An observational study in Cessation of Life, sponsored by University Medical Center Groningen. Completed at 1 site in Netherlands. Open to participants aged 18 Years and older. Per ClinicalTrials.gov, last updated 2024-04-19.
Sponsored by University Medical Center Groningen · Observational
The aim of this study is to get insight in the quality of life at the end of life and quality of dying for patients died at the hospital in the department Groningen (the Netherlands).
The primary endpoint is the quality of life at the end of life and the secondary endpoint is the quality of dying. Both according a numerical rating scale.
An explorative analysis will be done for differences for the hospitals in Groningen, effect of using the Liverpool care Pathway for the dying, effect of using consultation by the palliative consultation team, effect of using the Hospice@UMCG intervention, correlation with the quality of life at the end of life and quality of dying according to nurses and doctors.
Three hospitals in the department Groningen (the Netherlands) will participate in this study. When a patient died in one of these hospitals (except the emergency department, child ward and intensive care unit) the bereaved relatives will get an information letter. After about 12 weeks a questionnaire will be sent to the bereaved relative. This questionnaire is developed to evaluate the end of life care at the hospital.
Shortly after the patient died at the hospital, also the nurse and doctor of this patient are requested to fill out a questionnaire.
The questionnaire for the bereaved relatives consists of items, divided in groups: a general part, followed by questions of the last days of life, existing symptoms (physical, psychological, existential and social), the care and treatment and the loss.
The questionnaire for the nurses exists of similar items. Special attention for recognizing the impending dying and problems, care and therapy at the end of life.
In all questionnaires there are also 2 main questions: What is your opinion of the quality of life during the last days of life and What is your opinion of the quality of dying.
In the three hospitals the end of life care is managed at somehow different ways: the use of the Liverpool care Pathway of the dying, the hospice@UMCG intervention and consultation by the palliative team of the hospital.
572 studies on the registry are indexed under Death; 111 are open to participants now.
This study's enrollment of 200 is below the median of 314 across 293 observational studies indexed under Death.
Browse Death studies →University Medical Center Groningen is the lead sponsor of 609 studies on the registry; 174 are open to participants now.
Counted across the registry records on this site, refreshed daily.
all patients dying in the hospital
Exclusion Criteria:
all patients that died on one of the wards with the exception of children; on several wards the Hospice care will be introduced as an intervention
Other: Hospice care at UMCG
all patients that died on one of the wards with the exception of children
all patients that died on one of the wards with the exception of children
introduction of hospice care facilities on the wards at the UMCG
Quality of life questionnaire
Time frame: 2 years
Plan to share: No
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This study is completed, as verified in Apr 2024. You cannot join it, but the record below documents what was studied.
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University Medical Center Groningen