An observational study in Endometriosis, sponsored by Université de Sherbrooke. Recruiting at 1 site in Canada. Open to female participants aged 18 Years to 45 Years. Per ClinicalTrials.gov, last updated 2026-07-30.
Sponsored by Université de Sherbrooke · Observational
This is a mixed-methods study aimed to generate new evidence to help optimize access to pelvic health physiotherapy (PHPT) for women living with endometriosis in the province of Quebec (Canada). Specifically, the objectives are to:
Obj. 1: Understand the patient journey of women living with endometriosis, including their experiences accessing PHPT.
Obj. 2: Describe current PHPT clinical practices and service delivery for women living with endometriosis in Quebec.
Obj. 3: Identify barriers, facilitators and potential strategies to improve access to PHPT services and optimize the patient journey of women living with endometriosis in Quebec.
Findings will inform clinical, organizational and policy recommendations to strengthen the integration of PHPT within multidisciplinary endometriosis care. The project is divided into three sequential parts:
Part 1: Semi-structured individual interviews (open-ended questions) will be conducted with women living with endometriosis to explore their journey to obtain endometriosis care, experiences accessing PHPT and perceived barriers and facilitators. Approximately 15-20 participants will be recruited until data saturation is reached.
Part 2: An online cross-sectional survey will be conducted among pelvic health physiotherapists practicing in the province of Quebec, Canada to describe current clinical practices, service delivery and challenges related to the management of women living with endometriosis. The minimum expected sample size is 225 physiotherapists .
Part 3: Semi-structured focus groups (open-ended questions) will be conducted with women living with endometriosis, pelvic health physiotherapists, physicians and healthcare managers to identify and prioritize strategies to improve access to PHPT services. Approximately 24-32 participants will be recruited across four focus groups.
Across all three parts, recruitment strategies will aim to ensure diversity in participant characteristics, including geographic region, sociodemographic characteristics and healthcare experiences, to capture a broad range of perspectives.
This study uses a mixed-methods design consisting of three complementary components: (1) qualitative semi-structured interviews, (2) a cross-sectional online survey, and (3) qualitative focus groups.
920 studies on the registry are indexed under Endometriosis; 266 are open to participants now.
This study's planned enrollment of 264 is above the median of 135 across 349 observational studies indexed under Endometriosis.
Browse Endometriosis studies →Université de Sherbrooke is the lead sponsor of 295 studies on the registry; 65 are open to participants now.
Counted across the registry records on this site, refreshed daily.
Part 1 will include women living with confirmed or suspected endometriosis in Quebec, Canada. Part 2 will include pelvic health physiotherapists practicing in Quebec, Canada who provide care to women with confirmed or suspected endometriosis. Part 3 will include women living with confirmed or suspected endometriosis, healthcare professionals and healthcare managers involved in the organization, delivery or support of endometriosis care in the province of Quebec.
Inclusion Criteria (part 1):
Inclusion Criteria (part 2):
Inclusion Criteria (part 3):
Women living with endometriosis:
Healthcare providers/managers:
- Has experience providing, coordinating, organizing or managing care for women with confirmed or suspected endometriosis in the province of Quebec, Canada
Patient journey and experiences of women living with endometriosis
Patient journey, healthcare experiences and use of pelvic health physiotherapy will be explored through semi-structured individual interviews with women living with endometriosis.
Time frame: Baseline
Barriers to accessing pelvic health physiotherapy
Assessed through the online survey, semi-structured individual interviews and group discussion with patients living with endometriosis, healthcare providers and healthcare managers.
Time frame: Baseline
Facilitators to accessing pelvic health physiotherapy
Assessed through the online survey, semi-structured individual interviews and group discussion with patients living with endometriosis, healthcare providers and healthcare managers.
Time frame: Baseline
Pelvic health physiotherapy clinical practices and service delivery
Assessed through the online survey.
Time frame: Baseline
Recommendations to improve access to pelvic health physiotherapy
Assessed through the online survey and focus group discussion with patients, healthcare providers and healthcare managers.
Time frame: Baseline
Plan to share: No — Due to the sensitive information collected, individual participant data will not be shared in order to protect participant confidentiality. Study findings will be reported in aggregate form through scientific publications and presentations.
Started Jul 2026 (actual). Primary completion is estimated for Mar 2027, 8 months after the start.
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