An observational study in Epilepsy, sponsored by Stanford University. Completed at 1 site in United States. Open to participants aged 18 Years and older. Per ClinicalTrials.gov, last updated 2016-04-13.
Sponsored by Stanford University · Observational
The investigators are developing a questionnaire that can quickly measure the impact that epilepsy has on a person's life. This questionnaire will be useful in following whether the impact of epilepsy increases, decreases or stays the same over time. The results also may point out areas that would benefit from discussion or attention in visits with your doctor.
The investigators have used a set of broad open-ended questions about the impact of epilepsy on a person's life to formulate a long list of questions to characterize the impact the seizures, medications, and comorbidities that you are having. In the future, this will be boiled down to a short list of questions.
1,805 studies on the registry are indexed under Epilepsy; 417 are open to participants now.
This study's enrollment of 51 is below the median of 102 across 521 observational studies indexed under Epilepsy.
Browse Epilepsy studies →Stanford University is the lead sponsor of 2,117 studies on the registry; 425 are open to participants now.
Of its 259 completed or terminated interventional studies of FDA-regulated products, 197 (76%) have results posted.
Counted across the registry records on this site, refreshed daily.
Patients in the Stanford Epilepsy Center who have had a seizure in the past year and agree to participate.
Exclusion Criteria:
People with epilepsy who have have had at least one seizure in the prior year.
Other: Interviews and questionnaires
Validation of a concise question set
Time frame: Up to 1 year for question set validation, data presentation within up to 1.5 years
Correlation of subscales
Correlation of subscales of the study questionnaire with previously validated scales, including QoLiE-39, NHS Seizure Severity Scale, Liverpool side effects scale, Beck Depression Index
Time frame: Up to 1.5 years
This study is completed, as verified in Apr 2016. You cannot join it, but the record below documents what was studied.
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Stanford University