An observational study in Anemia, Sickle Cell, sponsored by Washington University School of Medicine. Completed at 1 site in United States. Open to participants aged 18 Years and older, including healthy volunteers. Per ClinicalTrials.gov, last updated 2024-05-08.
Sponsored by Washington University School of Medicine · Observational
The goal of this study is to specify the interventions, implementation strategies and control conditions from the Sickle Cell Disease Implementation Consortium (SCDIC) using a mixed-methods approach to study site materials and conduct semi-structured qualitative interviews with site representatives (N=3 per site). We focused on the Emergency Department Working Group from the SCDIC working groups.
The long-term goal of this line of research is to identify the most effective components of SCD interventions while also identifying effective implementation strategies informed by a systematic and rigorous work done by the members of the SCDIC consortium to improve the quality of life of people with SCD, a life-threatening hematological disorder. This study aims to collect detailed information about the planned interventions, the implementation strategies and the control conditions from each site.
1,125 studies on the registry are indexed under Anemia, Sickle Cell; 239 are open to participants now.
This study's enrollment of 17 is below the median of 100 across 295 observational studies indexed under Anemia, Sickle Cell.
Browse Anemia, Sickle Cell studies →Washington University School of Medicine is the lead sponsor of 1,795 studies on the registry; 270 are open to participants now.
Of its 330 completed or terminated interventional studies of FDA-regulated products, 216 (65%) have results posted.
Counted across the registry records on this site, refreshed daily.
This study is focused on gathering data about the interventions planned and delivered from three different stakeholders of each site.
Go through the criteria one by one — yes, no or not sure — and take the list to your doctor or the study team. Kept in this browser only.
Exclusion Criteria:
Careful detail the intervention components and the implementation strategies (i.e., the mechanisms by which the interventions are being delivered in usual care) being developed by the consortium.
Behavioral: SCDIC interventions
The research team will characterize the intervention components and their implementation strategies.
SCDIC Framework of Interventions
Detailed descriptions of the interventions being developed by the SCDIC including a) entity, or entities, targeted by the intervention; (b) functional domains targeted by the interventions; and (c) delivery system characteristics
Time frame: 2 years
Plan to share: Yes — Along the study, we will share the information gathered with participants to check for accuracy. The framework of the interventions will be shared with the participants during the SCDIC Steering Committee calls.
Supporting information: Study protocol, Informed consent form
Time frame: data will be available in two years for the remaining of the 2 years of the consortium.
Access criteria: Assess will be given to all participants via the Consortium's webpage
Data sharing details ↗ · scdic.rti.org
This study is completed, as verified in May 2024. You cannot join it, but the record below documents what was studied.
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