An observational study in PFAPA Syndrome, sponsored by Versailles Hospital. Completed at 2 sites in France. Open to participants aged 2 Years to 18 Years. Per ClinicalTrials.gov, last updated 2023-02-08.
Sponsored by Versailles Hospital · Observational
This cohort study aims to assess the quality of life (or welfare) related to the health of children and adolescents with an non genetics auto-inflammatory disease PFAPA or Marshall syndrome to compare it to children or adolescents with recurrent fever genetics of Familial Mediterranean fever (FMF) in order to improve their overall care.
Versailles Hospital is the lead sponsor of 74 studies on the registry; 17 are open to participants now.
Counted across the registry records on this site, refreshed daily.
Patients with PFAPA syndrome compare to patient with FMF syndrome
Exclusion Criteria:
Life quality for PFAPA patient report by themselves or parent
Other: Quality of life
Life quality for FMF patient report by themselves or parent
Other: Quality of life
Quality of life
Compare quality of life from patients with PFAPA and FMF, reported by parents and by patients themselves
Time frame: 1 day
Evaluate the fatigue status of patients through questionnaire PedsQL TM 3.0 multidimensional scale tiredness
Time frame: 1 day
This study is completed, as verified in Feb 2023. You cannot join it, but the record below documents what was studied.
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Versailles Hospital