An interventional study of Advance Care Planning ACP and Control Group in Palliative Patients and Surrogate Decision Maker, sponsored by University of Zurich. Completed at 1 site in Switzerland. Open to participants aged 18 Years and older. Per ClinicalTrials.gov, last updated 2016-06-06.
Sponsored by University of Zurich · Not applicable, Interventional, and Supportive care
Multiprofessional Advance Care Planning and shared decision making for end of live care for terminal patients and their relatives.
The aim of this study is to develop, implement and test a complex intervention for improving patients' preparation for and participation in end of life decisions. In cooperation with local, national and international partners, the investigators will focus on strategies to enhance advance care planning and shared decision making on end of life issues, and documentation and transferability of end of life decisions across health care settings in coordinated approach involving patients, their families and care givers (in and out of hospital).
572 studies on the registry are indexed under Death; 111 are open to participants now.
This study's enrollment of 115 is below the median of 133 across 260 interventional studies indexed under Death.
Browse Death studies →University of Zurich is the lead sponsor of 1,030 studies on the registry; 130 are open to participants now.
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Inclusion criteria: -patients in which the treating physician on the ward would not be surprised if the patient died during the next year (surprise question of Weissman et al 2011)
Exclusion criteria: -patients not capable of speaking german
A routine care discharge planning with the social service
Other: Control Group
Patient get a decision aid video and library and up to 3 consultations with qualified Advance Care Planning Facilitators. --------------------------------------------------------------------------------
Other: Advance Care Planning ACP
Patient of the intervention group get a decision aid video and library and up to 3 consultations with qualified Advance Care Planning Facilitators.
A routine care discharge planning with the social service
end of life wish on resuscitation known (if alive) or fulfilled(if dead) after 6 month by responsible physician and/or surrogate decision maker (SM)
Time frame: during 2 weeks six months after discharge
end of live decisions on last place of care, antibiotics for pneumonia, feeding tube, intravenous fluids, dialysis, intubation and sedation,
Time frame: during 2 weeks six months after discharge
decisional conflict scale ("DCS"), O Connor et al 1995
Time frame: at discharge and during 2 Weeks six months after discharge
Satisfaction with information and care, (see Detering et al 2010)
Time frame: at discharge
Hospital Anxiety and Depression scale ("HADS")
Time frame: discharge and during 2 weeks six months after discharge
Having an Advance directive
Time frame: at discharge, during 2 weeks three months after discharge and during 2 weeks six months after discharge
Having an appointed surrogate decision maker
Time frame: at discharge, during 2 weeks three month after discharge and during 2 weeks six month after discharge
Any hospital stay
Time frame: during 2 weeks three months after discharge and during 2 weeks six months after discharge
Decisions regarding end of life issues already having been made/taken place
Time frame: during 2 weeks six months after discharge
open question on important medical decisions being made
Time frame: during 2 weeks three months after discharge
Treatment against patients wishes
Time frame: during 2 weeks three months after discharge and during 2 weeks six months after discharge, or 3 month after death
Distress of Patients or relatives because of content of the consultation
Time frame: at discharge, during 2 weeks three months after discharge and during 2 weeks six months after discharge
This study is completed, as verified in Jun 2016. You cannot join it, but the record below documents what was studied.
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University of Zurich