An observational study in Cerebrovascular Disease, sponsored by Aga Khan University. Completed. Open to participants aged 18 Years and older. Per ClinicalTrials.gov, last updated 2015-01-30.
Sponsored by Aga Khan University · Observational
In study the investigators sought to
Disability caused by stroke has a detrimental impact on patients with social and physical consequences of stroke being equally devastating. Yet there are only few studies done in South Asia that explore holistically the cumulative impact of disability and quality of life on stroke survivors.
In Pakistan majority of stroke patients are cared by close family members and no inpatient rehabilitation services are available in Pakistan for stroke survivors. The amount of support from government is scarce and private systems are largely unregulated therefore the psychosocial problems in Pakistani stroke survivors are different from those experienced by stroke survivors in developed countries. It is proposed that the quality of life of stroke survivors in Pakistan will be worse as compared to stroke survivors in developed countries. However, due to existence of considerable family support even in absence of good government and environmental support systems we cannot be certain about this assumption. Since care givers provide all medical and social services to chronic stroke victims their quality of life and stress level also plays an important role in the care given to the stroke survivors.
We propose to conduct a cross-sectional study, in order to assess the quality of life in stroke survivors and its important predictors in Karachi. The domains which will be studied includes physical; in terms of severity of disability, which affects the person after stroke, social functioning; which includes the role of primary care giver and social support given to the stroke survivors, mental health; in which depression affects the life of stroke survivor badly after stroke.
Also to explore the perspective of the primary care giver for those important factors which affect the quality of life focus group discussions will be conducted in the study. This is a mixed methods observational analytical study.
374 studies on the registry are indexed under Cerebrovascular Disorders; 129 are open to participants now.
This study's enrollment of 350 is below the median of 443 across 135 observational studies indexed under Cerebrovascular Disorders.
Browse Cerebrovascular Disorders studies →Aga Khan University is the lead sponsor of 290 studies on the registry; 44 are open to participants now.
Counted across the registry records on this site, refreshed daily.
All men and women greater than 18 years, with a chronic stable stroke, medically confirmed supported by medical reports or radiological and neurological diagnosis and with an identified primary care giver.
EXCLUSION CRITERIA:
Quality of life of stroke survivors evaluated by stroke specific quality of life scale one month post stroke
Stroke Specific Quality of Life Scale
Time frame: 12 Months
Quality of life of primary care givers of stroke survivors evaluated by RAND-36
RAND- 36 Quality of Life in Primary Caregivers
Time frame: 12 Months
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This study is completed, as verified in Jan 2015. You cannot join it, but the record below documents what was studied.
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Aga Khan University