Neurofibromatoses: all 188 studies

Page 2 of 2. Open to participants first (24), then studies with results posted, then the rest; newest registration first within each.

• Treatment of NF1-related Plexiform Neurofibroma With TrametinibActive, not recruitingNCT03741101Phase 2
• Study of Imatinib in Children With Neurofibromatosis and Airway TumorsWithdrawnNCT03688568Phase 2
• A Single Center Pilot Study to Assess the Intra-observer Reliability of Measuring Muscle Strength Using a Hand Held Dynamometer in Children and Adults With Neurofibromatosis Type 1 (NF1) and Type 2 (NF2)CompletedNCT03672838Not applicable
• A Study to Evaluate Bioavailability and Food Effect of Selumetinib (AZD6244) in Healthy Male ParticipantsCompletedNCT03649165Phase 1
• Reliability of Functional Outcome Measures in Neurofibromatosis 2CompletedNCT03617276
• Vision, Attention and Reading in Neurofibromatosis Type 1 (NF1) ChildrenStatus unknownNCT03518710Not applicable
• Physical Activity, Motor Competence, Pulmonary Function, and Quality of Life in Children With Severe Spinal DiseaseStatus unknownNCT03494829
• Resiliency Training for Adults With Neurofibromatosis Via Live VideoconferencingCompletedNCT03406208Not applicable
• Stem Cells in NF1 Patients With Tumors of the Central Nervous SystemWithdrawnNCT03332030
• Intermittent Dosing Of Selumetinib In Childhood NF1 Associated TumoursCompletedNCT03326388Phase 1/2
• Non-invasive Stimulation in Neurofibromatosis Type 1CompletedNCT03310996Not applicable
• Study About Annoucement of the Diagnosis of Neurofibromatosis 1 in de Novo FormsCompletedNCT03298438
• An Intermediate Access Protocol for Selumetinib for Treatment of Neurofibromatosis Type 1Approved for marketingNCT03259633
• WES of NF2-associated in Comparison to Sporadic Vestibular Schwannomas - Correlation With Clinical DataCompletedNCT03210285
• Mitogen Activated Protein Kinase Kinase (MEK1/2) Inhibitor Selumetinib (AZD6244 Hydrogen Sulfate) in People With Neurofibromatosis Type 1 (NF1) Mutated Gastrointestinal Stromal Tumors (GIST)WithdrawnNCT03109301Phase 2
• Use of Topical Liquid Diclofenac Following Laser Microporation of Cutaneous Neurofibromas in Patients With NF1CompletedNCT03090971Phase 2
• Antineoplaston Therapy in Treating Patients With Neurofibroma and SchwannomaTerminatedNCT02988726Phase 2
• Efficacy of Computerized Cognitive Training and Stimulant Medication in Neurofibromatosis Type 1CompletedNCT02944032Not applicable
• Icotinib Study for Patients With Neurofibromatosis Type 2 (NF2) and NF2-Related TumorsCompletedNCT02934256Phase 2
• Resiliency Training for Patients With NF2 Via Videoconferencing With SkypeCompletedNCT02811718Not applicable
• Vaccine Therapy in Treating Patients with Malignant Peripheral Nerve Sheath Tumor That is Recurrent or Cannot Be Removed by SurgeryCompletedNCT02700230Phase 1
• Analysis of Plasma for Diagnosis and Follow-up of Neurofibromatosis Type 1Status unknownNCT02680431
• Compassionate Use Arm - ABI541 ABI for 10 NF2 PatientsNo longer availableNCT02589912
• Hypotonia and Neurofibromatosis Type 1 (NF1) GliomaTerminatedNCT02584413Not applicable
• Subtle Myocardial Deformation Abnormalities in Asymptomatic Nf-1 PatientsStatus unknownNCT02505412
• Reliability of Functional Outcome Measures in Neurofibromatosis 1CompletedNCT02479360
• The Cognitive Variability in NF1 and TSC Monozygotic TwinsStatus unknownNCT02436746
• Relationship Between Psychosocial Factors, Health Literacy, Quality of Life and Satisfaction With Medical Visits in Adults With NFCompletedNCT02435628
• Functional Imaging and Reading Deficit in Children With NF1CompletedNCT02422732Not applicable
• Pomalidomide in Treating Younger Patients With Recurrent, Progressive, or Refractory Central Nervous System TumorsCompletedNCT02415153Phase 1
• Reading Disability in Children With NF1CompletedNCT02397967Not applicable
• Resiliency Training for Adolescent Neurofibromatosis Patients Via Videoconferencing With SkypeCompletedNCT02387177Not applicable
• Resiliency Training for Patients With Neurofibromatosis Via Videoconferencing With SkypeCompletedNCT02298270Not applicable
• Effect of Lamotrigine on Cognition in NF1TerminatedNCT02256124Phase 2/3
• Effect of Implant Position on Magnetic Resonance Image DistortionCompletedNCT02246231Not applicable
• Transformation of Plexiform Neurofibromas to Malignant Peripheral Nerve Sheath Tumors in Neurofibromatosis Type 1CompletedNCT02211768Phase 1
• Study of Imatinib Mesylate in Neurofibromatosis Type I Patients Aged 2 to 21 With Plexiform NeurofibromasTerminatedNCT02177825Phase 2
• Internet Support Group for Parents of a Child With Neurofibromatosis Type 1CompletedNCT02153931
• Endostatin Study for Patients With Neurofibromatosis Type 2 (NF2) and NF2-Related TumorsCompletedNCT02104323Phase 2
• Ophthalmological Screening and Follow-up of Optic Pathway Gliomas in Children With Neurofibromatosis Type 1.Status unknownNCT02078401
• Vitamin D Supplementation for Adults With Neurofibromatosis Type 1 (NF1)TerminatedNCT01968590Phase 2
• Exploring the Activity of RAD001 in Vestibular Schwannomas and MeningiomasCompletedNCT01880749Early Phase 1
• Neuropsychological Impairment and Quality of Life in Neurofibromatosis Type 1CompletedNCT01851135Not applicable
• PET/MRI in CNS and Extra-CNS Tumors of Patients With Neurofibromatosis-1 (NF1)CompletedNCT01800032
• Whole Body Magnetic Resonance Imaging With Diffusion Weighted Imaging : Potential Role in NeurofibromatosisStatus unknownNCT01777451
• Genetic Evaluation of NF1 and Scoliosis PatientsCompletedNCT01776125
• Neurofibromatosis Type 1 Brain Tumor Genetic RiskCompletedNCT01707836
• Relationship Stressors in Parents of Children With Cancer or Neurofibromatosis Type 1 (NF1)CompletedNCT01702922
• Modifying Genes in Neurofibromatosis 1Status unknownNCT01650142
• Validating Pain Scales in Children and Young AdultsCompletedNCT01639950
• Acceptance and Commitment Therapy for Adolescents and Young Adults With Neurofibromatosis and Chronic PainCompletedNCT01633008Early Phase 1
• How Neurofibromatosis Type 1 (NF1) Affects Schoolwork and Self-EsteemStatus unknownNCT01626846
• MicroRNAs in Patients With Neurofibromatosis Type 1CompletedNCT01595139
• Proton Radiation Therapy for Spinal TumorsWithdrawnNCT01567787Not applicable
• Efficacy and Safety Study of RAD001 in the Growth of the Vestibular Schwannoma(s) in Neurofibromatosis 2 (NF2) PatientsCompletedNCT01490476Phase 2
• Analysis of Data Collected From Individuals Administered Neurobehavioral AssessmentsCompletedNCT01445314
• Use of RAD001 as Monotherapy in the Treatment of Neurofibromatosis 1 Related Internal Plexiform NeurofibromasCompletedNCT01412892Phase 2
• Neurofibromatosis Type 1 Patient RegistryCompletedNCT01410006
• Study of RAD001 for Treatment of NF2-related Vestibular SchwannomaTerminatedNCT01345136Phase 2
• Using Positron Emission Tomography to Predict Intracranial Tumor Growth in Neurofibromatosis Type II PatientsCompletedNCT01222728
• Microarray CGH Analysis of Circulating Tumoral Plasma DNA in NF1 Patients With MPNSTsStatus unknownNCT01218152
• Analysis of Peripheral Nerve Sheath Tumors (PNSTs) in Neurofibromatosis Type 1 (NF1) PatientsStatus unknownNCT01218139
• Effects of Physical Training on Bone and Muscle Quality, Muscle Strength, and Motor Coordination in Children With NF1CompletedNCT01058330Not applicable
• Topical Rapamycin Therapy to Alleviate Cutaneous Manifestations of Tuberous Sclerosis Complex (TSC) and Neurofibromatosis I (NF1)CompletedNCT01031901Phase 1
• First Clinical Study of Erbium - Yttrium Aluminium Garnet (YAG) Laser Vaporization of Cutaneous NeurofibromasStatus unknownNCT00921037Phase 2/3
• PTC299 for Treatment of Neurofibromatosis Type 2TerminatedNCT00911248Phase 2
• Tarceva/Rapamycin for Children With Low-grade Gliomas With or Without Neurofibromatosis Type 1 (NF1)CompletedNCT00901849Phase 1
• Topical Imiquimod 5% Cream for Treatment of Cutaneous Neurofibromas in Adults With Neurofibromatosis 1CompletedNCT00865644Phase 1
• Spinal Abnormalities in Neurofibromatosis Type 1 (NF1)CompletedNCT00844129
• The Use of a Distress Thermometer in a Pediatric Research Setting: An Exploratory Pilot StudyCompletedNCT00824278
• Clinical Trial of Pirfenidone in Adult Patients With Neurofibromatosis 1CompletedNCT00754780Phase 2
• Phase I Clinical Study of the Safety of Photodynamic Therapy (PDT) Using LS11 in Children With Plexiform NeurofibromasTerminatedNCT00716469Phase 1
• Adaptation and Quality of Life Among Adults With Neurofibromatosis Type ICompletedNCT00684398
• Multi-center Project: Spinal Abnormalities in Neurofibromatosis Type1 (NF1) PatientsCompletedNCT00667836
• Ranibizumab for Neurofibromas Associated With Neurofibromatosis 1CompletedNCT00657202Early Phase 1
• Quality of Friendships in Children With NeurofibromatosisCompletedNCT00508235
• Trial to Evaluate the Safety of Lovastatin in Individuals With Neurofibromatosis Type I (NF1)CompletedNCT00352599Phase 1
• Vinblastine and Carboplatin in Treating Young Patients With Newly Diagnosed or Recurrent Low-Grade GliomaCompletedNCT00352495Phase 1
• Childhood Cancer and Plexiform Neurofibroma Tissue Microarray for Molecular Target Screening and Clinical Drug DevelopmentCompletedNCT00340522
• Natural History and Biology of Skin Neurofibromas in Neurofibromatosis Type 1CompletedNCT00314119
• Neurofibromatosis Type 1 (NF1) and Tibial DysplasiaCompletedNCT00303368
• NF1-Attention: Study of Children With Neurofibromatosis Type 1 Treated by MethylphenidateCompletedNCT00169611Phase 4
• Pirfenidone in Treating Young Patients With Neurofibromatosis Type 1 and Plexiform NeurofibromasCompletedNCT00053937Phase 1
• An Implant for Hearing Loss Due to Removal of Neurofibromatosis 2 TumorsCompletedNCT00030043Phase 1
• Eligibility Screening for a NCI Pediatric Oncology Branch Research StudyCompletedNCT00026780
• Study of Plexiform Neurofibromas in Neurofibromatosis Type 1CompletedNCT00006435
• NF2 Natural History ConsortiumStatus unknownNCT00004483
• Phase II Study of the Multichannel Auditory Brain Stem Implant for Deafness Following Surgery for Neurofibromatosis 2CompletedNCT00004437Phase 2

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