An observational study in Breast Cancer and Counseling, sponsored by Memorial Sloan Kettering Cancer Center. Completed at 1 site in United States. Open to female participants aged 12 Years to 20 Years, including healthy volunteers. Per ClinicalTrials.gov, last updated 2017-01-30.
Sponsored by Memorial Sloan Kettering Cancer Center · Observational
The purpose of this study is to first understand how MSKCC Clinical Genetics Service doctors talk to women with breast cancer about any genetic risks they might carry, and if they help women to think about what they might say, in turn, to their relatives, especially their daughters.
A second part of the study asks women for their opinions about when and how their daughters should be told about any genetic risks.
All of this will help us develop teaching methods to help our doctors improve the way they talk about genetic risk when women with breast cancer have adolescent daughters.
12,544 studies on the registry are indexed under Breast Neoplasms; 2,892 are open to participants now.
This study's enrollment of 27 is below the median of 184 across 2,642 observational studies indexed under Breast Neoplasms.
Browse Breast Neoplasms studies →Memorial Sloan Kettering Cancer Center is the lead sponsor of 1,930 studies on the registry; 328 are open to participants now.
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Memorial Sloan-Kettering Cancer Center (MSK) breast cancer patients seen by the clinical genetics service (CGS)and their daughters
Exclusion Criteria:
The group will discuss its views about how and when to talk about the risk of getting breast cancer. The focus group will be video recorded and the video recorded material will be later transcribed and carefully analyzed. In addition you will be asked to answer questions about yourself, such as education and marital status.
Behavioral: focus group & questionaire
The focus group will last about 90 minutes. However, your involvement in this study will last from the time you join until you read over the summary of what happened during the focus group and return your comments. This should be approximately 2 months. Patient will complete a questionnaire and we estimate total time for completion to be approximately 7 minutes.
Is a demonstration of the effectiveness of the module in changing the behavior of clinicians after taking part in the communication skills module.
Time frame: conclusion of study
To examine the views of women about the provision of genetic risk information to their daughters.
Time frame: conclusion of study
This study is completed, as verified in Jan 2017. You cannot join it, but the record below documents what was studied.
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Memorial Sloan Kettering Cancer Center