An observational study in Childhood Cancer, sponsored by St. Jude Children's Research Hospital. Completed at 1 site in United States. Open to participants aged 25 Years and older. Per ClinicalTrials.gov, last updated 2012-02-09.
Sponsored by St. Jude Children's Research Hospital · Observational
This feasibility study will determine the psychometric adequacy of a newly developed instrument - Childhood Cancer Survivor Study Needs Assessment Questionnaire (CCSS-NAQ). Additionally, the study will explore the feasibility of selected study methods -- sample selection, length of time to complete recruitment, and response rates - in order to inform a larger national periodic survey of adult survivors' health related needs
This study will focus on the following primary and secondary objectives:
St. Jude Children's Research Hospital is the lead sponsor of 434 studies on the registry; 99 are open to participants now.
Of its 60 completed or terminated interventional studies of FDA-regulated products, 35 (58%) have results posted.
Counted across the registry records on this site, refreshed daily.
The study sample will be recruited from long-term childhood cancer survivors who are currently participating in the CCSS and whose pediatric malignancy was not treated at St. Jude Children's Research Hospital
Exclusion Criteria:
Received treatment for pediatric malignancy at St. Jude Children's Research Hospital.
Examine the construct validity, short-term stability, internal consistency and item-response performance of a health-related needs assessment self-report instrument for adult childhood cancer survivors.
Examine the construct validity, internal consistency, item-response performance, and short-term stability of a health-related needs assessment self-report instrument for adult childhood cancer survivors.
Time frame: July 2011
Inform future sample stratification by over-sampling minority and rural-dwelling survivors to enhance the heterogeneity of the respondent pool.
Time frame: July 2011
Describe the met and unmet needs of childhood cancer survivors and their important covariates in a large, stratified random sample of childhood cancer survivors.
Time frame: July 2011
Evaluate the sample selection methods, length of time to complete recruitment, and response rates in the study sample.
Time frame: July 2011
This study is completed, as verified in Feb 2012. You cannot join it, but the record below documents what was studied.
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St. Jude Children's Research Hospital