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CompletedNCT01434355Updated Jan 7, 2019

DNA Analysis in Samples From Younger Patients With Germ Cell Tumors and Their Parents or Siblings

An observational study in Childhood Malignant Ovarian Germ Cell Tumor, Childhood Malignant Testicular Germ Cell Tumor and Ovarian Choriocarcinoma, sponsored by Children's Oncology Group. Completed at 1 site in United States. Open to participants aged Up to 19 Years. Per ClinicalTrials.gov, last updated 2019-01-07.

Sponsored by Children's Oncology Group · Observational

Study type
Observational
Model
Family-based
Time perspective
Prospective
Enrollment
932
Ages
Up to 19 Years
Sex
All
01

Study summary

This research trial studies deoxyribonucleic acid (DNA) samples from younger patients with germ cell tumor and their parents or siblings. Studying samples of tumor tissue and saliva from patients with cancer in the laboratory may help doctors learn more about changes that occur in DNA and identify biomarkers related to cancer.

Read the detailed description

OBJECTIVES:

I. To evaluate associations between genetic variation and pediatric germ cell tumor (GCT) using a case-parent triad design to identify variants in four genes, KITLG, SPRY4, BAK1, and DMRT1, associated with pediatric GCT.

II. To evaluate associations between genetic variation and pediatric GCT using a case-parent triad design to include targeted genotyping of single nucleotide polymorphisms (SNPs) in selected key pathways essential for normal in utero germ cell development, specifically genes involved in survival of germ cells during migration, apoptosis, and cell cycle control.

III. To explore inter- and intratumoral heterogeneity in DNA methylation by tumor histology.

OUTLINE: This is a multicenter study.

Patients and parents or siblings undergo saliva sample collection. DNA extracted from saliva samples and from patients' archived tumor tissue samples is genotyped and analyzed by methylation arrays, including methylation-specific polymerasechain reaction (PCR) (pyrosequencing) assays. Genetic variation between pediatric germ cell tumors and parent or sibling is also analyzed. Patients' and family members' health history, demographics, and environmental exposures are collected by questionnaires or telephone interviews. Medical history, such as chronic conditions, prescribed medications and congenital abnormalities, including cryptorchidism, is also collected. Birth characteristics of the child, including birth weight and gestational age, are also captured.

02

Conditions studied

  • Childhood Malignant Ovarian Germ Cell Tumor
  • Childhood Malignant Testicular Germ Cell Tumor
  • Ovarian Choriocarcinoma
  • Ovarian Embryonal Carcinoma
  • Ovarian Mixed Germ Cell Tumor
  • Ovarian Teratoma
  • Ovarian Yolk Sac Tumor
  • Testicular Choriocarcinoma
  • Testicular Embryonal Carcinoma
  • Testicular Seminoma
  • Testicular Teratoma
  • Testicular Yolk Sac Tumor
03

Who can participate

Ages eligible
Up to 19 Years
Sexes eligible
All
Accepts healthy volunteers
No
Sampling method
Non-probability sample

Eligibility criteria

Inclusion Criteria:

  • The patient is enrolled on COG-ACCRN07
  • The patient has a primary diagnosis of germ cell tumor (GCT) including germinoma (ICCC 9060-9065) teratoma (9080-9084), embryonal carcinoma (9070-9072), yolk sac tumor (9071),choriocarcinoma (9100, 9103, 9104), and mixed GCT (9085, 9101, 9102, 9105) in all sites including the brain and central nervous system and registered with Children's Oncology Group (COG) by a North American member institution
  • The patient must be diagnosed with a germ cell tumor between July 1, 2008 and December 31, 2015
  • The patient must be \< 20 years of age at the time of diagnosis
  • The patient must have at least one biological parent alive and willing to participate

    • In the event that one case parent cannot contribute DNA, a case sibling, defined as the biological brother or sister of the study subject, may donate instead
  • All questionnaire respondents must understand English or Spanish
  • Concomitant treatment on a therapeutic trial is not required
04

Study design

Observational model
Family-based
Time perspective
Prospective
Enrollment
932 participants (estimated)
Biospecimen retention
Samples with dna

Groups and cohorts

  • Correlative studies

    Patients and parents or siblings undergo saliva sample collection. DNA extracted from saliva samples and from patients' archived tumor tissue samples is genotyped and analyzed by methylation arrays, including methylation-specific PCR (pyrosequencing) assays. Genetic variation between pediatric germ cell tumors and parent or sibling is also analyzed. Patients' and family members' health history, demographics, and environmental exposures are collected by questionnaires or telephone interviews. Medical history, such as chronic conditions, prescribed medications and congenital abnormalities, including cryptorchidism, is also collected. Birth characteristics of the child, including birth weight and gestational age, are also captured.

    Other: Laboratory Biomarker Analysis · Other: Questionnaire Administration

Interventions

  • OtherLaboratory Biomarker Analysis

    Correlative studies

  • OtherQuestionnaire Administration

    Ancillary studies

05

What researchers measure

Primary outcomes

  1. Pediatric GCT associated with genetic susceptibility

    Will be modeled using a Poisson regression. A likelihood ratio test determines the statistical significance.

    Time frame: Up to 5 years

Secondary outcomes

  1. List of genes that distinguish between the three most common histologic subtypes of pediatric GCT: yolk sac tumor, teratoma, and germinoma

    A permutation based Chi-Square test for categorical covariates or a permutation based Kruskal-Wallis test (continuous risk factors) will be used.

    Time frame: Up to 5 years

  2. Validation of array results by pyrosequencing

    A standard case-only approach evaluating differences in methylation by histology, age and gender will be done using chi-square and ANOVA.

    Time frame: Up to 5 years

06

Study locations

1 site
  • Childrens Oncology Group
    Philadelphia, Pennsylvania 19104, United States
07

Registry details

Key details

Study ID
NCT01434355
Lead sponsor
Children's Oncology Group
Collaborators
National Cancer Institute (NCI)
Responsible party
Sponsor
First posted
Sep 14, 2011
Start date
Nov 1, 2011
Primary completion
Aug 4, 2016
Completion
Aug 4, 2016
Last update
Jan 7, 2019

Study contacts

Jenny Poynter
principal investigator · Children's Oncology Group
View the source record on ClinicalTrials.gov ↗

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This study is completed, as verified in Oct 2017. You cannot join it, but the record below documents what was studied.

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