An observational study in Terminal Illness and End of Life, sponsored by Assistance Publique - Hôpitaux de Paris. Completed at 1 site in France. Open to participants aged 18 Years and older. Per ClinicalTrials.gov, last updated 2016-06-28.
Sponsored by Assistance Publique - Hôpitaux de Paris · Observational
The purpose of this study is to elaborate a multi-dimensional indicator of the quality in palliative care for patients of end-of-life.
The study will, as secondary objectives:
A multicentric study aims on quality of palliative care and will be conducted in three types of 7 palliative care settings: two hospices, two hospital-based palliative care units and three medical units where a mobile palliative care team intervenes.
572 studies on the registry are indexed under Death; 111 are open to participants now.
This study's enrollment of 560 is above the median of 314 across 293 observational studies indexed under Death.
Browse Death studies →Assistance Publique - Hôpitaux de Paris is the lead sponsor of 3,505 studies on the registry; 1,006 are open to participants now.
Counted across the registry records on this site, refreshed daily.
Study population:
Exclusion Criteria:
Questionnaire for patients
A questionnaire has been elaborated beforehand by the study will be answered by patients in order to evaluate quality such as reliability, dimensionality and validity against criterion.
Time frame: From date of enrollment until the date of first documented leaving from hospital or date of death, whichever came first, up to 2 years
Indicator for medical files
The indicators have been defined by the study, in order to evaluate quality of medical files, such as completeness and discriminatory capacity.
Time frame: At enrollment
Indicator for caregivers
In order to evaluate quality such as reliability and dimensionality, a questionnaire will be answered by caregivers: - the Nursing Stress Scale (NSS).
Time frame: From date of enrollment until the date of receiving questionnaire returned by caregiver, up to 2 years
Questionnaire for families
A questionnaire has been elaborated, will be answered by patients' families.
Time frame: From date of enrollment until the date of receiving questionnaire sent by family, up to 2 years
Plan to share: No
This study is completed, as verified in Nov 2014. You cannot join it, but the record below documents what was studied.
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Assistance Publique - Hôpitaux de Paris