobinuria, Paroxysmal.

Browse Hemoglobinuria, Paroxysmal studies →

Lead sponsor

AKARI Therapeutics is the lead sponsor of 8 studies on the registry; none are open to participants now.

Counted across the registry records on this site, refreshed daily.

04

Who can participate

Ages eligible
18 Years and older
Sexes eligible
All
Accepts healthy volunteers
No

Go through the criteria one by one — yes, no or not sure — and take the list to your doctor or the study team. Kept in this browser only.

Inclusion criteria

  1. Willing to give to treatment with rVA576
  2. Diagnosed with paroxysmal nocturnal haemoglobinuria (PNH)
  3. Have not received any complement inhibitor within the 4 months prior to screening
  4. ≥ 18 years of age at the time of screening
  5. Weight ≥50kg
  6. Complete transfusion medical history for 12 months
  7. Transfusion dependent
  8. LDH ≥1.5 x the
  9. Willing to receive appropriate prophylaxis against Neisseria meningitidis infection, by both immunisation and continuous or intermittent antibiotics
  10. Willing to avoid prohibited medications such as other complement inhibitors and chemotherapeutic agents
  11. Patients must agree to avoid pregnancy and fathering children from the time of signing the Informed Consent Form until 90 days after the last dose of rVA576.
  12. Patients who are on erythropoietin and/or treatment should be on stable doses for at least 6 months.
  13. Patients who are taking systemic should be on a stable dose for at least 4 weeks.
  14. Patients on anticoagulant therapy should be well-controlled prior to entry.
  15. Patients taking iron and/or folic acid supplements should be on a stable dose for at least 4 weeks

Exclusion criteria

Exclusion Criteria:

  1. Patients whose mean level over the previous 12 months prior to screening was greater than 105 g/L (10.5g/dL)
  2. Severe bone marrow failure
  3. Patients with a count of ≤ 70 x 109/L
  4. Patients with known or suspected acquired somatic mutations affecting the bone marrow (e.g. acute myeloid leukaemia) which may be associated with PNH
  5. Chemotherapy within 3 months of screening visit
  6. History of recurrent bacterial infections or suspicion of active bacterial infections requiring antibiotic therapy
  7. Planned or actual pregnancy or breast feeding (females)
  8. Known allergy to ticks or severe reaction to arthropod venom (e.g. bee or wasp venom)
  9. Unresolved N. meningitidis infection.
  10. Patients who are not willing to receive adequate immunisation against N. meningitidis unless, in the opinion of the investigator, the risks of delaying therapy outweigh the risks of developing a meningococcal infection
  11. Impaired hepatic function unless, in the opinion of the investigator, the risks of delaying therapy outweigh the risks of treatment in the presence of impaired hepatic function
  12. Patients with a (GFR) of \<30mL/min/1.73m2 unless, in the opinion of the investigator, the risks of delaying therapy outweigh the risks of treatment in the presence of impaired renal function
  13. Participation in other clinical trials within 4 weeks of signing the consent form
  14. History of active systemic diseases.
  15. Any other systemic disorders that could interfere with the evaluation of the study treatment
  16. Failure to comply with protocol requirements
  17. Known or
Terms in these criteria, in plain language(10)

Underlined terms in the criteria open these too. Explained by clinicaltrials.gg, not part of the registry record. The study team decides who can take part.

Informed consent

Before you join, the study team explains what taking part involves — its purpose, what happens, the risks and possible benefits — and answers your questions, so you can decide freely. Consent is usually recorded on a form (the informed consent form, ICF) signed by you or, where the law allows, by someone legally authorised to decide for you.

You can keep asking questions during the study, you are told of new information that matters, and you can choose to leave at any time.

ULN (upper limit of normal)

The top of the normal range for a blood test, as set by the laboratory that runs it. Each lab prints its own range next to your result.

“≤ 2.5 × ULN” means the result can be up to two and a half times that top value.

Immunosuppression

A weakened immune system. It can come from an illness, such as HIV or some blood cancers, or from medicines that turn the immune system down, for example after an organ transplant or for an autoimmune disease; steroids at higher doses count.

Read whether the line is about a condition or about medicines, and which medicines and doses it means.

Corticosteroids (steroids)

Anti-inflammatory medicines such as prednisone, prednisolone and dexamethasone — not the anabolic steroids used for muscle.

Studies differ in what they allow: check which steroid medicines, routes (tablets, injections, creams, inhalers, eye drops) and doses this study accepts.

Hemoglobin (Hb)

The protein in red blood cells that carries oxygen. A low level is anaemia, which can cause tiredness and breathlessness. Measured in g/dL or g/L (9 g/dL is 90 g/L).

Platelets

Blood cells that help blood clot. Too few raises the risk of bleeding and bruising. A usual adult range is about 150–400 × 10⁹/L (150,000–400,000 per µL); each lab has its own reference range.

GFR and eGFR (kidney filtering)

GFR (glomerular filtration rate) is how much blood the kidneys filter each minute. It is usually estimated from a blood test — eGFR, by formulas such as CKD-EPI or MDRD — and some studies ask for it to be measured directly instead. Usually given in mL/min/1.73 m².

Check the method, the units and the minimum the study states. A value of 90 or above is in the normal-or-high range, but kidney damage can show in other tests too.

Autoimmune disease

A condition in which the immune system attacks the body’s own tissues, such as rheumatoid arthritis, lupus, psoriasis, type 1 diabetes or inflammatory bowel disease.

Immunotherapy studies often leave out active autoimmune disease, and some name exceptions, such as thyroid disease on replacement hormone. Check the exceptions this study lists.

Hepatitis B tests

Hepatitis B is a virus that infects the liver. These are separate tests: HBsAg positive usually means a current infection (a recent vaccination can briefly cause it too); total anti-HBc (HBcAb) positive means an infection now or in the past; HBV DNA measures how much virus is in the blood.

Some studies accept a past infection if HBV DNA is undetectable, sometimes with antiviral medicine during the study. Check what this study allows.

Hepatitis C tests

Hepatitis C is a virus that infects the liver. An HCV antibody test can stay positive after an infection has cleared (and is occasionally positive without one); an HCV RNA test shows whether the virus is there now.

After treatment, hepatitis C counts as cured when HCV RNA is still undetectable 12 weeks or more after the treatment ended. Studies often accept people cured this way.

05

Study design

Phase
Phase 3
Primary purpose
Treatment
Allocation
Randomized
Intervention model
Parallel assignment
Masking
None (open label)
Enrollment
9 participants (actual)

Study arms

  • Experimental
    Arm 1 - 9 months of treatment (rVA576 plus SOC)

    6 months (SOC plus rVA576), Followed by a further 3 months of (SOC plus rVA576).

    Drug: rVA576 · Other: Standard of care (SOC)

  • Experimental
    Arm 2 - 6 months on SOC

    6 months on SOC only. Followed by 3 months (SOC plus rVA576).

    Drug: rVA576 · Other: Standard of care (SOC)

Interventions

  • DrugrVA576

    6 months of treatment, rVA576 plus SOC. Followed by a further 3 months of rVA576 plus SOC. In total, 9 months on rVA576 plus SOC.

  • OtherStandard of care (SOC)

    6 months on SOC followed by 3 months of treatment with rVA576 plus SOC. In total, 3 months on rVA576 plus SOC.

06

What researchers measure

Primary outcomes

  1. HB (Haemoglobin) stabilisation rate and the avoidance of packed red blood cells (PRBC) transfusions

    Haemoglobin stabilisation rate defined as haemoglobin greater than the set point for each patient during the pre-study randomisation period and the avoidance of PRBC transfusions during the treatment period.

    Time frame: 9 months

Secondary outcomes

  1. Number of units of packed red blood cells (PRBC) transfused

    Number of units of packed red blood cells (PRBC) transfused from Baseline Day 1 to Day 180

    Time frame: Day 1 to Day 180

  2. Percentage of patients who achieve transfusion avoidance

    Percentage of patients who achieve transfusion avoidance

    Time frame: Day 1 to Day 180

  3. Change in (QOl) Quality of Life score

    Change in Quality of Life score

    Time frame: Day 1 to Day 180

  4. AUC (LDH)

    AUC (Area under the curve) (LDH) Lactate Dehydrogenase

    Time frame: Day 1 to Day 180

  5. CH50

    CH50 (Classical haemolytic 50% lysis)

    Time frame: Day 1 to Day 180

07

Study locations

3 sites
  • Almaty City Hospital No.7
    Almaty, Microdistrict Kalkaman 050006, Kazakhstan
  • Vilnius University Hospital Santaros Klinikos , Santariškių St. 2, LT-08661,
    Vilnius, LT-08661, Lithuania
  • University of Kelaniya, Faculty of Medicine, Thalagolla Road
    Colombo, Ragama/11010, Sri Lanka
08

References and documents

Individual participant data

Plan to share: No

No publications or documents are linked to this record.

09

Timeline

Tracking since Sep 25, 2026
ElapsedEstimatedEstimated, not yet reachedSimilar studies: half by the dot; the band is the middle halfHalf of similar studies reached it by the dot; the band is the middle half, from a quarter to three quarters

Ran from Jun 2018 to primary completion in Sep 2020, 26 months.

Of 35 industry-sponsored phase 3 interventional studies under Hemoglobinuria, Paroxysmal, half reached primary completion within 23 months of starting (the median), counting those still running; a quarter within 15 and three quarters within 41. This study's 26 months is above that.

Counting every sponsor, half of 35 studies reached it within 23 months; a quarter within 15 and three quarters within 41.

How these figures are worked out, and which studies are left out of them.

Registered
Jun 1, 2018
First posted
Jul 17, 2018
StartActual
Jun 7, 2018
Primary completionActual
Sep 3, 2020
CompletionActual
Sep 3, 2020
Last update
Apr 9, 2025
What these dates mean
Start.
When the first participant enrolled; while estimated, when the study expects to open to recruitment.
Primary completion.
When the last participant was examined or treated to collect data for the study's main question, its primary outcome. A study that stopped early gives the date its data collection stopped.
Completion.
When the last participant's last visit took place, for every outcome, secondary ones and side effects included: the end of the study. Often later than primary completion, sometimes the same day.
Actual and Est.
Actual means the registry says the date has happened. Est. (estimated) is a date the sponsor plans or expects. It can still move, and the sponsor is expected to change it to actual once it has passed.
No changes since tracking began. The registry record was last updated on Apr 9, 2025, before this site started recording changes on Sep 25, 2026. Its history is on ClinicalTrials.gov ↗
10

Registry details

Key details

Study ID
NCT03588026
Lead sponsor
AKARI Therapeutics
Responsible party
Sponsor
First posted
Jul 17, 2018
Start date
Jun 7, 2018
Primary completion
Sep 3, 2020
Completion
Sep 3, 2020
Last update
Apr 9, 2025

Study contacts

Andrius Degulys, MBBS
principal investigator · Vilnius University Hospital Santaros Klinikos

Oversight

Data monitoring committee
Yes
FDA-regulated drug
No
FDA-regulated device
No
View the source record on ClinicalTrials.gov ↗

Not currently enrolling

This study is completed, as verified in Nov 2020. You cannot join it, but the record below documents what was studied.

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Studies of the drug tested here: RVA576

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